Let the herxing REALLY begin

[tpotter]

Had an exciting night last night...in the ER! Both my boys went "off" at the same time (neither one quite remembers what triggered them, and we've never had both go "off" simultaneously,) and my 17 yo ended up with a possible hairline fracture of the clavicle (I told them both that I had to post this one on the forum...they actually didn't even argue that much, because they know it was really bad.) Thank goodness my husband was there to help pull apart 2 almost 6 foot tall boys having sudden and extreme adrenaline rushes!

 

My 15 yo said that it felt like he was only touching my 17 yo "lightly", my 17 yo says he doesn't remember part of it, but does remember that he was trying to fight us, so he could get some extra punches in on the 15 yo (but now says he doesn't know why he was doing it).

 

When I got to the ER, and was giving his hx for the umpteenth time, I added in Lyme. The ER doctor was actually interested, and although my son was begging me to stop, she actually wanted more information about how one gets truly diagnosed (she said she gets a lot of false positives, but I told her that I felt there were more false negatives,) and was surprised to find out how strong the dosage of abx is. She wanted more info, and wanted to know how one would know that tx "was over" so I gave her the name of our LLMD.

 

My son's guidance counsellor asked him today if we got the police involved. His answer? "No, it happened too quickly"

 

Oh...and we also have another dent in the wall (our walls have repeatedly been repaired with all the holes!)

 

But, what's truly amazing is how fast these "incidents" cycle, as opposed to previous episodes. That's why I'm really convinced at this point that it's actually herxing. I really didn't want to believe that we had to deal with 1 more thing, but I guess we do. And, yes, I also do believe they have PANDAS, as well.

[philamom]

That's a lot of testosterone being thrown around...good thing your husband was around! I'm sorry to hear about the injury, but glad the incident was over quickly.

[tpotter]

Yes it is a lot of testosterone. I can laugh at it now, and honestly, I wasn't even as upset as I've gotten in the past, because it was over "that fast." I know it sounds weird, because it's one of the worst injuries we've actually had, but I think it's the long acting massive rages that my kids' can't calm down from easily that just tear at me.

 

When I got to the ER, no one seemed overly concerned about a teenage boy showing up with a possible fractured clavicle, because he got into a fight with his brother. Even though we know it was way more than normal (and so would you guys), it seems relatively normal to "regular" people, so there's not all the wondering what we may have "done" to our kids. "Unfortunately", I actually appreciate something like that!

[RNmom]

Re: "When I got to the ER, no one seemed overly concerned about a teenage boy showing up with a possible fractured clavicle, because he got into a fight with his brother. Even though we know it was way more than normal (and so would you guys), it seems relatively normal to "regular" people, so there's not all the wondering what we may have "done" to our kids. "Unfortunately", I actually appreciate something like that!"

 

Hi tpotter,

Sadly, I understand this statement. How many of our kid's Lyme / PANDAS symptoms are filtered through medical or social or psych lenses and sorted into categories such as developmental or behavioral or "whatever the medical community is willing to diagnose - just not Lyme or PANDAS!" In this case, the "ER filtering system" worked in your favor leaving you free to continue on your Lyme / PANDAS journey. It seems that you are on the downhill slope - the descent just got a little steep and overwhelming last night for your whole family.

 

We follow behind you... plasmapheresis last July... then Lyme dx... now almost 30 days on daily Doxy and Diflucain, as well as bi-weekly Bicillin...getting ready for Rifampin alt. with Zithromax for Bartonella (the worst psychiatric offender of all the Lyme co-infections)... I am reading every post on herxing that I see as I get ready for this next treatment cycle.

 

Before we start the Rifampin I have one last consult with a new LLMD (new for us - he has been treating Lyme for 30 years). He is known for tackling the yeast before treating the Lyme. He has said that Diflucain is not as effective against some of the newer strains of yeast (which can cause some raging, FYI). He uses Nystatin and a new one called Vfend. I am seeking his opinion as to whether we should tackle yeast aggressively over the next two weeks then start the Rifampin, or do both at the same time, or just stick with the current plan. I will share the results of tomorrow's consult with you and the forum in case it might be useful.

 

I am glad to see that you are keeping your sense of "irony." It also sounds like your family works well together even (and maybe particularly) in the worst of times. Thank you for sharing this and giving us all a "heads up" about how rocky the treatment process can get.

 

And, I too know my ds14 has both PANDAS and Lyme...

Edited November 14, 2010 by RNmom