ptcgirl

Ok. I went on http://www.merial.ca/dogs/recombitek.asp and it said most of these are not related to humans at all but it did say something about Leptosporosis being contagious for dogs and humans. "Canine Leptosporosis: Leptospirosis is a contagious bacterial infection caused by organisms that can survive in surface waters for extended periods. Animals and humans can become infected by ingesting contaminated feed or water. Symptoms include sudden slight weakness, loss of appetite, vomiting, fever, and mild conjunctivitis in the early stage. Later stages of the disease are characterized by labored breathing, strong thirst, back pain, and abrasion-like patches in the mouth." The vet specifically said that it was a modified live vaccine. Not sure what that even really means..... Probably nothing to worry about but I'm still thinking about just leaving this vaccine off our agenda for a while. My dogs are rarely anywhere besides my home.

I was about to take the rest of my dogs off to the vet today to get their annual shots when it occurred to me that Dr B mentioned our daughter staying away from live virus vaccines. I remember he said for her not to receive them but I believe to keep her away from kids/people who get them as well. Well, I called the vet and one of the vaccines they give is a modified live one. My daughter always has an exasperation this time of year and we've assumed it was allergies, but we also always get our four inside dogs vaccinated at this time of year. Could this cause a reaction? The one in question is call Canine Distemper-adenovirus Type 2 parainfluenza-Parovirus vaccine-leptospira canicola-grippo-typhosa-ictrohaemorrhagiae-pomona bacterin. I guess it is more commonly know as distemer/parvo/leptospiris vaccinine. Anyone know anything about this? I contacted Dr. B via email and will let you know what he says.

Such a good video. Really explains things and so glad I watched it this morning. My 12 yr old is scheduled for IVIG next month and I woke up scared about it. This really makes me calmer. Thanks for sharing it!

My DD was 9 when we had both t and a removed after nearly three years of continual OCD from pandas. Immediately all symptoms went away for nine months. Then it all came back. We know she got Lyme too sometime in there. Anyway, those 9 months were well worth it. Just wish we could get her back to that spot now. Hoping Ivig will help. Scheduled for July. Good luck.

Hi Jaco, thank you for sharing your situation with all of us. It is inspirational and helpful to hear the perspective of an actual PANDAs patient on the forum. My DD12 has said so many of the same comments that you wrote. It helps me to remember that her feelings (and yours!) are normal given the horrible situation. It must feel like h***. I know that as a parent, watching our child go through it, I feel like our whole family is living in h***. BUT, you will get better and the future will be SO bright for you. You seem like a very intelligent person. Who knows? Maybe you will be the one to solve all the mysteries in PANDAs. Don't give up. You are in a flare and things will improve. Hang in there. I will say a prayer for you tonight that your symptoms calm down and that the IVIG is effective and acts quickly.

Agree with all of the previous comments. I would seek out a PANDAS doc and find out what she/he thinks. A lot of your child's symptoms sound very similar to my dd. Better to treat early if you can. Good luck and hang in there. Either with PANDAS or traditional OCD, it is a hard road for your child and for you.

Just wondering if anyone had ivigs done at Usf. Does the immunologist do them for pandas kids there? Anyone have any idea?

Does the Immunologist at USF do IVIGs?

I received the lab results back from my dd12 and I'm so confused. She's had PANDAS since 2006 and Lyme since who knows. Her current lab tests show an Immunoglobulin A, QN Serum as LOW (46 mg/dl). Previously (in 2010 and 2008) it was in the normal range (66 and 62, respectively). The other odd thing is that her strep pneumo Igg has 4 under .35 and 8 under 1. (she had the vaccine as a baby). In 2010 she was over .35 for all of them. Why the changes?? What does this mean? I will (hopefully) talk to Dr. B on Monday, but I'm so confused. Has anyone else had similar issues? Any insight? Please help me get through the weekend.... All the rest of her test came back pretty normal. Thanks in advance for helping.

I absolutely KNOW that my pandas 12dd has very dilated pupils during anxiety or OCD. Without a doubt. I think it is a very common phenomenon with any type of anxiety.

Thanks for sharing your stories! Surely there are more out there. Maybe I should have asked share you Ivig experience????

Great! How long was your child sick? What symptoms? Just Pandas or other stuff too? Thanks!!!

Still dealing with my dd 12 having PANDAS. ABX no longer work. Has anyone had any success stories with IVIG that they wouldn't mind sharing? I keep reading and talking to others who have kids doing it but it doesn't seem like any of them are really cured or in full remission. Please share your story with me if your child is better due to IVIG treatment. It seems to be our last hope....

What wonderful news for your family! Thank you for sharing your story of hope. It helps me to think that maybe there really is light at the end of the tunnel. Enjoy your daughter!!!

We are doing a hybrid homeschool situation. My kids will Goto a school two days a week and homeschool the other days. I feel very fortunate to have this option.

My dd11 and I just got back from there from GA. We love New Haven and truly enjoy our time there. We have toured the campus, shopped, gone to the free art museum, the Yale Peabody museum, and eaten at a couple of great restaurants (Frank Pepe's Pizzeria napoleon or something like that was the BEST). Depending on how much time you have you can go to the beach (we went to a state park in Milford) or take a train to NYC (which we had a ball in as well). Getting to travel is the only part of having all of these dr visits that we enjoy! Hope you have a good time!

My dd has Babesia Duncani. Treatment depends on which type of Babesia he has (from what our LLMD said). My dd is on Enula for it. She also has Lyme and Bartonella that she takes antibiotics for.

Thanks for letting us know. I was wondering why they wouldn't air it here. What a load of junk! I'm so tired of the politics involved with this disease. Why are they so afraid?

Wow! That is a good one! Thx!

Very interesting. thanks for sharing!

My dd11 is on Rifampin for the Bartonella infection. Not sure of the true cost. Sorry.

We were also told NOT to use steroids for Lyme or TBI.

Dd11 is on 150 mg of Zoloft. I believe it is helpful. I think it takes the edge off the OCD. Not a cure by any means.