philamom Posted November 8, 2010 Report Posted November 8, 2010 My daughter's llmd is recommending the addition of Minocin 50mg once daily. Does anyone have any experience with this antibiotic? Thx-
lyme_mom Posted November 8, 2010 Report Posted November 8, 2010 My daughter's llmd is recommending the addition of Minocin 50mg once daily. Does anyone have any experience with this antibiotic? Thx- I googled it and it is also called minocyclene. They often use minocyclene instead of doxycyclene when the person is going to be unable to stay out of the sun. It is less sun senstiive. However I tried it and it made me feel a little weird. My friend also tried it and felt crummy. We both felt better on doxy than minocyclene. Our llmd said that women do not seem to tolerate it as well as men do. Just something to keep in mind. Other options are doxy, doryx (slow release doxy). I am sure your llmd had a good reason for minocyclene. That was just our experience :-).
philamom Posted November 8, 2010 Author Report Posted November 8, 2010 My daughter's llmd is recommending the addition of Minocin 50mg once daily. Does anyone have any experience with this antibiotic? Thx- I googled it and it is also called minocyclene. They often use minocyclene instead of doxycyclene when the person is going to be unable to stay out of the sun. It is less sun senstiive. However I tried it and it made me feel a little weird. My friend also tried it and felt crummy. We both felt better on doxy than minocyclene. Our llmd said that women do not seem to tolerate it as well as men do. Just something to keep in mind. Other options are doxy, doryx (slow release doxy). I am sure your llmd had a good reason for minocyclene. That was just our experience :-). Thanks lyme mom, I will keep that in mind.
mandyknowles Posted November 11, 2010 Report Posted November 11, 2010 My daughter's llmd is recommending the addition of Minocin 50mg once daily. Does anyone have any experience with this antibiotic? Thx- I googled it and it is also called minocyclene. They often use minocyclene instead of doxycyclene when the person is going to be unable to stay out of the sun. It is less sun senstiive. However I tried it and it made me feel a little weird. My friend also tried it and felt crummy. We both felt better on doxy than minocyclene. Our llmd said that women do not seem to tolerate it as well as men do. Just something to keep in mind. Other options are doxy, doryx (slow release doxy). I am sure your llmd had a good reason for minocyclene. That was just our experience :-). Thanks lyme mom, I will keep that in mind. My daughter has been on minocycline for a while now...she is doing well on it, although he had to increase her amount because it seemed like she tapered off and we werent seeing anymore improvement. But now she is doing well
sf_mom Posted November 11, 2010 Report Posted November 11, 2010 Mandy, Is your daughter taking more than one antibiotic at a time? -Wendy My daughter has been on minocycline for a while now...she is doing well on it, although he had to increase her amount because it seemed like she tapered off and we werent seeing anymore improvement. But now she is doing well
philamom Posted November 11, 2010 Author Report Posted November 11, 2010 Mandy- did your dd have any herxing with it? how bad? Thx- melinda
mandyknowles Posted November 11, 2010 Report Posted November 11, 2010 Mandy- did your dd have any herxing with it? how bad? Thx- melinda um YES! She has like jerking episodes and it made her do it alot more frequent and severe, but they said that was good.
mandyknowles Posted November 11, 2010 Report Posted November 11, 2010 Wendy- Yea she has been on two antibiotics, sometimes 3 at a time. Right now she is on the minocycline 100mg and augmentin 875mg
sf_mom Posted November 12, 2010 Report Posted November 12, 2010 (edited) You know I forget who is on what these days 'brain fog' but it sounds like it is helping/herxing based on comments below!!!!!! -Wendy Edited November 12, 2010 by SF Mom
philamom Posted November 12, 2010 Author Report Posted November 12, 2010 Mandy- did your dd have any herxing with it? how bad? Thx- melinda Mandy, I'm sorry to hear that! How is she doing now? Melinda um YES! She has like jerking episodes and it made her do it alot more frequent and severe, but they said that was good.
mandyknowles Posted November 12, 2010 Report Posted November 12, 2010 Mandy- did your dd have any herxing with it? how bad? Thx- melinda Mandy, I'm sorry to hear that! How is she doing now? Melinda um YES! She has like jerking episodes and it made her do it alot more frequent and severe, but they said that was good. O!! She is doing tons better. She only stops breathing one time a day now...hopefully its almost gone...I just hope nothing else surfaces
philamom Posted November 12, 2010 Author Report Posted November 12, 2010 Mandy- SO glad to hear she's doing better! Is that what they mean by "air huger"? Scary!
mandyknowles Posted November 15, 2010 Report Posted November 15, 2010 Mandy- SO glad to hear she's doing better! Is that what they mean by "air huger"? Scary! Idk..What is air huger?
sf_mom Posted November 15, 2010 Report Posted November 15, 2010 Air hunger is needing to take a deep breath and not being able to get it a full breath and then repeats cycle. Just thinking about it makes me want to have a deep breath.
mandyknowles Posted November 15, 2010 Report Posted November 15, 2010 Air hunger is needing to take a deep breath and not being able to get it a full breath and then repeats cycle. Just thinking about it makes me want to have a deep breath. Well could that be what she has? I mean, she says she feels like she can't breath right before it happens.
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