Renee Posted January 25, 2005 Report Posted January 25, 2005 Hi everyone, First let me say to Claire- I am so very sorry to hear about your son's illness. We all know that there is nothing more important in life than our child's well being. I will certainly be sending positve and healing thoughts for your son and your family. Now, I was just wondering if anyone else here saw this article "The Tiics of Tourette's Often Go Undiagnosed" by Jane E. Brody, New York Times on 01/18/05. I found it quite disturbing and have been meaning to bring it up here. I was on family vaca for 3 wks prior and so have been so overwhelmed catching up with work that this is the first opportunity to post. What I found disturbing was the lack of support stated in the next to last paragraph. "Dr. Zinner, however, cautioned against a common tendency for families to use a variety of alternative remedies and dietary restrictions, since none have proved useful." Wow! That was very upsetting to me as the article does mention using botox, Tenex, Haldol, and Klonopin - stating that there are side effects so Dr Zinner urges the use of the lowest dosages and goes on to state that due to waxing and waning - many months of "therapy" may be needed to determine their effectiveness. Obviously, Jane E. Brody hasn't been on this site where so many of us have "only" found help thru alternative and dietary restrictions and the medications they support we have all found the most unuseful! It is very dissappointing to see a newspaper of that status and read by so many people covering only the obvious easy find "tsa-usa.org & tourette-ca, and not doing just a little more research - as we all here have - to find real help. Thanks all for listening. Renee
Guest Guest_mmazz Posted January 25, 2005 Report Posted January 25, 2005 Renee, That is becuase the big companys like J&J, Merck, etc spend some 840,000,000 dollars to get one drug approved and they must sell them in massive quantities so they can make hugh money, so they can pay the FDA to classify everything as a disease so alternative medicine can not legally make claim that they can cure and prevent and treat symptom like are families experience. Case and point obesity is now a disease. Ditto on the anger!!! Claire; I hope all is well with your child and prayers are being said for you and him. Take a deep breath and feel our hugs! Marie
Ronnas Posted January 26, 2005 Report Posted January 26, 2005 We had a long discussion about this article on braintalk. http://brain.hastypastry.net/forums/showth...83&pafe=1&pp=10
Renee Posted January 26, 2005 Author Report Posted January 26, 2005 Thanks for the link Ronnas! I really enjoyed reading everyones take on it there. Renee
Frank_Sm1th Posted January 26, 2005 Report Posted January 26, 2005 Jane Brody wrote The New York Times Guide to Personal Health which I threw out a few years ago, not wanting anyone to rely on anything so useless. That book NEVER had ANYTHING I EVER tried to look up in it! EVER! Now I see she's written The New York Times Book of Alternative Medicine and I'm extremely skeptical whether that amounts to anything, either. I'm not so impressed by the Times' "stature" and can't imagine them being beyond the influence of the drug industry. Frank
Andy Posted January 27, 2005 Report Posted January 27, 2005 As far as I am concerned the New York Times lost their nobility in reporting in the late 1980's. Not objective, just slanted.
susan0101 Posted January 28, 2005 Report Posted January 28, 2005 They'd also like us to believe the hormones and preservatives in the food we eat aren't adversely effecting us. Let's follow our gut feelings.
Chemar Posted January 29, 2005 Report Posted January 29, 2005 Let's follow our gut feelings. AGREED! ummmmm as long as our gut isnt feeling leaky or yeasty
Guest Guest Posted January 29, 2005 Report Posted January 29, 2005 I think the Internet has been a great resource in helping public awareness. Eventually manufacturers will have to change their practices or lose business.
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