Chelatin detoxing

[kim]

Andy,

 

Yes we lurkers are very much interested in every step of your process! Not to mention just wanting to hear how your little guy is doing. However, I know how much time posting takes, and time must be in pretty short supply with everything you have going.

Even when things aren't too bad, you don't know what's around the next corner, and I learn something new every time I sign on here.

I will be praying all goes well with your third treatment. Maybe when things level off again, you will be seeing some dramatic improvements that stick.

I don't think there is a DAN Dr. anywhere close enough to be practical, but my sister-in-law lives in Florida. If we decide this is what we need, we could always stay with her family for a couple of weeks. I have also considered Pfeiffer, Immunio- recommended a Naturopath about 50 miles from our home, and I located a lady who looked like she had wonderful credentials, but she said she did muscle testing and made a remark like "I used to have a machine around here somewhere". I may have misunderstood her, but it didn't instill a lot of confidence.

 

Kim

[kim]

Karen,

 

I am one of the newer people here, and I think yeast testing is really recommended by most, although it is not an issue for all. If you go to the message list and look for a thread regarding yeast, you will probably find every thing you need to know. I tried to have yeast testing done last week through my regular Ped. and they said the two labs that they use for tests that can't be done locally don't do yeast testing, so unless you have a specialty Dr. you may run into what I have.

The deal with yeast seems to be; We all have yeast in our systems and the good kind is beneficial, but when you have extensive antibiotic use (I think one article I read said more than 4 times per year) the good yeast can morph into a bad kind that gets "outta control", and can make you crave sugars and carbs, because that is what "it" feeds off of. As this yeast grows, it actually grows little feelers which can perforate the walls of the gut, thus allowing undigested food particles to enter the blood stream and trigger an allergic reaction. Also, this overgrowth can interfere with the absorbtion of nutrients and tax the immune system. There's a little more to it than this, and I'm sure others could explain it better, but that might get you started. This issue really caught my attention since my 8 yr. old will climb mountains to get to sugar. He also had many antibiotics when he was younger and started eliminating most foods from his diet around 15 months. Dr. said he was just a picky eater and manipulating me. At 15 mos.? I still want the test. Also, if you search Candida on the internet-you will find a lot of info.

 

Kim

[Spring]

Hi Karen,

 

I would recommand Dr. McCandless's book "Children with starving brains" - a medical treatment guide for autism spectrum disorder.

 

You may get the book from amazon:

http://www.amazon.com/exec/obidos/ASIN/188...0830247-6072659

 

The book gives wealthy information on what to look for, where to start, etc. Although the book is maily for autisum, it's believed that tic disorder falls into the same spectrum. I learned a lot from the book. Hope you'll find it helpful as well.

[KJS]

Kim,

Thank you for giving me a way to get started with the yeast issue. I will find and follow the thread, and search the net for candida.

 

and Spring,

Thanks for mentioning the book.

 

Karen

[kim]

http://www.greatplainslaboratory.com/confe...ce/Laidler.html Just thought someone else might be interested in reading this. It has alot of discussion about vaccinations, mercury etc, in regards to autism and autoimmune function.

[Andy]

I am going to make my son's third detox appointment this Monday for the month of April. I am concern for what I read this is suppose to be when the heavy metals really start coming out and of course my son is still in school so we are concerned about the short term effect there. Lucky I made sure I work where he attends so I could keep an eye out for him. As many of you know we are doing the DMPS IV with Glutathione and NAC. It is once a month and I was thinking about doing it only from 4 to 6 times on a regular basis and then maybe once or twice more to check the metal, etc levels. This is not the only treatment plan that we are on. We are still on the restrictive diet, the ton load of vitamin, mineral and amino acid, fish oil supplements as well as a gluthathione/NAC cream that is applied twice a day. My son was also suppose to take TTFD in capsule form but it taste horrible and can not be concealed in a shake and my son who is 6 will not swallow pills and we leave that at that. I did however saw that for a good price, the compounding pharmacies are expensive, that a TTFD cream can be ordered off the internet from a respectable firm called Ecological Formulas. I will inquire the doctor's office about that. My doctor also wants my son to take DMSA but one my son will not swallow pills, two my son' gut may not be able to handle the pills, and three so far we have been told that DMSA is cream form stinks big time. However, I did see a firm advertise that they have developed a DMSA cream that they claim does not smell. The firm states that they will present it at the next DAN conference so I will also ask my DAN doctor if he has any heads up on this as well. I discussed this with my wife and we both feel that that the IV's are the short term treatment and that the creams will be the long term treatment with the Glutathione most likely being the mainstream for the long run. If anyone can not find a DAN doctor where they live, e-mail me and perhaps I could e-mail them back a recommended one in their area.

[Andy]

This Thursday will be my son's third IV detox. We are also starting the DMSA, 3 days on 11 days off treatment next week. Good news is that my son got his stool test results and after 2 years of a special diet and probiotics, he was tested clean of yeast. I have not yet seen the report myself so it will be interesting to see all of the details this Thursday when I will pick up the hard copy myself. We are hoping that his majority of food allergies will be gone in a years time. An interesting note is that my son is starting to demonstrate that he could contain his tics for a period of time. I have seen him from going from ticing every 30 seconds to not ticing for a couple of hours, school show-cousins house, to ticing again afterwards. I would like to think that this is a sign of his condition lessening. Once again, I do not think that the detox is the complete answer, I do think that it is the needed third step of his treatment. The first two being the restricted diet and supplements.

[Spring]

Hi Andy,

 

Thanks for the sharing! This is such a good news to hear, and it's also very encourage to us. I wish you and your son the best on his 3rd IV treatment. God bless!

 

Jean

[Claire]

Andy,

 

I just want to caution you that stool tests for yeast are notorious for false negatives. Yeast clumps and they don't always get any in the part of the specimem they culture. We just had a stool and urine test done by the same lab at the same time and the urine was highly positve and the stool was still negative. This dual negative stool/positive urine has happened twice for us now.

 

If you doubt this, call the lab directly--they should speak with you (Great Plains will give you a telephone appointment for example).

 

Especially during any kind of chelation, the risk of yeast in the gut is real (though less for the method you are using. Yeast is key as you know, or mercury just moves from one area to another instead of leaving the body.

 

Doesn't mean this is the case for your child of course, just being cautious. You know this is a challenge for us, so hard not to extrapolate it to others.

 

For us, the low mercury in the blood, though a good sign of progress, didn't mean no more mercury in the body tissues after all (based on the recent hair result). Not that it mattered in that we are continuing with antioxidants anyway.

 

Claire

[Andy]

You right Claire, I was thinking about that as well and was planning on getting a urine test as a "second opinion". I do not believe that we can over test our kids only over medicate and over treat with alternatives as well.

 

Thanks Spring for your words. This is a long trip with alot of ups and downs and there may not be a final solution as of yet but there is progress that is making our kids lives easier for the long run.

[Andy]

Thursday's trip to Miami was cancelled. Son has been sick and has not recovered yet. Actually alot of his classmates are sick as well. It is part of being a child and living in an air condition environment

[Claire]

Here is a yahoo site called Autism Mercury, that someone on the enzyme board pointed me to. Apparently, somewhere there is another one where they try to interpret lab results!!

 

 

http://health.groups.yahoo.com/group/Autism-Mercury/

 

It says their purpose here (notice no mention of tic syndromes...

 

To discuss current issues related to the increasing incidence of autism the potential link between excessive mercury exposure via thimerosal in infant vaccines. Topics include: mercury detoxification ("chelation"), mercury-related issues/news, and vaccination-related issues/news. Most members are parents of children with autism, aspergers, ADD, ADHD, PDD, PDD-NOS, SID, oppositional defiance disorder, apraxia, speech disorders, and/or other related symptoms. There are many labels: you are welcome regardless of particular label(s). In addition to mercury, we also discuss other heavy metals (for example: arsenic, antimony, lead). Many parents here are in the process of chelation, with a child. This process is discussed in detail. Also welcome: mercury poisoned adults; other disorders/issues related to mercury poisoning; other biomedical treatments for ASD.

 

 

Claire

ps If you learn something informative, I hope you post the link back here! I will scan it too of course.

[Andy]

My son has had his third DMPS IV treatment. There was little after effect this time. We did not see the big outbreak of tics like last time. His treatment was delayed for he had a fever before hand. Funny thing was that his tics did not show at all during that time where they were pretty pronounced before the cold. Usually when he has a cold his tics are completely out of control. I do not know what to make of this. After reading the posting of Claires Generation Resue website, I feel reassured that we are doing the right thing for my son. We are also starting the DMSA this weekend. Between the both we hope to flush out his system of the metals. I hope it will not be to fast of a procedure but we were working on him for over 4 years in various ways. It is great to see that a path has been defined now for parents to follow and there seems to be more then one choice of path to take for treatments. I wished that it was that way for us 4 years ago but better now then never.

[kim]

Andy,

 

This board is full of good news today. I have prayed for your son and family, literally. SOOO glad to hear you are seeing improvements. The path you took has taken guts. I find just the research is nerve shattering. You are a wonderful father, and it's nice to find a man posting, trying to help others and being so involved in their sons healing.

 

Kim

 

BTW thank you to you and Chemar for the remarks about soy and Dr. Mercola, and getting me to look in that direction. I really think it has the potential to be key in improving my sons health/tics.

[Andy]

and thank you too Kim. We all learn from each other here as well as share.