peglem Posted October 26, 2010 Author Report Posted October 26, 2010 So, got a call from her ped. Her immunologist (the one who orders her IVIG) agreed that behavior can be used as an indicator of treatment success, and has agreed to sign off on the rifampin treatment. WOOOHOOOO!!! I told her ped that I sure hope he doesn't get any grief over this and he replied that at the end of the day the only one he really has to answer to is God. I pray that he will be blessed for doing the right thing and that he'll not suffer any repercussions for it.
philamom Posted October 26, 2010 Report Posted October 26, 2010 I'm sure he feels blessed when your daughter is not suffering as much-- Way to Go!!!
Megs_Mom Posted October 27, 2010 Report Posted October 27, 2010 So, got a call from her ped. Her immunologist (the one who orders her IVIG) agreed that behavior can be used as an indicator of treatment success, and has agreed to sign off on the rifampin treatment. WOOOHOOOO!!! I told her ped that I sure hope he doesn't get any grief over this and he replied that at the end of the day the only one he really has to answer to is God. I pray that he will be blessed for doing the right thing and that he'll not suffer any repercussions for it. I LOVE your ped!!!! Congrats super mom. Hope u see great results soon!
PhillyPA Posted October 27, 2010 Report Posted October 27, 2010 Your pediatrician is awesome! What a great doctor and support for you.
peglem Posted October 27, 2010 Author Report Posted October 27, 2010 The immunologist has really come around as well. 3 years ago, he was not very cooperative and not terribly interested. He's come a long way, baby!
kimballot Posted October 27, 2010 Report Posted October 27, 2010 Peg - You are amazing and so are your docs!!! Congrats!
matis_mom Posted October 27, 2010 Report Posted October 27, 2010 So, got a call from her ped. Her immunologist (the one who orders her IVIG) agreed that behavior can be used as an indicator of treatment success, and has agreed to sign off on the rifampin treatment. WOOOHOOOO!!! I told her ped that I sure hope he doesn't get any grief over this and he replied that at the end of the day the only one he really has to answer to is God. I pray that he will be blessed for doing the right thing and that he'll not suffer any repercussions for it. Oh so happy for you and your daughter! Please keep us posted on her progress. On another tangent and I don't even know why this thought came into my mind right now... how is the kitchen reno going? You didn't unearth any mold by any chance, right? I've just been running into that word a lot lately it seems, and it can cause all sorts of trouble. Anyway, good to hear your daughter will get the treatment she needs!
peglem Posted October 27, 2010 Author Report Posted October 27, 2010 So, got a call from her ped. Her immunologist (the one who orders her IVIG) agreed that behavior can be used as an indicator of treatment success, and has agreed to sign off on the rifampin treatment. WOOOHOOOO!!! I told her ped that I sure hope he doesn't get any grief over this and he replied that at the end of the day the only one he really has to answer to is God. I pray that he will be blessed for doing the right thing and that he'll not suffer any repercussions for it. Oh so happy for you and your daughter! Please keep us posted on her progress. On another tangent and I don't even know why this thought came into my mind right now... how is the kitchen reno going? You didn't unearth any mold by any chance, right? I've just been running into that word a lot lately it seems, and it can cause all sorts of trouble. Anyway, good to hear your daughter will get the treatment she needs! Its going well- but we're still living in our living room. Cabinets are in, countertops being installed right now. No mold! Ceiling had to be redone (old drop ceiling) and we move a wall- this is major and taking a long time. It will be beautiful, though. Allie does not seem at all interested in the changes. I wonder, though, if retreating into lid obsession, is her way of avoiding dealing with the change.
peglem Posted October 27, 2010 Author Report Posted October 27, 2010 (edited) Maybe its too soon to tell- but I started the rifampin yesterday, and this morning, for the first time in 2 weeks she got on the bus to go to school. She's been refusing and then I have to drive her to school instead. This is exciting! She didn't hit anybody this morning, either! Edited October 27, 2010 by peglem
matis_mom Posted October 28, 2010 Report Posted October 28, 2010 Maybe its too soon to tell- but I started the rifampin yesterday, and this morning, for the first time in 2 weeks she got on the bus to go to school. She's been refusing and then I have to drive her to school instead. This is exciting! She didn't hit anybody this morning, either! Awesome news!!! Do keep a journal to show those other docs who were giving your pediatrician a hard time.
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