hawks
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Everything posted by hawks
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Is this a treatment that insurance would cover for PANDAS or Lyme Disease?
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Maybe figuring things out a bit...
hawks replied to lmkmip67's topic in PANS / PANDAS (Lyme included)
You go momma - keep digging. Looks like you got some evidence and confirmation to keep doing just that. -
Dawn - We will keep you in our prayers! From our experience Dr. T has been wonderful to work with. Hoping and praying that he can help unravel the puzzle even further for you all.
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How does one go about getting the Metametrix Stool Analysis done? Is this a test your LLMD ordered? Thanks
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Yes I agree I think there must be an initial visit in person. Just wondering if any do follow-ups via phone. Thanks for your reply hopeny.
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I am wondering if you know of any LLMD's that will do appts by phone.
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Tpotter could you pm me the full name of the Dr in Stephensville. Thanks
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We also were suppose to have an appt on the 17th for both of our sons. How did you find out about this? Could you pm me the information. Thanks
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My son has not been in my parents hot tub for over a year because we had suspected that he was getting an allergic reaction to it. Well he hopped in on Easter Sunday and we now know forsure that the skin reactions that he has had in the past have come from the hot tub. His face is covered in a rash and his eyes are swollen. My parents don't use chlorine but some other type of chemical that is suppose to be more natural.
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Hello Everyone! Update From California
hawks replied to Phasmid's topic in PANS / PANDAS (Lyme included)
Great to hear such wonderful news. -
Hello Everyone! Update From California
hawks replied to Phasmid's topic in PANS / PANDAS (Lyme included)
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Such GREAT news! I too hope we can get our DS15 there. I also have thank you for your many insightful posts. You've been such a persevering momma and it has paid off! Happy Birthday Wishes
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Joan - We have been working for a year now to get our DS15 out of the horrible 2nd exacerbation that started over a year ago. My son has made improvements from antibotics but still unable to attend school. The OCD rules. He wasn't able to finish the 3 week intensive program because the therpy was too much for him at the time - we are 10.5 weeks post #1 IVIG. Seeing ups and downs. Did insurance cover the ivig's and how far apart did you do them. I am glad you posted - I was wondering about your son. Thanks, Angie
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Tracy - Go through thenmama's content - she has great ideas for appeals. Maybe she will chime in. Angie
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Here's another article that was on MSN's website. http://todayhealth.today.msnbc.msn.com/_news/2012/02/24/10490105-sudden-ocd-in-kids-culprit-may-be-strep-throat-other-infections?chromedomain=vitals
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This can be such a puzzle to figure out. Just wanted to let you know that I will pray for your daughter and family.
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Praying. Hope you have a better outcome on Friday. Hugs!
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Who has done multiple ivig's - is your child considered immune deficient? Should one ivig work if your child is not immune deficient? We were recommended to do multiple ivigs (3 or 4 HD ivig's)- but have never been told that our child is considered immune deficient. I assume that the doc's that we are working with would have pointed that out if that were the case. Is having an immune deficiency criteria for repeated doses? Any imput here is greatly appreciated. Thanks.
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Thanks for information ladies! Very helpful. LLM - thanks for the links - that should keep me busy for a while. Hopefully your new experiments work and your daughter will see improvements soon. Kimballot - I think I will try the dose that you are using and work up from there if we need to. Is your DS still doing the IVIG's? DS15 has been different doseages of Zoloft for about a year now and as I look back I wonder if some of the symptoms we had seen were indeed the drugs side effects as opposed to the PANDAS - as LLM noted about Nancy Fxcfer's post.
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TH- Thanks so much for the advice. We are going to go through the plan docs more carefully as you suggest.