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Posted

We finally got some of the lab work back on my seven year old daughter who has recently had a major PANDAS flare after receiving the Flu mist. She has had signs of PANDAS for a few years but only recently had a huge flare leaving no doubt as to her diagnosis. Her brother also has PANDAS. So she had elevated strep titers (no surprise there). Her doctor ordered Zithromax for three months. But my daughter has a huge issue with taking medications and this has gotten much worse lately. We even tried to force her last night by both my husband and I holding her down and forcing it in. After much fighting, spitting, and kicking, we stopped. She immediately jumped up and stripped her clothes off, started running around the house spitting and rubbing at her body where she thought the medicine might have touched her. She would rinse her mouth out, then walk around crying and spitting some more, wipping at her body. You would have thought we had thrown acid on her. Clearly this is more than just a child that doesn't like the taste of medicine.

 

So based on that, we are going today to get a bicillin shot. I'm not sure what the plan is after that. I am a nurse so I could do shots at home if they would let me, but I didn't know how often they give the injections for PANDAS and how quickly do you see results. I am really desperate right now because her behavior is so severe that the entire house is turned upside down. I know you all understand that. If anyone is using bicillin or has used it, I would greatly appreciate any information you could give me on your experience. Thanks so much.

 

Very Sad - Dedee

Posted

ds10 had his first shot yesterday per lymes dx...

he is stellar when it comes to all the nonsense he has to go through...i am lucky in that respect...

 

so after the shot was done, i asked...now, on scale of 1-10 how do your allergy shots hurt...

he said like a 1/2

i said you did really well with that shot(i told him in advance it would hurt..but i didn't know how much more ..at least 5xs)..how much did that hurt...

he said like a 10...i said really...(he did not cry) i asked..at want pont do you feel like you'd have to go to the hospital....15-20

then he reailzed he will need more..and he was not happy and very concerned..and i tried to calm him...not crying just worried..and i've been told they make grown men cry!!!!!!

pharmacits said ..don't buy more then 1...i dn't know if you'll be albe to get him to do another...

i will bribe him if i have to, as i have not had to up to this point.

 

that is all i have on that...has not been 24 hours yet

Posted

So did your doctor indicate how often he might want your son to do the shots? I'm not sure how long it stays in the system. I guess I should look that up. Thanks for your response.

 

Dedee

Posted (edited)

So did your doctor indicate how often he might want your son to do the shots? I'm not sure how long it stays in the system. I guess I should look that up. Thanks for your response.

 

Dedee

 

edit

from what i understand the la half life is about 14 days...there is one that is cr..not sure about that one..

once a month for 6 months at present..

Edited by Fixit

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