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  1. Has anyone ever been to Dr.Jyonouchi? Please pm me,I have a friend with 2 children that have Pans and need someone in their area.
  2. Schizophr Res. 2011 May 4. [Epub ahead of print] Artemisinin reduces the level of antibodies to gliadin in schizophrenia. Dickerson F, Stallings C, Vaughan C, Origoni A, Goga J, Khushalani S, Yolken R. Source Sheppard Pratt, 6501 North Charles St., Baltimore, MD 21204, United States. Abstract OBJECTIVE: To investigate if adjunctive artemisinin, an anti-malarial compound with in vivo activity against Toxoplasma gondii, reduces symptoms or antibodies in schizophrenia. METHOD: N=66 outpatients with schizophrenia were randomized to receive 100mg of artemisinin twice a day or placebo for 10weeks after a 2week placebo run-in in addition to their usual psychiatric medications. Symptoms were assessed biweekly. Antibodies to toxoplasma and to gliadin, a food antigen, were assessed at the beginning and end of the trial. RESULTS: A total of 57 participants (26 in the artemisinin arm and 31 in the placebo arm) completed the 12weeks of the trial. The medication was well tolerated and there were no significant side effects associated with the treatment regimen. There was no significant difference in the change of positive, negative, general, or total PANSS symptoms between groups for all of the randomized patients or for just the completers. However, individuals in the artemisinin arm but not in the placebo arm had significant decreases in the levels of antibodies to gliadin (p<.0005, p>.2, respectively by paired t-test). Neither group had significant changes in antibodies to T. gondii. CONCLUSIONS: The study did not demonstrate clinical benefit of adjunctive artemisinin for schizophrenia symptoms. The finding of reduced levels of antibodies to gliadin in the artemisinin group merits further study. Copyright © 2011. Published by Elsevier B.V. PMID: 21546216 [PubMed - as supplied by publisher]
  3. DC mom is your inbox full?Could you pm me,thanks.
  4. Please pm me if you have seen her,thanks
  5. Please pm me if you have seen her,thanks!
  6. We have to take dd7 to hospital.We can't get TPN until next week even though I have been trying to get it this week.Only urinated once since yesterday.Where do we go???PA,NJ,D/C,MD???????
  7. We were hoping to get TPN (Total parental nutrition)started and we can give that thru her IV line.But we don't have it yet and I don't know when we will get it.Maybe Monday?I am thinking we will have to take dd to the hospital again and I hope that someone will have a hospital that has helped.My daughter had her central line put in at GBMC.We live in Pa but I work in MD.I am going to call the GI doctor that Meg recommended but I also think we need to think about a hospital.Steph
  8. I'm so sorry for your son.Our dd7 is afraid that her toys will come out at night and "get her"We offered to take toys out of her room but she didn't want to do that.Most of her toys are downstairs anyway.She knows that they really won't get her but she still has that anxiety.We never knew until she told us a few months ago.It makes me so sad to read another childs story because kids should not have to deal with this.We leave our bathroom light on during the night in our hall so our daughters room is not dark.Sometimes she will wet the bed because she is afraid to get up and other times she wets the bed and then gets into bed with us,she also will sometimes wake up yelling for us.Right now she is sleeping in our bed.Thank God we have a King size bed.I hope that you can make your son better,take care.
  9. Megs mom,thank you!!!!!I will call in the morning.Her site says she is open on Sundays.If she could see us right away it would be great.Does anyone have a ENT that also could help us?DD is supposed to be taking Mepron for the babesia but currently not taking it.(She likes it mixed in vanilla pudding)She is on the Azith 250 mg and the Clinda is 300 mg for the lyme.Dr.Beals was concerned regarding yeast so he added the Flagyl.Then next week she should not take it and take Diflucon every day,Monday to Friday,off the weekend and then back to the flagyl.She will say something smells good but still will not eat it.She will ask us to "save"something,say a choc chip cookie for example,"When I feel better"She has c/o when she was eating of things not tasting right.She had taken Augmentin since last November at a high dose until August.Maybe there are ulcers or something going on,when she was in the hospital it was just a pediatric unit.We went to a hospital near us because she was getting dehydrated.We thought they would help her.They just wanted to do a psych consult because of the ocd.We think we are trying to make her better but we have made her worse.She is better in some ways.We also thought that further out from the IVIG maybe things would settle down and she would be better.Thank you,Steph
  10. Hi Buster,the IVIG #3 was 1.5gm/kg.(Sorry typo)I haven't had much sleep lately.It was done the 2 nd week of August.Sept 2 until 9th she was in the hospital.The ped in the hospital refused to do a ENT consult even though she c/o severe sore throat and was red on one side.Also uvula was long and probably swollen.She has a central line in and is getting IV fluids,Azith on Mon,Wed,Fri and Clinda Tue and Thur.Also this week had a few doses of Flagyl.I have asked about prevacid IV but the doc wanted to hold off.(In August when this started she c/o abd pain and sore throat)If anyone reading this has a good ENT or GI doc we will go.We saw a ENT months ago but he didn't even do a culture even though she c/o a scratchy throat.It is frustrating dragging her to a doctor and then just being blown off.She has not taken the zoloft yet.She can swallow-had a few sips of oj this am.(Only thing that she will drink)I don't know if it is all OCD related or if there is also a medical issue.Her aso and anti d nase b was always low.But was higher in the hospital ,so it could have been rising or falling.(The one doc in the ED wouldn't even check it)If I could order the d---stuff myself I would!The one doc did not call me back today and I have called several times.I will ask again about the prevacid.I think you are right. IV antibiotics has been for 2 weeks.She is having a small bm.Dr.Jones said it can take months to treat babesia and we have not had it re-checked.It was done not long ago.She had a tick bite 2 years ago so brewing.She had a bite or two of jello today but that is all.Prior to August she had no problems eating.She c/o mucous and her throat being scratchy.This has been on going.Sometimes the ocd changes and we hope that we can get this turned around.I told Dr.Bransfield about Wendy mentioning that Benadryl is helpful with lyme because of issues with histamines.He was going to order Benadryl or Vistaril IV.I don't know when we will get it.We tried Ativan cream (topical)but no effect.We do see a difference being on antibiotics-ocd s/s and anger decreased.Thanks,Steph
  11. I wish that it would work but it doesn't.We have the OCD workbook for kids and how to boss back the ocd but it doesn't help.I did talk to Dr.Bransfield and he said that sometimes with lyme there is a nerve involved and that causes the choking issues.I hope that is not the case!He had one girl and she had to have a J tube(feeding tube you put in the abdomen.)I did talk to him about IV meds and he will order Benadryl or Vistaril.I hope we can get it soon.Thanks for info,Steph(I am thanking God that we have the IV line in!)
  12. Oh,I did get a appt for my poor husband on Tuesday.He is not the type to go to a doc so I hope he can figure out his rash issue.Steph
  13. Thank you,I called and left messages for Dr.Bransfield and Dr.Beals.I asked both about the Benadryl.I haven't heard back yet.I think it is more the fear of choking and still complaining of her throat being scratchy.Are we still making her herx?By giving antibiotics?We don't give any Sat or Sun.She didn't have any Tue because we were in the car to doc appt.we only gave her fluids when we came home to help keep her from getting dehydrated.She has lost 3 pounds in the past week.Her weight was always normal but then gained because of the Orapred.(She was on it for a few months 15 mg a day ordered by Dr.B)But we weaned her off in June.I wish there was someone that could look at the whole picture and tell you what to do and that it would be successful.(I remember when I first started to read this forum )that was last September and I read about other kids,I was thankful that she did not have some of the symptoms that I read about,and I told my husband,Those poor kids and parents.But as time went on we thought we were making her better but things got worse.I hope that at least we are killing off some bacteria,virus or whatever.I will keep you posted!Steph
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