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Posted

Hello all. I found this forum by accident while doing a google search and it caught my attention. I've had a problem with random muscular twitches as I call them for around 10 months now. I was diagnosed by a neurologist as having something called Benign Fasculation Syndrome (BFS). I'm wondering if these 'tics' you are all describing are the same as my twitches. I have to say when I first started experiencing them I didn't really know what to call them. Basically every few minutes or sometimes seconds, a random muscle in my body will contract for a split second. Its usually not enough for anyone watching me would take notice of. Is this what you all mean by 'tics'? In the 10 months that I've been having the problem, I found that certain foods made the twitching worse. Gluten was my worst offender. It not only makes me twitch much more dramatically and with greater frequency, but it also caused me to have elevated anxiety. Dairy, soy and caffiene were other things that I found I need to avoid.

 

Despite my avoiding foods I have found I have a sensitivity to, I still twitch though. I believe the food sensitivities were brought about by having too much candida in my system which caused me to develop 'Leaky Gut Syndrome'. Anyway, I've been on a strict detoxification diet for almost 4 months now and I've even been going to a homeopath who has been treating my individual food sensitivities through a technique called NAET. The twitching remains however. I'm much much better than I was when I didn't know to avoid certain foods, but as I'm making headway in my treatment, I was hoping to see the twitching go away. So far it isn't. I'm going to stick with it and remain hopeful, but I'm also on a constant quest for more information. This forum looks like a good source for more info, especially if you are having the same symptoms as me, the tics. I'm looking forward to hearing what you have to say. Thank you in advance.

Posted

Hi and welcome

 

we discuss many different kinds of tics here, from those associated with Tourette Syndrome (motor and vocal tics) to mild transient tic disorders

 

so there may be differences in how these tics manifest, just as there are differences in what triggers them

 

from my understanding, BFS manifest somewhat differently than tics as it involves muscle contraction/relaxation rather than actual movements or sounds

 

however, you will find a lot of info here on diet and other things to help improve overall health and reduce tics

Posted

Oh it definitely results in jerks and motion. However minor they may be, they still scare the crap out of me. I don't recall ever having it manifest itself in vocal form, thank God. Thanks for the welcoming response. I'm looking forward to utilizing the info this forum and its members have to offer!

Posted

Oh it definitely results in jerks and motion. However minor they may be, they still scare the crap out of me. I don't recall ever having it manifest itself in vocal form, thank God. Thanks for the welcoming response. I'm looking forward to utilizing the info this forum and its members have to offer!

 

 

Hi,

I am a newbie to this forum as well. Been browsing through it for about a month now. Finding it extremely helpful. Reading your story reminds me of my own. I began to have muscle twitches, similar (almost exactly) to what you describe about 4 years ago. I was 35 years old at the time and perfectly healthy. I noticed an inadvertant musle twitch (and some numbness and tingling). It could have been my thigh muscle, a muscle in my face, any muscle in my arm, or even my abdomen muscles. Didn't seem to have any centralized location, it just twitched once, maybe twice, then stop. Things got worse with my health---including being diagnosed with high antibodies to gluten--I'm wheat free too. After a long time trying to figure out what was causing my neurological defeciences I discovered toxic mold in my home. Since then I realized that is what was my "trigger". Whenever I am around mold my symptoms come back. If I stay away from it, I'm better. Oh yeah, and my husband (who was perfectly healthy up to about a couple of years ago) also experiences this muscle twitching and jerkiness for the first time at age 40. This may or may not be your trigger, but I wanted to share in the off chance there may be a relation. To come down with this neurological illness at 35 years old scared the crap out me as well. I hope you find some answers.

Posted

Hi,

I am a newbie to this forum as well. Been browsing through it for about a month now. Finding it extremely helpful. Reading your story reminds me of my own. I began to have muscle twitches, similar (almost exactly) to what you describe about 4 years ago. I was 35 years old at the time and perfectly healthy. I noticed an inadvertant musle twitch (and some numbness and tingling). It could have been my thigh muscle, a muscle in my face, any muscle in my arm, or even my abdomen muscles. Didn't seem to have any centralized location, it just twitched once, maybe twice, then stop. Things got worse with my health---including being diagnosed with high antibodies to gluten--I'm wheat free too. After a long time trying to figure out what was causing my neurological defeciences I discovered toxic mold in my home. Since then I realized that is what was my "trigger". Whenever I am around mold my symptoms come back. If I stay away from it, I'm better. Oh yeah, and my husband (who was perfectly healthy up to about a couple of years ago) also experiences this muscle twitching and jerkiness for the first time at age 40. This may or may not be your trigger, but I wanted to share in the off chance there may be a relation. To come down with this neurological illness at 35 years old scared the crap out me as well. I hope you find some answers.

 

 

It sounds like you and your husband both potentially have leaky gut syndrome as well. I'm learning that it is the leading cause for auto-immune conditions like the adult onset of food sensitivities and intollerances along with the formation of new allergies (like to mold). I've been trying the McCombs Plan which is a 4 month plan. I'm just entering month 4 and have noticed dramatic improvements in my symptoms. I still have the twitching to a smaller degree, but the night time jerks, anxiety and brain fog symptoms that I was also experiencing have all bud disappeared. I'm also undergoing NAET to clear my food sensitivities. Apparently I racked them up on my old diet when I didn't know any better. I'm looking forward to one day being able to enjoy a beer and a pizza again. Unfortunately this stupid condition takes a long time to heal.

Posted

Hi,

I am a newbie to this forum as well. Been browsing through it for about a month now. Finding it extremely helpful. Reading your story reminds me of my own. I began to have muscle twitches, similar (almost exactly) to what you describe about 4 years ago. I was 35 years old at the time and perfectly healthy. I noticed an inadvertant musle twitch (and some numbness and tingling). It could have been my thigh muscle, a muscle in my face, any muscle in my arm, or even my abdomen muscles. Didn't seem to have any centralized location, it just twitched once, maybe twice, then stop. Things got worse with my health---including being diagnosed with high antibodies to gluten--I'm wheat free too. After a long time trying to figure out what was causing my neurological defeciences I discovered toxic mold in my home. Since then I realized that is what was my "trigger". Whenever I am around mold my symptoms come back. If I stay away from it, I'm better. Oh yeah, and my husband (who was perfectly healthy up to about a couple of years ago) also experiences this muscle twitching and jerkiness for the first time at age 40. This may or may not be your trigger, but I wanted to share in the off chance there may be a relation. To come down with this neurological illness at 35 years old scared the crap out me as well. I hope you find some answers.

 

 

It sounds like you and your husband both potentially have leaky gut syndrome as well. I'm learning that it is the leading cause for auto-immune conditions like the adult onset of food sensitivities and intollerances along with the formation of new allergies (like to mold). I've been trying the McCombs Plan which is a 4 month plan. I'm just entering month 4 and have noticed dramatic improvements in my symptoms. I still have the twitching to a smaller degree, but the night time jerks, anxiety and brain fog symptoms that I was also experiencing have all bud disappeared. I'm also undergoing NAET to clear my food sensitivities. Apparently I racked them up on my old diet when I didn't know any better. I'm looking forward to one day being able to enjoy a beer and a pizza again. Unfortunately this stupid condition takes a long time to heal.

 

 

Yes, possibly, we may have that. But, if we do, I believe the cause was from the mold exposure. The mold toxins are what I believe turn on the autoimmunity. They are nasty little buggers. Since moving out of the "contaminated" house, my husband and I are both improving our health which was declining for a few years. If you try to measure my autoimmunity now, it will not show on a blood test. That is not to say that I don't still have symptoms. I have some hard core damage that needs to be reversed, but it is slowly coming around.

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