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Hi there, my eight-year-old son has been ticking since he was two. We've tried some diet changes (gluten free, low sugar, only grass fed dairy) and some supplements. Sometimes these changes seem to work. Sometimes they don't. Can't find a decisive pattern. I've done a bit of research on TMJ doctors who have been able to stop or reduce tics on people with TS using a dental appliance. Jump on YouTube and you'll see for yourself. The main doctors posting on YouTube are Dr. Stack, Dr. Brown (they work together) and Dr. Sims, who per some posts on this forum, was trained by Dr. Garcia (third party account). I'm not advocating that this is going to work for everyone with TS, but I'd like to give it a shot with my kid. These three doctors are out of state. Dr. Garcia, however, works out of Tampa, Florida, which is 30 minutes from where we live. Wondering if anyone has had any personal experience with Dr. Garcia and the device he created. If you could share, I (and my son) would appreciate it very much. Please ping me personally here within the forum if you'd prefer. Thanks so much in advance, James -
Hi, I'm new to this forum and to PANDAS, with a recently diagnosed 16 yr old daughter (misdiagnosed for 8 years). I live in Orlando and am looking for other families in Central Florida or thereabouts. We are seeing Dr. Murphy in St. Petersburg. Also looking for any experience, strength, and hope from those with teens. Thanks in advance!
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Hello all, I just joined the group. My 7 year old son is being tested for the strep strain today by his pediatrician, but I need to find a doctor who will take a PANDAS patient. He local doctor knows nothing about this illness. I have called 2 already and they are not accepting new patients. Any recommendations? Thanks!
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Hello friends, This is going to be an unusual thread. I am new to this whole disorder. My child is 7 and I will get my child's lab results on Monday. We are testing for PANDAS and other potential viruses. My question is this... has anyone ever used the Hippocrates Institute in Florida to treat this illness? I have been into the natural medicine/ alternative therapies world for my own autoimmune illness since 2009 and I am very familiar with this retreat/resort, etc. (There are hundreds of youtube videos if you want to research it). I never would have spent the money for me, but since it's my child, it's a whole different ball game. Their testimonials are fantastic!!!! I am entertaining this treatment along with many other options. My concern is his... this would be hard on a 7 year old ... boring and long (3 weeks in a hotel environment, wheatgrass, living foods, educational classes, etc). If I decide to do it, I would have my child bring a DVD player with headset to entertain him while he sits next to me throughout the classes. If any other mom's are considering this treatment, it would be nice to have a child for my son to play with. I have spoken to Brian Clement (the founder) and they will treat children. Anyway.... this is all in the air. I have not even spoken to my husband about it. But just wanted to see if any other families have tried this approach. If we try this, it will be soon. Maybe in the next month or two. I am looking forward to hearing back from you.