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Posted

My daughter's llmd is recommending the addition of Minocin 50mg once daily. Does anyone have any experience with this antibiotic?

Thx-

I googled it and it is also called minocyclene. They often use minocyclene instead of doxycyclene when the person is going to be unable to stay out of the sun. It is less sun senstiive. However I tried it and it made me feel a little weird. My friend also tried it and felt crummy. We both felt better on doxy than minocyclene. Our llmd said that women do not seem to tolerate it as well as men do. Just something to keep in mind. Other options are doxy, doryx (slow release doxy). I am sure your llmd had a good reason for minocyclene. That was just our experience :-).

Posted

My daughter's llmd is recommending the addition of Minocin 50mg once daily. Does anyone have any experience with this antibiotic?

Thx-

I googled it and it is also called minocyclene. They often use minocyclene instead of doxycyclene when the person is going to be unable to stay out of the sun. It is less sun senstiive. However I tried it and it made me feel a little weird. My friend also tried it and felt crummy. We both felt better on doxy than minocyclene. Our llmd said that women do not seem to tolerate it as well as men do. Just something to keep in mind. Other options are doxy, doryx (slow release doxy). I am sure your llmd had a good reason for minocyclene. That was just our experience :-).

Thanks lyme mom, I will keep that in mind.

Posted

My daughter's llmd is recommending the addition of Minocin 50mg once daily. Does anyone have any experience with this antibiotic?

Thx-

I googled it and it is also called minocyclene. They often use minocyclene instead of doxycyclene when the person is going to be unable to stay out of the sun. It is less sun senstiive. However I tried it and it made me feel a little weird. My friend also tried it and felt crummy. We both felt better on doxy than minocyclene. Our llmd said that women do not seem to tolerate it as well as men do. Just something to keep in mind. Other options are doxy, doryx (slow release doxy). I am sure your llmd had a good reason for minocyclene. That was just our experience :-).

Thanks lyme mom, I will keep that in mind.

 

 

My daughter has been on minocycline for a while now...she is doing well on it, although he had to increase her amount because it seemed like she tapered off and we werent seeing anymore improvement. But now she is doing well

Posted

Mandy,

 

Is your daughter taking more than one antibiotic at a time?

 

-Wendy

 

 

 

 

My daughter has been on minocycline for a while now...she is doing well on it, although he had to increase her amount because it seemed like she tapered off and we werent seeing anymore improvement. But now she is doing well

Posted

Mandy- did your dd have any herxing with it? how bad? Thx- melinda

 

 

um YES! She has like jerking episodes and it made her do it alot more frequent and severe, but they said that was good.

Posted (edited)

You know I forget who is on what these days 'brain fog' but it sounds like it is helping/herxing based on comments below!!!!!!

 

-Wendy

Edited by SF Mom
Posted

Mandy- did your dd have any herxing with it? how bad? Thx- melinda

 

Mandy,

I'm sorry to hear that! How is she doing now?

Melinda

um YES! She has like jerking episodes and it made her do it alot more frequent and severe, but they said that was good.

Posted

Mandy- did your dd have any herxing with it? how bad? Thx- melinda

 

Mandy,

I'm sorry to hear that! How is she doing now?

Melinda

um YES! She has like jerking episodes and it made her do it alot more frequent and severe, but they said that was good.

 

O!! She is doing tons better. She only stops breathing one time a day now...hopefully its almost gone...I just hope nothing else surfaces :(

Posted

Air hunger is needing to take a deep breath and not being able to get it a full breath and then repeats cycle. Just thinking about it makes me want to have a deep breath.

Posted

Air hunger is needing to take a deep breath and not being able to get it a full breath and then repeats cycle. Just thinking about it makes me want to have a deep breath.

 

Well could that be what she has? I mean, she says she feels like she can't breath right before it happens.

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