Fear of Choking continued

[Megs_Mom]

We use Dr. Branner in Charlotte NC (don't have his info handy, let me know if you need it). He understands what PANDAS is, but are not "pandas docs" - they are GI specialists and will deal with that portion of the issue. We used Branner for our initial endoscope & he is great too - just less of a network of specialists who understand our daughter's care. Sounds like you might need a good network.

 

Our daughter's issues were very similar, and much of the choking feeling was acid reflux triggered by whatever causes the PANDAS. Her's was so severe that she developed 5 ulcers at only 7 years old. We use Prevacid and it has worked wonders on the GI side of things, which I think can be very important in treating the overall disease. We did Celiac testing and then an Endoscope. She did not have damaged villi, thus no Celiac - but did have Ulcers.

 

Good luck with all this - you are clearly touching all bases, and you will find answers. So sorry you are both going through this.

Edited January 25, 2011 by Meg's Mom

[bubblegum]

Megs mom,thank you!!!!!I will call in the morning.Her site says she is open on Sundays.If she could see us right away it would be great.Does anyone have a ENT that also could help us?DD is supposed to be taking Mepron for the babesia but currently not taking it.(She likes it mixed in vanilla pudding)She is on the Azith 250 mg and the Clinda is 300 mg for the lyme.Dr.Beals was concerned regarding yeast so he added the Flagyl.Then next week she should not take it and take Diflucon every day,Monday to Friday,off the weekend and then back to the flagyl.She will say something smells good but still will not eat it.She will ask us to "save"something,say a choc chip cookie for example,"When I feel better"She has c/o when she was eating of things not tasting right.She had taken Augmentin since last November at a high dose until August.Maybe there are ulcers or something going on,when she was in the hospital it was just a pediatric unit.We went to a hospital near us because she was getting dehydrated.We thought they would help her.They just wanted to do a psych consult because of the ocd.We think we are trying to make her better but we have made her worse.She is better in some ways.We also thought that further out from the IVIG maybe things would settle down and she would be better.Thank you,Steph

[philamom]

There is a great GI doctor who knows a lot about lyme. He is located in North New Jersey. I will pm his info. You might want to at least read the artices he published.