Barking tic

[texascatholic]

My girls went to their homeschool co-op yesterday and one of the moms informs

me that a child who was there yesterday was diagnosed today with strep. This

evening my child starts up with barking tics (we've never had this before)along with

involuntary jerks. Wondering if this is related? We had our second IVIG last week,

so I am also wondering if we are in the recovery phase still and that's what this is.

Very unsettling, though. Has anyone else had an experience like this? She's terrified about it.

 

Thanks and God bless,

Holly

[momofgirls]

gosh so hard to say because sometimes tics get worse after ivig but given the fact that you know your daughter was exposed to strep it's so hard to know for sure. What antibiotic and dose is she taking? I suggest maybe talking to the doctor about maybe switching antibiotics or increasing the dose for a while. Have you ruled out other chronic infections like lyme?

[GraceUnderPressure]

Holly, So sorry to hear about this bump in the road (at least I hope & pray that is all it turns out to be for you all). I am glad to hear things have been otherwise moving in a positive direction at least! Hopefully a simple increase in abx will be sufficient to nip this in the bud!

 

Do you know if Dr. Infante & his team have finished working out their protocol yet? I do wish he was open to PITAND as well as PANDAS.

~Grace

[texascatholic]

Thank you! Tic is gone this morning. We did test "negative" for lymes via Igenex with a few

suspicious bands coming up positive. Still need to get with an LLMD someday. but there are none locally.

Not easy to travel right now due to me expecting our sixth child!

 

Grace, we are technically PITAND and Dr. Infante is treating us because of our Cunningham test scores + clinical

history. Even though she lacks official strep antibodies when tested, she seems to react when exposed. Confusing!

 

God bless,

Holly

[eljomom]

can someone explain why tics get worse after ivig? that would be a main reason for doing it in the first place....

[EAMom]

can someone explain why tics get worse after ivig? that would be a main reason for doing it in the first place....

 

My understanding is that lots of symptoms can get worse after IVIG (did for us)...but that is a temporary set-back. The IVIG contains lots of antibodies for your child's body to respond to. IVIG "stirs things up" so to speak. After our fist IVIG we had a rough 1st week, with "turning back the pages" and also some new (short-lived) symptoms (such as "my taste buds aren't working right"). Then, week by week, things started to improve.

[EAMom]

Grace, we are technically PITAND and Dr. Infante is treating us because of our Cunningham test scores + clinical

history. Even though she lacks official strep antibodies when tested, she seems to react when exposed. Confusing!

 

 

Do you mean ASO/anti-dnase b? Lots of PANDAS kids have low strep titers (esp. the girls). My dd has always had low strep titers despite having (at one point) the highest CaM kinase ll Dr. Cunningham has ever seen (high SC range).

 

My dd also reacts when exposed to strep. This is pretty typical I think.

 

I'm glad the bark is gone!