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Posted

Hello.

 

I'm just trying to get my financial ducks in a row for more testing for dd and ds (and possibly me too).....

 

Does anyone know how much Igenex testing costs? I did mail the co but no repsonse so far.

 

We were thinking of doing the western blot IgG and IgM, co-infections (western) and possibly the PCR (sp?).

 

Thanks for any info

Posted (edited)

IGM Western Blot 100.00 (test #188)

IGG Western Blot 100.00 (test #189)

 

Complete Lyme Panel (Western blot IGM/IGG, PCR Serum & Whole blood) 475.00 *needs to be off antibiotics (I think)

 

Co-infections (Western) 660.00

Edited by philamom
Posted (edited)

I recommend starting with the Igenex basix WB.... $260.00. See if there is any indication of Lyme and if so then to head to a LLMD for further testing specific. i.e. co-infections (based on symptoms) etc.

 

-Wendy

Edited by SF Mom
Posted (edited)

Basic Lyme Panel is $260.00 (Western Blot Igm/Igg and Lyme IFA).

My daughter's llmd doesn't like the lyme IFA, so he recommends just the Western Blot IgM/IgG at $200.

Edited by philamom
Posted

If you email Igenex to request a test kit, their price list comes in the kit, with a list of all tests and costs. Also, though not advertised, if you test two family members at the same time, they give you a 15% discount (you need to indicate this when you submit)

 

While they do not accept insurance, they do send you a receipt and the paperwork you need to submit your own claim to your insurance company.

Posted

We did the #188 and #189 at our LLMD's request for $200. I was super lucky and was reimbursed $120 each by our insurance.

 

Based on our clinical evaluation, she felt we had very low possibility of co-infections. So I am glad to save that money up front for the co-infection test. We will see what treatment brings us on all that.

 

Good luck!

 

Susan

Posted (edited)

Hi Dut:

 

Just realized yesterday that the urine test my son is doing can give an indication of lyme and/or co-infections. The test we are doing is thru "Vitamin Diagnostics", 540 Bordentown Avenue, B6, Suite 4930, South Amboy, NJ 08879. I believe the cost is $100-150. The name of the test is "Kryptopyrrol Random Urine." Dr. Klinghardt's protocol is 5 days with no vitamins/minerals prior to test and a 24-hour collection (yuk). Let me know if you need add'l info. Have not been on top of this due to another family crisis occurring. Found this on the web-have the entire article saved but not the website. Let me know if you want me to e-mail you the entire article.

 

"Our ability to measure CD-57 represents a breakthrough in LB diagnosis and treatment. Chronic LB infections are known to suppress the immune system and decrease the quantity of the CD-57 subset of natural killer cells. As in HIV infection, where abnormally low T-cell counts are routinely used as a marker of how active that infection is, in LB we can use the degree of decrease of the CD-57 count to indicate how active the Lyme infection is and whether, after treatment ends, a relapse is likely to occur. It can even be used as a simple inexpensive screening test, because at this point we believe that only Borrelia (Lyme bacteria) will depress the CD-57. Thus a sick patient with a high CD-57 is probably ill with something other than Lyme, such as co-infections.

 

Really high numbers can indicate other co-infections. Range 60-360 with normal being 200. Best wishes.

Edited by JuliaFaith
Posted

Thanks for the responses, everyone. We are going to go with 5010, the initial panel that does IgG, IgM and pcr. We've been off abx for a while now, so this is a good time.

 

Juliafaith - how did the time release melatonin spray work out? Ds is doing really well at night until about 2-3 ish and then it's many wakes until morning. Where did you get the spray from.. I might give it a try. And are you seing any changes yet in your son or is it too early into tx?

 

thanks again everyone...

Posted

Juliafaith - how did the time release melatonin spray work out? Ds is doing really well at night until about 2-3 ish and then it's many wakes until morning. Where did you get the spray from.. I might give it a try. And are you seing any changes yet in your son or is it too early into tx?

 

thanks again everyone...

The ND recommended 5mg of Melantonin before bed but we do about 4.5 mg (and we worked up this slowly). He is sleeping very well and even sleeping in sometimes which is really unusual. We got it at "Whole Foods", Brand: Source Naturals-NutraSpray Melatonin-timed release sublingual-orange flavor. We do 3 sprays under the tongue right when time to go to sleep.

 

As for all the other supplements, he had to be off of them for 5 days to do the Urine test that I mentioned above, so not anything noticable except a bit more relaxed and sleepy during the day. Not sure if that is the Ketotifen... Today, a therapist recommended L-Theanin for anxiety (supplement) so will ask the ND about it next visit. The 2 supplements for lyme treatment are not even available in their dispensary yet (almost 1 1/2 weeks!) so not very happy about that part.

 

Will keep you posted. Glad to hear that you are still checking out the lyme. It is really our last resort before doing IVIG.

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