Somewhere some lucky guy is having a heart attack!

[Worried_Dad]

Worried Dad-- I have not read the "Asleep" book but when the author was interviewed on NPR I called in and chatted with her re: our Pandas experience...

 

She had heard of Pandas and mentioned that the historical records of those with encephalitis had noted that in children OCD was a symptom...

 

Imagine the number of children that have been affected over time, with no one recognizing it--It is a tragedy.

 

Sigh... yeah, tragedy is the right word. Hopefully, the tide is turning.

 

Kind of stressed today: our local docs are running out of patience with the long-term augmentin XR and want to discontinue, right as we're heading into peak strep season, our son's back at public school (after 3-year absence), and every other member of our family has unexplained elevated ASO. I just don't understand how the medical mind works, I guess.

[EAMom]

 

PS - buster you wrote- "this seemed to be non-self-limiting and would go on for years if not treated." what treatment are you talking about? medical intervention or traditional CBT stuff?

 

In the paper, these were folks who had SC between 1929-1941 (the paper was written in 1965). I'm assuming Buster was talking about medical intervention. Did they routinely use pen. on SC cases back in those days? (Buster, I didn't see where they talked about how these folks' SC were treated, it they did). Augmentin wasn't available until 1981, Azith, and IVIG even later than that (I believe).

[Megs_Mom]

Worried Dad-- I have not read the "Asleep" book but when the author was interviewed on NPR I called in and chatted with her re: our Pandas experience...

 

She had heard of Pandas and mentioned that the historical records of those with encephalitis had noted that in children OCD was a symptom...

 

Imagine the number of children that have been affected over time, with no one recognizing it--It is a tragedy.

 

Sigh... yeah, tragedy is the right word. Hopefully, the tide is turning.

 

Kind of stressed today: our local docs are running out of patience with the long-term augmentin XR and want to discontinue, right as we're heading into peak strep season, our son's back at public school (after 3-year absence), and every other member of our family has unexplained elevated ASO. I just don't understand how the medical mind works, I guess.

 

Dear God. That is my biggest fear as well. I hope you have someone else to prescribe. I don't understand the medical mind as well - given your families situation, that would be insane. I'd ask for a script through March, and then look for a back up doc between now and then. Hope this does not happen.

[norcalmom]

Im freaked out by this post - and have been reading all the stuff that says the OCD persists, while the chorea stops.

 

http://intramural.nimh.nih.gov/pdn/pubs/pub-14.pdf

Is just one of the many references to this, although, most studies state that is hasn't been studied enough.

 

An on the pet -peeve of this - even wikipedia says that syndenham chorea is self limiting, but it also says that a high percentage of SC patients have OCD...as if it is a totally separte thing! 70% is pretty high to me. Almost all the neuorlogy type papers describe only the chorea part of the disease -and that is goes away.

Also interesting to note - most say SC effects females 2:1, where pandas and tourettes predom. male. Weird. also read that likely to resurface during preganacy, and saw some references to birth control pills creating episodes.

 

 

http://www.labmeeting.com/paper/22864894/asbahr-1999-case-series-increased-vulnerability-to-obsessive-compulsive-symptoms-with-repeated-episodes-of-sydenham-chorea

http://ajp.psychiatryonline.org/cgi/content/abstract/146/2/246

http://ajp.psychiatryonline.org/cgi/content/abstract/155/8/1122

 

there are more. sorry.. abstracts (no access/or time to search for free real articles), but they all seem to be similar.