so worried

[Phasmid]

Sorry things are so bad. You may already know this, forgive me if you do, but Cipro is a flouroquinolone class antibiotic; this class of antibiotics have known side effects that can make things MUCH worse in causing severe anxiety. I don't know how long your child has been on.

 

I am one of the small percentage of people who react negatively (severe panic/anxiety attack which brought me to the ER) to the flouroquinolones.

 

 

 

 

 

Thank you for your recommendations. Dr. B sending out script for igenex testings. Presently my son is taking 2 antibiotics, zithro and cipro.

[Priscilla]

so sorry you are going through this, looks like you are trying everything. I just want to let you know that for 2 months after ivig my dd was worse, even on abx, it was a horrible 2 months. Then we started to see improvements very slow, gradual, and saw toothed, they did take a while and she is not 100%, but much happier and manageable for us. All may not be lost, and you truly need to take on ONE DAY AT A TIME. Don't look too far ahead, just take the day as it comes and keep your hope alive, it will help your ds..... All my prayers to you.

[Tamistwins]

Plasmid, this I did not know.. But he was really bad before we started Cipro, I don't think it is making him worse...i just don't know anymore.... Things seem so helpless.

Sorry things are so bad. You may already know this, forgive me if you do, but Cipro is a flouroquinolone class antibiotic; this class of antibiotics have known side effects that can make things MUCH worse in causing severe anxiety. I don't know how long your child has been on.

 

I am one of the small percentage of people who react negatively (severe panic/anxiety attack which brought me to the ER) to the flouroquinolones.

 

 

 

 

 

Thank you for your recommendations. Dr. B sending out script for igenex testings. Presently my son is taking 2 antibiotics, zithro and cipro.

[Tamistwins]

Thank you Pricilla for your kind words. I am very happy to hear your daughter is doing much better. Things are so unbearable. Every day it is just screaming and battling. I seriously do not know how much more I can take. I took him for blood work today still waiting on igenex script.i hope we find a solution soon! thanks again!

so sorry you are going through this, looks like you are trying everything. I just want to let you know that for 2 months after ivig my dd was worse, even on abx, it was a horrible 2 months. Then we started to see improvements very slow, gradual, and saw toothed, they did take a while and she is not 100%, but much happier and manageable for us. All may not be lost, and you truly need to take on ONE DAY AT A TIME. Don't look too far ahead, just take the day as it comes and keep your hope alive, it will help your ds..... All my prayers to you.