To KIM who emailed me

[Chemar]

Hello Kim

I got your email but there was no return addy so I am just checking to see if you would like for me to post your message here for the other members to be able to give you their input too.

 

so glad you are learning so much here......the shared knowledge and experience is so very valuable!

 

[kim]

Cheri,

 

Yes it would be fine if you posted the email. I'm not really sure what I'm doing here, as far as trying post. Thanks for your help.

 

Kim

[Chemar]

Hi there KIM

 

here is your post which I am sure will be of interest to many here

 

Hi everyone!

 

I am the Mom of two boys (8&12) with TS.  I have just recently started using the basic vitamin program with my oldest son.  He has one pronounced tic currently, head shaking.

 

My eight year old son quit eating almost every Gerber 3rd food around 13-15 months.  Since I have been doing all of this reading lately, I really have to wonder about the immunizations, mercury etc.  Both of my boys also were on soy formula as infants.  I know soy products can be a tic trigger from Bonnies web site. We have no family history on either side that I am aware of.  Just wondering if anyone has any thoughts on this.

 

I am really angry that the medical community told me nothing of any of the info I have found on the internet.  Pediatricians, neurologists, and a 2nd opinion with a neu. at a university hospital: all the same-use clonidine, they'll out grow it.  I would like to know when my 8 year old will out grow an intense sugar craving along with a soft vocal tic, facial tics, and recently, shoulder shrugging- and start eating normal foods.  I would like to know when the head shaking will stop causing my 12 yr. old to ache all over, and live on motrin to control headaches.

 

I have had nothing but negative opinions from both Drs. about use of the vitamins.  Their biggest concern is about the consistency of the dosage per vitamin (since their not FDA regulated-like that's a guarantee!) and the high levels.  I'm putting my faith in Bonnie and giving these vitamins a try for at least 2 mos.  Thanks for letting me ramble.  I'm new to alot of this and will be awaiting more news from the Dad trying the detox. with his son.  My prayers will be with you and your family.

 

I have read posts from others who have tried the vitamins without success.  I was wondering how long you tried the program or if you tried to modify it at all before discontinuing.

 

Kim

 

 

A few things that I wanted to comment on

 

first...we sure know how you feel Kim. I think all of us have been in that place of going between despair and frustration and anger over trying to help our kids and dealing with the majority of the conventional medical community. They are so quick to put down alternative treatments when most of the time they actrually know NOTHING about them, or the success rate. It is quite alarmning as to how very ignorant they are over things that are so important in many illnesses and disorders. Yet, they will prescribe drug after drug after drug without hesitation, and when one has side effects to the drug, they will prescribe another to cover the side effects of the first and on and on and on! masking symptoms instead of getting to the ROOT of the problem.

 

anyway.....

the really good thing is that many doctors are realising that there IS more to treatment than a prescription and for that we are thankful!

 

 

Now

with your child:

 

sugar cravings are freqently a sign of Candida overgrowth.

 

I know Bonnie doesnt seem to agree about the problems with yeast infections or pyroluria etc making tic conditions worse, but there really is enough anecdotal evidence just on this board to show differently. So I really would suggest that, if you havent already checked for these, that you do.

As you have already noted, the latest evidence on mercury has spurred Andy into action. again, something that many here have found to be very beneficial in their treatment protocol

 

Also, you mention the headaches......I honestly believe that everyone who has tics should see a NUCCA chiropracter periodically as the tics really do cause a lot of vertebral problems and that is what causes the headaches. The NUCCA chiros have a very specialised technique and the relief of pain is phenomenal.

http://www.nucca.org

 

and then, re your question on modifying Bonnie's program.

For some people it is a remarkable treatment and they respond quickly and see lasting improvement.

Some find their tics increase when they first start the program, but then begin to reduce and stay reduced while on the program.

Some do ok on most of the products, but find that the fishoil capsules make them tic more, and so they do better with a EFA made with flaxseed, borage and evening primrose oil

 

and then other people just dont seem to respond well to the program for whatever the reasons may be, yet, by putting together their own supplement program, they see a great improvement in their tics.

 

When I started my son on the supps, the Bontech products were not yet on the market, but Bonnie had posted her treatment program for her son on her old website and so I used that info to formulate my son's program.

His tics have become so mild that he no longer takes anything other than a multivit/mineral supp with EFA

 

I dont know if you read the thread I have to detail our program but here it is again

http://www.latitudes.org/forums/index.php?...p?showtopic=687

 

I also bumped it up

 

I do hope this helps some, and I know that many of the others will also have lots of info for you.

 

Dont worry Kim. In most cases, tics just do resolve as kids get older. And you are doing the right thing by educating yourself and doing what you can to help your children be healthy and happy.