Anasthesia reactions?

[EmersonAilidh]

I'm the only person I know who reacts to anasthesia the way that I do. I've had to go under four times (two sublingual ranula removals (1999/4yo & yesterday), one emergency appendectomy (2003/8yo), one MRI that I had to be sedated for(2006/12yo). These past two times, I don't get nauseous. I don't vomit. I get inconsolably, uncontrollably, unimaginably emotional. Sobbing, screaming, shaking in the recovery room. Last time the doctors said it was a one time reaction... But that wasn't the case. Do anyone else's P.A.N.D.A.S./Lyme kids have bad reactions to anesthesia?

 

Also, painkillers normally make me enraged too. However, these Lortab that they have me on (5g every four hours) is actually doing what it's supposed to for once. Does anyone have adverse reactions to painkillers, too? I think my body's liking this one cos it has Acetaminophen in it. Yay, anti-inflammatory.

[peglem]

I'm the only person I know who reacts to anasthesia the way that I do. I've had to go under four times (two sublingual ranula removals (1999/4yo & yesterday), one emergency appendectomy (2003/8yo), one MRI that I had to be sedated for(2006/12yo). These past two times, I don't get nauseous. I don't vomit. I get inconsolably, uncontrollably, unimaginably emotional. Sobbing, screaming, shaking in the recovery room. Last time the doctors said it was a one time reaction... But that wasn't the case. Do anyone else's P.A.N.D.A.S./Lyme kids have bad reactions to anesthesia?

 

Also, painkillers normally make me enraged too. However, these Lortab that they have me on (5g every four hours) is actually doing what it's supposed to for once. Does anyone have adverse reactions to painkillers, too? I think my body's liking this one cos it has Acetaminophen in it. Yay, anti-inflammatory.

I don't think acetaminophen is anti-inflammatory?

[Priscilla]

YES- My dd broke her 2 front teeth at 2 yrs and went under anesthesia in the ER to remove the fragments. When we got home, she was kind of convusling with a temp of 104. I didn't want anymore trauma for the day so I held her and sponged her down and she came out of it by morning. So then we were worried about malignant hyperthermia because my moms sister and half brother have a muscle disorder called myotonic dystrophy. When she had her tonsils out at 3 yrs, we made special arrangements with the anesthesiologist to use gas that he would use if she was high risk for malignant hyperthermia. She did much better, but did actually fever to about 100-101 and shook, but only for a little while (maybe 30 min). I am interested to hear if anyone else has an experience.

Edited December 22, 2010 by Priscilla

[SarahJane]

My son reacted violently coming out of anesthesia both times he's been under for surgery (adenoidectomy & separate tonsillectomy). We were shocked at how WILD he was. Took about an hour to calm him down. They even asked about his reaction before his 2nd surgery, and we thought they'd do something to avoid/lessen his reaction. Nope. Same thing. Wild bucking bronco...totally freaked out...at least an hour to calm. Whew. It likely has to do with the epinephrine (adrenaline) solution they used (& maybe it's also in the anesthesia(?)). Plus there was probably infection involved in adenoids/tonsils. Helped me figure out retrospectively that we probably were dealing with early onset PANDAS.

 

Glad it seems your surgery went okay otherwise...at least you're on here typing. Hope you have a Merry Christmas Emerson!

[EmersonAilidh]

Ope. I very well might be wrong, Peg. My bad. I thought it was. :/

 

& that's crazy, Priscilla! I was shaking & they kept telling me "Stop holding your breath!" but I wasn't (but couldn't tell them that, of course). -___-

& SarahJane, ah! I've never been wild. I wonder if P.A.N.D.A.S./Lyme kids are predisposed to bad reactions for some reason or if it's just a normal bad anesthesia reaction. Sorry I haven't replied to your message!!! I haven't forgotten about you, just haven't been on much. D:

[momcap]

I wonder if P.A.N.D.A.S./Lyme kids are predisposed to bad reactions for some reason or if it's just a normal bad anesthesia reaction.

 

I have my DS7 booked for tonsillectomy and I'm terrified of the anesthetic. He had a cavity filled and went bonkers for HOURS after the gas. He was shrieking until 1 a.m. and developed a fever. My youngest had tubes put in when he was 2 and he woke up screaming and fighting. It shook the nurse up and she rushed to find a doctor. He was inconsolable for almost 2 hours. I don't think he has PANDAS, but I wonder if all 3 have lyme.???

 

I spent the last year on a juvenile bipolar forum before hearing about PANDAS. It is VERY common for juvenile bipolar kids to have terrible reactions to anesthetic.

[Priscilla]

I wonder if P.A.N.D.A.S./Lyme kids are predisposed to bad reactions for some reason or if it's just a normal bad anesthesia reaction.

 

I have my DS7 booked for tonsillectomy and I'm terrified of the anesthetic. He had a cavity filled and went bonkers for HOURS after the gas. He was shrieking until 1 a.m. and developed a fever. My youngest had tubes put in when he was 2 and he woke up screaming and fighting. It shook the nurse up and she rushed to find a doctor. He was inconsolable for almost 2 hours. I don't think he has PANDAS, but I wonder if all 3 have lyme.???

 

I spent the last year on a juvenile bipolar forum before hearing about PANDAS. It is VERY common for juvenile bipolar kids to have terrible reactions to anesthetic.

 

 

and you gotta wonder how many juvenile bipolar diagnosis really are PANDAS- my dd surely would have fit bipolar as at least one diagnosis. Along with OCD, tourettes, ADD, ADHD, SID...... the list goes on.....

[ajcire]

When my son had his tonsils out he had a bad reaction to the anesthesia... Coming out of the anesthesia he was shaking and almost appeared seizure like... it scared the heck out of me because my daughter had hers out a few months prior to him and had no reaction at all. That was just when he was first coming out of it and the dr. said it was normal. Then he had a bad reaction for a week from it... was completely just out of it, no personality, no appetitie..not acting bad or anything, just looked drugged (and he wasn't on pain killers) and too mellow. He also had severe night terrors that he had never had before.. it lasted a week. The doctors said it was his reaction to the anesthesia and it could have lasted many weeks... thank goodness literally after one week he suddenly was fine.

[PhillyPA]

I don't know how a doctor can say it is a "one-time reaction". That seems crazy. How would they know? My husband is an anesthesiologist and I will ask him your question. I do know that lots of people can have reactions to anesthesia, not only kids with pandas.

[NancyD]

Here's an article I found helpful and it doesn't just apply to children with ASD: http://autism.com/fam_AnesthesiaandtheAutisticchild.asp

 

There's one other really good article I've been looking for but can't seem to find just yet. I'll post it when I find it. It specifically addresses the immune system. It might have been posted on this forum at an earlier date. You may want to search "anesthesia" on the forum search engine. I can't do that from my iPhone.

 

I know I can't have any anesthesia (or OTC med like sudafed) with epinephrine in it as I will have a really bad reaction. So I assume my DD will too and always ask for novacaine or anesthesia without it.

[kimballot]

NancyD was right - we've had some discussions about this in the past. Here is a thread you might find interesting. Lots of folks also report agitation upon waking from anesthesia and increase in nightmares/ terrors for a couple weeks after anesthesia. I don't know if this is PANDAS specific as I am sure it also happens in the general population, but we've definitely seen it here!

 

http://www.latitudes.org/forums/index.php?showtopic=8838&st=0

[NancyD]

Still can't find the specific article but the one I posted earlier and these below may be helpful.

 

http://medind.nic.in/iad/t02/i1/iadt02i1p8.pdf

 

http://www.highbeam.com/doc/1P3-1616150411.html

 

http://www.autism.com/fam_anesthesia_fluoride.asp

 

We used propofol and maybe one other. Absolutely NO nitrous oxide beforehand and no Tylenol. Only ibuprofen.

Edited December 27, 2010 by NancyD