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Momwithacause

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About Momwithacause

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  • Birthday February 10

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    Female
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    Texas
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    I have a son who is 3 & a half, he has PANS, his twin brother does not have it. Interestingly he DID get bitten by a tick when he was 12 months of age. He does respond to antibiotics, but is not able to stay on antibiotic treatment due to candida control issues. My interests are PANS treatment, raising healthy kids, health, fitness, happiness, & family stuff
  1. Thank you mayzoo. We are really missing that socialization piece. I have heard people comment on Respen-A doing just that, facilitating in ones own oxytocin by decreasing the over supply of serotonin, resulting in more communication & socialization. I am trying not to do to work on too many treatments at the same time. But this may be next when we are finished with human gamagobulin.
  2. I need this groups help on a topic I feel like autism and PANS may be one in the same ,,,, I have heard of other doctors thinking this too that classic PANS is an occurrence after age three, & my sons situation is before he was three with his tick bite when he was a baby.my son is now almost 4 & has a twin with typical chattery development..... We are doing oral human gamagobulin for 2 months and starting our 3rd month we now have good speech but very little desire to be social or use language in a back fourth receptive way, very little desire to socialize with his brother. We had
  3. Yes we have been doing B-12 injections for 6 months. It was the first thing to bring my son's memory back. Which allowed him to learn & retain knowledge. At some points we would have too much hyperactivity, when that happened we went to every third day. Now we are back to every other day because we see a little more following simple instructions (my son is 4 and has a twin who has typical development)
  4. My son is almost 4 and has PANS ....most likely Lyme, he was bitten by a tick when he was a baby ( we used to LOVE the great outdoors) anyway, & we spent the day in the hospital because they wanted to make sure it was not a poisonous snake bite. Recently I had facial palsy for 2 months & a fever so now I am being blood tested for Lyme also, I now am a fan of the great indoors. That's our history. Iam not on here very much, I do a lot of research at night when my kids are sleeping. My son was throwing his iPad when he could not get to a new program like going from ABC Mouse to Super Wh
  5. I am in Texas too! In the DFW area and just watched the Lyme video posted by another member. And my husband & I have just realized we were at the hospital with our son for three hours because of a bite he had when he was 18 months of age (that was 2 years ago) the bite was sooo strange looking it was a huge red welt with a circle all the way around it an inch outward. It was so odd that we were afraid he had gotten bitten by a small snake. We were given Tevan (STRONG antibiotic cream) and told that it was most likely a spider or a tick but they were not sure. So I looked up tick bite last
  6. Hi Frikfrak: I just posted that we may be treating with ORAL IG instead of Abx because of a serious yeast battle that my son has had for 2 years. He is 3.5 years old & partially verbal but not converstaional with abx. We can not keep him on abx because of this bad yeast problem so we are thinking that Oral IG or IVIG will end up being the treatment. When my son was on abx he had to have diflucan. Off antibiotics what works for us is Nystatin, Sacchamores Balardii (yeast that eats yeast but does not colonize& gets pooped out) & Fivelac have been our daily routine! works
  7. My doctor wants us to try Oral IG. It is the IVIG used but not with needles, We are told to give him a childs does of Pepsid to stop stomach acid and the oral amount is small & given every other day for many months. It is expensive $600. a month and I am fully aware of that. Background: My son is 3.5yrs old, and is in & out of being with us.He has some OCD, it used to be EXTREME. He talks some but not conversationally. He did 20 days of Cefdinir 2 different times. On both occasions he did speak conversationally. And permanently lost some of his worst OCD & separation anxiety s
  8. sf_mom maybe I am where you were 3 years ago? I am learning as I go. Neglase score I do not know. I am intreged by GcMAF am wondering if the gains are permanent or if they slip back. I can't seem to find many parental testimonials on this just 2. To answer your question he is on diflucan/ fluconazole & omnifer/cefdinir because he has had an ongoing battle with yeast/candida since his toddler diarrhea at 12 months old ,,, so we cannot give omnifer/ cefdinir without fluconazole or we end up with a yeast nightmare ... My DAN cycles the antibiotic treatment, some of his patients if young en
  9. Rachel thank you for telling me about your son, i don't seem to hear about other kids doing the vocal tic, so it's so puzzling to me. My son being 3.5 is just starting to talk so he speaks a little bit & yet HAS the knowledge of what he wants to say for example he will say "I see a squirrel, (then he will say) "& over there are 2 squirrels" So he understands tenses & his twin who is nuerotypical still says I see 2 squirrel , so it's interesting , but in between speaking "our language" he will make noises a little like a dolphin. We have only been on the Methyl B-12 injections fo
  10. I don’t post very much because when my twins are home from pre-school the minute I open the iPads they both grab one & jump on ABC Mouse. Background: my son is 3.5 years old he has had PDD-NOS since he was 18months maybe longer. He has a twin brother & they were initially both verbal at 16 months then one progressed verbally & social and the other had terrible diarrhea & stomach problems for many months & he then did not progress, he actually regressed for a year. I see a DAN that was in California but is now in Florida & my son is on Methyl B-12 injections, DMG, Dig
  11. Thank you Nancy I will post this on the PANDAS Forum You have been so helpful & I will see if there is a PANDAS Practitioner in my area My doctor is versed in PANDAS. We have traveled to see him, & would have to travel to see him in California or Florida since we are in Texas Thanks Renee
  12. I don’t post very much because when my twins are home from pre-school the minute I open the iPads they both grab one & jump on ABC Mouse. Background: my son is 3.5 years old he has had PDD-NOS since he was 18months maybe longer. He has a twin brother & they were initially both verbal at 16 months then one progressed verbally & social and the other had terrible diarrhea & stomach problems for many months & he then did not progress, he actually regressed for a year. I see a DAN that was in California but is now in Florida & my son is on Methyl B-12 injections, DMG, Dig
  13. Sacc B correct is a benicial yeast that is known to kill Candida.I had been buying it from Florestor now I buy it from Jarrow, better price seems to work great also. I use it for myself Keep us posted on the Bravo Probiotic, Let us know if it works better for you then the Sacc B Culturelle combo. I know it is expensive how much did it cost? Does it seem difficult to make? My son is on Fivelac. That works really well for us, better for him for yeast control then Culturelle (but I like your SaccB Culturelle idea). Right now he cannot be on Sacc B because he is taking antifungals & a
  14. I am relatively new to this group, but I do look up answers a lot in the last few months since there are so many knowledgeable people on here. Question: DMG, Enhansa, Methyl B-12. My son is 3.5 and on DAN treatment for 4 months & doing well. He is on Methyl B-12 injections prescribed by his DAN & DMG. I recently upped his DMG slightly due to parents mention of gains from DMG.... & BAM my son went from labeling things with one word to using 2 or 3 word phrases, & kind of role playing when he plays like his Nuerotypical twin. So then he seemed yeastier, I had to use L
  15. Hello Hrosenkrantz: Thank you for your reply. Its good to know that it at one time worked. Did you find another treatment after that ended up being effective? Yesterday was day 4 on Cefdinir and I was noticing a regression. Staring off, rock throwing obsession full blown, not trying to communicate & talking gibberish to the light fixtures. These are things he had stopped doing after the fluconizole I am wondering if there is a Strep Die-Off regression then maybe he will move forward once the strep is more under control? Or if he has a Virus instead of Strep? If you or anyone k
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