pollywog

My kids and I saw Dr. K (Kirkland, WA). He is an amazing genius, but his protocol is extremely complex and expensive beyond belief. We really struggled, since were treating 3 people with Lyme in the family. Getting kids with Lyme/PANS to cooperate with taking all those supplements, etc. can be very difficult...almost a full-time job and full-time paycheck.

We are in the same position right now. We're working with Dr. Frankovich at Stanford PANS clinic. My son does not have titers for Tetanus or Pneumo, even though he was vaxed. Frankovich is asking us to re-vax with the Pneumo so that we can prove immune deficiency and to get IVIG covered. We are terrified of this! Would love to hear from those of you who did and did not have flares from re-vaxing. Also, would love to hear your experience with IVIG, and were the results worth the risks? Thanks!!!

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