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Just got EOB for IVIG + update on DS7

saidie10

By saidie10
in PANS / PANDAS (Lyme included)

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saidie10 Proficient

saidie10

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Been MIA for a while so I am trying to get caught up with everyone! Lots of stuff going on with the boys, work, school....etc. You guys all know!!

 

First the good news! We are about 4.5 weeks post IVIG and DS7 is doing really well! We are seeing no movements whatsoever and his bathroom OCD seems to be gone. The most exciting thing is we are seeing fewer and fewer rages, and having periods of days with nothing, just my calm sweet boy! Also, he is back to breezing through his math homework and classwork, we are seeing some improvements in his handwriting, and his reading comprehension is coming back up to speed. For the first time ever my son drew what looked somewhat like a person as opposed to a stick figure!! I almost cried when he showed me what he called his "new way of drawing people." We are so thankful right now for the good blessings we are seeing! A week and a half ago, a little girl in his class tested positive for strep and it appeared to have no effect on him! This was a little girl he likes to spend time with and who sits near him in class. So, of course we are very optimistic!!!

 

On another note, we got our BCBS of TX EOB for the IVIG. $25,000. Wow was about all we could say. The meds alone were $11,000 per day. Thank you lord for the small blessing of this being covered (as it should be for every child who needs it!!!)

 

Hope everyone is doing well!!!

matis_mom Mentor

matis_mom

Posted
Posted

Been MIA for a while so I am trying to get caught up with everyone! Lots of stuff going on with the boys, work, school....etc. You guys all know!!

 

First the good news! We are about 4.5 weeks post IVIG and DS7 is doing really well! We are seeing no movements whatsoever and his bathroom OCD seems to be gone. The most exciting thing is we are seeing fewer and fewer rages, and having periods of days with nothing, just my calm sweet boy! Also, he is back to breezing through his math homework and classwork, we are seeing some improvements in his handwriting, and his reading comprehension is coming back up to speed. For the first time ever my son drew what looked somewhat like a person as opposed to a stick figure!! I almost cried when he showed me what he called his "new way of drawing people." We are so thankful right now for the good blessings we are seeing! A week and a half ago, a little girl in his class tested positive for strep and it appeared to have no effect on him! This was a little girl he likes to spend time with and who sits near him in class. So, of course we are very optimistic!!!

 

On another note, we got our BCBS of TX EOB for the IVIG. $25,000. Wow was about all we could say. The meds alone were $11,000 per day. Thank you lord for the small blessing of this being covered (as it should be for every child who needs it!!!)

 

Hope everyone is doing well!!!

Very, very happy for you and praying things keep improving and stay that way!

KaraM Experienced

KaraM

Posted
Posted

I don't think COW is the right word....:blink: $25,000?!?!?!?!?!?

 

Awesome news about your son, though. :lol: Congratultions to all of you.Worth every penny and more in that regard. To quote AmEx....Priceless.

Tamistwins Rising Star

Tamistwins

Posted
Posted

Been MIA for a while so I am trying to get caught up with everyone! Lots of stuff going on with the boys, work, school....etc. You guys all know!!

 

First the good news! We are about 4.5 weeks post IVIG and DS7 is doing really well! We are seeing no movements whatsoever and his bathroom OCD seems to be gone. The most exciting thing is we are seeing fewer and fewer rages, and having periods of days with nothing, just my calm sweet boy! Also, he is back to breezing through his math homework and classwork, we are seeing some improvements in his handwriting, and his reading comprehension is coming back up to speed. For the first time ever my son drew what looked somewhat like a person as opposed to a stick figure!! I almost cried when he showed me what he called his "new way of drawing people." We are so thankful right now for the good blessings we are seeing! A week and a half ago, a little girl in his class tested positive for strep and it appeared to have no effect on him! This was a little girl he likes to spend time with and who sits near him in class. So, of course we are very optimistic!!!

 

On another note, we got our BCBS of TX EOB for the IVIG. $25,000. Wow was about all we could say. The meds alone were $11,000 per day. Thank you lord for the small blessing of this being covered (as it should be for every child who needs it!!!)

 

Hope everyone is doing well!!!

I'm so happy for you and your family. I am still fighting with bcbs of NJ and praying that they will cover the IVIG for my children.

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