browneyesmom Posted January 27, 2011 Report Posted January 27, 2011 My DD11 was supposed to have IVIG today, if Dr. B's office could get it approved, so we stayed overnight - had a to go to a different hotel than the one we told them, but no calls on my cell yet. She just had another episode. I called the Darien number and was told they are not open until 2 pm... that the infusion center is open, but they don't have a phone in there. ??? Can anyone tell me how to reach them to find out if and when we are supposed to be there for IVIG? Thank you!!!!
browneyesmom Posted January 27, 2011 Author Report Posted January 27, 2011 I called the answering service back and asked them to have him call me.... we'll see if that gets me anywhere...
browneyesmom Posted January 27, 2011 Author Report Posted January 27, 2011 Louise just called - she's approved! Yayyy!!!! :) We're getting checked out of hotel room & heading over to the infusion center! I'm going to get my daughter back!!!!!
NancyD Posted January 27, 2011 Report Posted January 27, 2011 Yeah! See you soon. We are here at the infusion center though the office is closed until 2pm. Nancy
Phasmid Posted January 27, 2011 Report Posted January 27, 2011 Best wishes for both your families! So happy it worked out well Browneyes!
kferricks Posted January 27, 2011 Report Posted January 27, 2011 Can't wait to hear back from you guys~
KaraM Posted January 27, 2011 Report Posted January 27, 2011 Ditto - keep us posted!!! Congratulations! Kara Can't wait to hear back from you guys~
browneyesmom Posted January 28, 2011 Author Report Posted January 28, 2011 Infusion went fine; they gave her 1.5g/kg, so a total of 45 grams Gammugard. We're due back in 4 weeks for another... I am completely exhausted, but just so relieved that she finally has a treatment plan!
3boysmom Posted January 28, 2011 Report Posted January 28, 2011 Great meeting you. Thanks for your patience with our boys, didn't want them to hear our discussion. Best wishes and prayers to your beautiful daughter!
browneyesmom Posted January 28, 2011 Author Report Posted January 28, 2011 It truly was our pleasure hanging out with your sons; we enjoyed them! Praying things improve for all of you soon! ♥
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