probiotics and exacerbation

[Malke]

Hi,

 

DD is now on day two of Zith, with a bottle of Custom probiotics coming fedex tomorrow. But I've been reading here recently that probiotics can actually exacerbate the PANDAS symptoms, and now I have a lot of questions.

 

DD has struggled with yeast all her life, so not having probiotics is not an option. We can't do kefir since she's GFCFSFCF etc. and I know any form of dairy inflames her system.

 

I'm thinking I should just start with very small doses of the new probiotics? She was formerly taking 2-3 capsules a day of Kirkman ProBio Gold so her system is used to some form of high powered probiotic.

 

I'm just trying to figure out how to manage her gut issues and her brain issues at the same time!

 

thanks,

Malke

[butterflymom]

=

Edited February 3, 2016 by butterflymom

[butterflymom]

=

Edited February 3, 2016 by butterflymom

[philamom]

The Custom Probiotics does not have the S Therm strain. We use Custom Probiotics and/or Klaire Thera-biotic Detox (my favorite), Florastor for kids, Cullturelle for kids, and integrative Probiotic Pearls. None of these have the S Therm strain. My daughter has a history of GI issues and I find the probiotics to be very beneficial, especially while on abxs. I did see some herxing initially with some of the products, but then it wen't away.

[Malke]

This is all helpful info! I think I will go low and slow to start, but her system is already used to probiotics and her yeast issues are resolving, so now I'm thinking we'll be okay. I just wasn't sure what it was in the probiotics that would cause an exacerbation of PANDAS or why it would be 'too much' for a kid's system, but at least I'll know just to be careful and watchful (as always, lol).

 

DD has been on ibuprophen 2x/day for three days now. This is her second day of zith. The ibuprophen really helps around her tired times or when she's having a growly/mad at everything (even house numbers or trees!)/highly agressive meltdown. I've noticed she's been sleeping a LOT better (no night fussing) since starting the ibuprophen.

 

Today she started the day horribly, but after ibuprophen in her system for 1+ hours she calmed down. School's closed, we were together all day yesterday out of the house b/c power was out, I'm exhausted and letting her watch videos and make things on the bed all day. We're on a do-almost-nothing day and it's helping -- all I"m getting this afternoon are some growly faces and then back to her sunny (although ticcing) self. I think that stress management is as much part of the game as anything else. I'm prescribing her daily bubble bath therapy along with Bach remedies and catnip or chammomile tea!

 

My heart goes out to her when she's in the clutches of her OCD. Today she's started asking "Am I always going to be doing this?" (meaning the OCD). She had a dream that her house was on fire, she has intrusive thoughts, her brain is literally under attack. I am so glad we started Abx finally, because it was getting worse quickly.

 

Thanks again,

Malke

[JulieMc]

Malke, I just wanted to say thank you for referring me to this forum. Just your two posts and the replies alone have given me volumes of information. We have been on Custom Probiotics for a while now so I'm thankful we don't have to stop and I also give Florastor for Kids for the S. Boulardi strain. Someone posted a reply to my post (Is this PANDAS?) stating that the probiotics my son was taking may make things worse but then I read this and realize that I'm OK. Whew.

 

I am starting the ibuprofen for my son tomorrow.

 

Julie