Does look OK?

[Wilma Jenks]

9:45am Nystatin

10:45am 1 Charcoal

12:45pm Azith., Nystatin and Lamictal

1:45pm 1 Charcoal

3:45pm Nystatin

4:45pm 1 Charcoal

6:00pm Probiotic

9:00pm 3mg. Melatonin 25mg.Seroquel

[Phasmid]

9:45am Nystatin

10:45am 1 Charcoal

12:45pm Azith., Nystatin and Lamictal

1:45pm 1 Charcoal

3:45pm Nystatin

4:45pm 1 Charcoal

6:00pm Probiotic

9:00pm 3mg. Melatonin 25mg.Seroquel

 

Since nobody else responded, Wilma, I will give my 2 cents. I don't believe that it is wise to spend money on Nystatin (very expensive, I know) and antibiotic and other meds and try to give activated charcoal as well. It is very likely that all will be neutralized by the charcoal. I also think that unless there is a gut infection with something putting out serious toxins, such as Clostridium or Giardia, docs should not be pushing this stuff so much. My own opinion only. I tried to use another type of "absorber and neutralizer" but it really kept the antibiotic from working. The probiotics I think are worth taking.

[Priscilla]

I will also add (JUST MY OPINION) within the first months of this for us, my daughter was taking over 7 pills am and pm, several supplements, antibiotics and antifungal/yeast. This really bothered me, stressed her, and made it very difficult to know what was helping and what was hurting. It is so easy to get caught up in trying everything- we want so desperately to try anything that may help our children. Then it starts to get overwhelming and very confusing because you can be bombarded by soooo many different supplements. I got to the point that I just stopped EVERYTHING! nothing but a healthy realistic diet and occasional whole food vitamin. We were off of everything for 2 months, then a cold set us back so we started antibiotics again, after 3 weeks, they are helping. I do feel she needs some gut protection while on abx so I have her eat yogurt and yakult culture daily. If I suspect yeast again I will add more probiotic. My point is, at least for us, more meds, more stress on her and her body. Elminating all unecessary meds and slowly adding in what we may NEED has given us a peace of mind. I can honestly say that all the supplementation and severely restricted diet had no real positive effect for us (not that it doesn't for some). I am just letting you know that I feel for how overwhelmed you must be. Try to go with your gut on what you think she needs, you know her best. I do agree that the charcoal may be paradox. If you feel the abx are working some, what are the chances of trying to wean her off some of the other psych meds? If she is PANDAS, those meds can make them worse, or they can have some serious mood side effects (especially on teens). I will keep you in my prayers.

[Priscilla]

just noticed some of the side effects for Lamictal are : difficulty thinking/concentrating, restlessness, mood disturbance, swelling itching irritation of vagina (sorry to be graphic but I remember your post about the neck massager). This is just a short list of a long list of side effects. Did she have all these symptoms before starting these meds?? Like I said, some PANDAS children actually worsen with these types of meds

[Wilma Jenks]

yes she had those symptoms from the start. doctor wants her on lamictal because of the abnormal EEG. the seroquel does worry me. i don't think it helps with sleep, and it may be making her mean. the abx and nystatin are helping. she for sure needs someting, because without any meds. or supps. she is violent, and sits in front of a tv all day, because she is totally overwhelmed, agitated etc... she is house bound, when not on anything. it's bad over here.