texascatholic Posted October 19, 2010 Report Posted October 19, 2010 Hi There... We are thinking of investigating the possibility of Lymes with my PITANDS daughter. I am hearing so much about the IGENEX test and wondering if I can order it on my own or have to do it through a doctor? I'm not sure there are any LLMDs in my area (San Antonio). Also, wondering what to order from them and the cost. Thanks in advance! God bless, Holly
PacificMama Posted October 19, 2010 Report Posted October 19, 2010 Hi Holly, Igenex is the name of the lab in Palo Alto California. They are a tick borne disease specialty testing lab. They run many of the same lyme tests as other labs, but they are more extensive and more sensitive so you get better testing. They also run some tests that other labs don't. You'll need a doctor's signature for the test. You can call Igenex and have them send you the kit, and they will give you a recommendation for tests based on your situation, and your region. But the most basic western blot lyme panel is $260 (i think). It's a good place to start. http://igenex.com/Website/ Maybe unkonow to you, but Texas is thick with ticks and tick borne diseases. You can contact Texas Lyme Disease ASsociation, and they may be of help. But as Emerson has found out, getting treatment in Texas is difficult. However, there are some great lyme docs in nearby states. It's always worth traveling to get knowledgeable treatment! http://www.txlda.org/ Mary On 10/19/2010 at 1:41 PM, texascatholic said: Hi There... We are thinking of investigating the possibility of Lymes with my PITANDS daughter. I am hearing so much about the IGENEX test and wondering if I can order it on my own or have to do it through a doctor? I'm not sure there are any LLMDs in my area (San Antonio). Also, wondering what to order from them and the cost. Thanks in advance! God bless, Holly
philamom Posted October 19, 2010 Report Posted October 19, 2010 On 10/19/2010 at 1:41 PM, texascatholic said: Hi There... We are thinking of investigating the possibility of Lymes with my PITANDS daughter. I am hearing so much about the IGENEX test and wondering if I can order it on my own or have to do it through a doctor? I'm not sure there are any LLMDs in my area (San Antonio). Also, wondering what to order from them and the cost. Thanks in advance! God bless, Holly If she is on abxs, I recommend running the Western Blot IgM & IgG (test 188/189) at $200. If she is not on any antibiotics, then I would suggest the Complete Lyme Panel at $475. You might consider running the complete co-infection panel as well. You need to call Igenex and have the kit/order form shipped to you. Then have a doctor (any dr.) sign the form. You can also download the form off their website.
texascatholic Posted October 19, 2010 Author Report Posted October 19, 2010 Thanks for the replies... A quick question...she was on Azithromax for nearly a month (symptoms worsened) and is now on Omnicef (nearly a month - at first symptoms got better, but she is not doing as well now). If I take her off the antibiotics, can she have the complete Lymes panel? How long is it best to be off of antibiotics before taking these tests? Thanks, Holly
PacificMama Posted October 19, 2010 Report Posted October 19, 2010 Hi Holly, I personally always tell people to call and ask Igenex, as I never want to accidentally give misinformation on this question (it's asked a lot!). The azith could have been a herx. Sorry to hear she's not doing well now. If it turns out that she does have lyme, a llmd would get her on the correct combo of abx, and children do come along quicker than you would think. It's often immediate rapid improvement, and a slow climb after that. Looks like you are in central texas, which I know has lots of ticks. Mary On 10/19/2010 at 2:46 PM, texascatholic said: Thanks for the replies... A quick question...she was on Azithromax for nearly a month (symptoms worsened) and is now on Omnicef (nearly a month - at first symptoms got better, but she is not doing as well now). If I take her off the antibiotics, can she have the complete Lymes panel? How long is it best to be off of antibiotics before taking these tests? Thanks, Holly
sf_mom Posted October 19, 2010 Report Posted October 19, 2010 I agree with Pacific Mom..... that your daughter might have herx'd from the Azithromycin (worse before better concept). Keep us posted on what you find out.
texascatholic Posted October 20, 2010 Author Report Posted October 20, 2010 Thanks everyone! My dh is calling Igenex today.
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