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For the past year, we have been treating my 10 yr old daughter with just herbs (Beyond Balance products: Cognease Detox, Cyflacalm, MC-BB-2, MC-BAR-1, and MC-BFM-P) to treat lyme. I saw a big improvement in her neuro symptoms (7/10 in her overall behavior compared to the prior years). Her doctor convinced me to switch to antibiotics in order to fully "tackle the lyme" after her most recent lyme urine test. We started one month ago with 300 mg Cefdinir/daily and pulse 250 mg Flagyl on Friday/Saturday/Sunday for cyst busting. We try to detox with aka seltzer gold, lots of lemon water, and epsom salt baths. The first twelve days, my daughter severely herxed and could hardly hold a conversation, sit down, sleep, or eat. Things have *slightly* gotten better, but she still has bad anxiety, cries easily, low appetite, poor focus, and a general feeling of restlessness. We're supposed to start the 3rd antibiotic next week (Azith), but I know her body can't handle it just yet. I'm also still giving her all of the Beyond Balance herbs. So, how long in your antibiotic lyme treatment did you see your child's symptoms improve? I am at the emotional point where I want to just drop the antibiotics and go back to herbs. Or, maybe try a different herbal protocol. So, I'm looking for any guidance/success stories in sticking with antibiotic treatment. Her doctor says 3-4 months is the usual protocol, but I've read you need to stay on antibiotics for two whole months after all symptoms have resolved. Thanks in advance for any input ;-)
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Hi I am new to this site but have been reading some of the interesting posts I have a son that is 3 that is on Cefdinir for suspected PANDAS He was on a 10 day round of Fluconizole followed by Nystatin He has no sugar in his diet, No Gluten, No Casien and very little carbohydrates,,, basically the specific Carbohydrate diet How long would it take for us to know if this is the path for us, How long would it take to see changes with Cefdinir, Day? Weeks? Does anyone on here remember the time frame it took to see that the antibiotic was working? We are working with a DAN? Immunology Dr. that specializes in Autism & PANS & PANDAS He is a well respected Doctor who is in California I am just watch my son all the time since he started taking it, looking for changes. Your thoughts would be appreciated. -
My 10 y/o son was recently diagnosed with Lyme Disease. He also has Pandas. For the most part he hasn't had any classic lyme symptoms but we tested him because of the Pandas. We recently consulted with a naturopath that treats Lyme Disease and these are the medications recommended to start with. I'm looking for any information about these different abx, experiences people have had with them, side effects experienced, etc. He has taken azith for the Pandas but has never taken Cefdinir or Metronidazole. With school around the corner, I'm worried about starting him on this protocol and having him experience a lot of unpleasant side effects. Thanks! Cefdinir (treats spirochete) – 300 mg per day with breakfast Azithromycin (treats intracellular form of Borrelia and H. Pylori) – 250 mg per day with supper Metronidazole (treats cyst form of Borrelia and H. Pylori) – 250 mg with breakfast on Saturdays and Sundays only.
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DD is on her first round of Antibiotics for recent onset of PANDAS symptoms. Her pediatrician who does not know much about PANDAS gave her Cefdinir- 250mg/ 5ml daily for 10 days. Does anyone know if this is an appropriate dose? She has an upcoming appointment with Psych doctor who has knowledge of PANDAS, but he can't see her until May 29th and won't give me any advice until then. Thanks so much.