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Everything posted by Priscilla

  1. Funny I just got a notification from this response. I have not been on this forum in a very long time. I am so happy to report that I have a very healthy happy 16-year-old daughter who is no resemblance to the child that was in such turmoil. I will however say it has contributed to the person she is kind, compassionate and confident. I just went for an IEP meeting today which we did not even try Start one until eighth grade where things got worse before they got better but I have to say once over the hump of entering puberty things really started to balance out. She has not used one accommo
  2. So true.. well we've struggled through all of this yet my daughter is a much better person than I was at her age and we share a very special bond Sisterhood having struggled through this together and for sure having other moms the speak to that I understand has been a godsend
  3. Hello, its been a long time since I've been here..but just happened upon a quote I keep on my fridge.. Something I came across several years ago in my dark days and it really resonated with me, I've kept it... And this moment I just had, made me feel I need to share a message of hope for u. I get frustrated when desperately searching forums for anything, and u never see the outcome.. So I feel it is my duty to give u some hope. I was a regular here several years ago, my daughter was slipping from me, an 8 year old that seemed to be losing her mind, posesed even..we desperately tried everythi
  4. Hi, been a while... I am back puberty is tough... looking for any teen support groups for tourettes near Orange County, Ca... any ideas??
  5. My dd seemed what could be textbook PANDAS at first, elevated strep antibodies, and fit the diagnostic critieria to a "T" but I hadn't known of any strep infection since she had strep throat as an infant. We did abx and IVIG with improvement, but not enough. Saw parents getting lyme diagnosis and recalled a bite around 3yrs old and went for testing. We had pos lyme bands an mycoplasma. This was after 4 ivig though, so I have always wondered. Regardless, treating for lyme and Pandas was basically the same. Lyme doc added zith, and was very good about listening, monitoring labs... I do credit hi
  6. she is 10, and does't seem to be near puberty (think she will be a late bloomer:)) Hard to say exactly which vaccine, but in retrospect, the very first signs of something wrong came right after her 15 month MMR. She became extremely hypersensitive to her seatbelt. It was new, and it was so severe I knew something wasn't right, but she was so normal otherwise I really just hoped it was a phase. She also had asthma, (which makes sense that it could have also been caused by vax) so of course Dr encouraged the flu shot. After the first one, she became extremely ill within 48 hrs (high fever, sore
  7. Haven't checked in a while. DD is off all meds and doing great! Just wanted to share this article, found it interesting. I feel vaccines were the cause of our whole problem. http://vactruth.com/2012/09/14/eczema-as-a-biomarker/?utm_source=The+Vaccine+Truth+Newsletter&utm_campaign=a974f5dbea-09_14_2012_eczema&utm_medium=email
  8. I know many of you are in a whirlwind taking care of your sick child(ren) but someone just recommended this book to me, sounds interesting. I haven't ordered it yet, but thought I would share. Polymicrobial Diseases by Kim A. Brogden, Janet M. Guthmiller Publisher: ASM Press 2002 ISBN/ASIN: 1555812449 ISBN-13: 9781555812447 Number of pages: 450 Description: Polymicrobial diseases are those involving more than one etiologic agent. This book provides an overview of the current knowledge of these mixed infections in both animals and humans and explores the contribution to disea
  9. I too can look at my dd records and notice resp illness or ear infections after every vaccine. Her first behaviors started shortly after the 15 month MMR but asthma started AS SOON AS I STOPPED nursing her. I always found that odd. She never had asthma before that, I do believe my nursing her was somewhat helping her severely taxed immune system. The good news is there can be a degree of healing, and foresight to not let any more damage be done. I just pray so hard parents will educate themselves and take a stand so these children are spared this suffering. It TRULY makes the most sense to me
  10. Just watched the movie "The Greater Good" I think it is highly informative about the circle of vaccines and politics. Also the dangers of the adjuvants. It offers a balanced view, although in my opinion the scale is not balanced for the clear fact that the safety hasn't been studied and our children are the test subjects....obviously suffering the consequences.
  11. I has just read something about this a few weeks ago. I am sure there is much more info out there but here is something I quickly came across http://www.who.int/vaccine_safety/topics/influenza/pandemic/h1n1_safety_assessing/narcolepsy_statement/en/
  12. Well I think the first thing that helped my daughter was a shift in my thinking. As I looked more into the vax issue and things really started making sense, I realized I didn't want to kill an infection (Lyme) or supress her immune system (PANDAS). I realized I wanted her to heal from an injury so that became the focus. I went back to the strict diet, not completely restrictive but just tried to cut out sugar and gluten as much as possible. Our naturopath also gave us some whole food supplements. Once I had this revelation, I REALLY wanted to get her off the abx. I hated having her on them any
  13. I just ordered the movie "The Greater Good". I hear it has a pretty balanced view, may be a good one to recommend to the teacher. I will let you all know after I see it.
  14. I agree, I get sad and angry....but I also agree, no looking back, but forward. I'm glad I'm moving forward with the information I have. My daughter is completely off of abx and doing GREAT. I finally feel we are on the other side. That is the good news though.... there can be a degree of healing, and for us it has been to a level that no one could ever tell what we went through. Unfortunately for others though, that level may never come because of the degree injury. That saddens me. Looking forward for the many that will face what we went through and moreso, The sickest part is it can be avoi
  15. I wanted to share this, just wish the last couple slided were slower to sink in more. By the way, we are doing great! Off of all meds
  16. My son had a reaction after the flu mist. It was 2 days after. Had no idea about PANDAS at the time. He had a second dose a month later. That is when the symptoms became worse. I woke up one night and realized I bet it was the flu mist which exacerbated the symptoms. As I was researching sudden onsets of OCD and tic I came across PANDAS. I found a doctor who diagnosed my son without any previous strep infections or any infections at all. He had not been to a doctor in over a year prior to vaccine. However, he did have a high cam k. I followed through with the vaccine compensation program and
  17. my dd is doing very well but in retrospect I think vaccines along with possible other mercury exposure had almost everything to do with her illness. I have been quite obsessed with researching it lately and it really makes sense to me, more than any of our other diagnosis (pandas, lyme AND mycoplasma) I have read about mercury causing permeability of the Blood brain barrier which makes sense to me why we have to call it PANS or PITAND because anything that crosses the blood brain barrier (which the function is to keep most antigens out!) can cause inflammation. Even the supposed mercury free
  18. Crap!!! We eat very healthy, but BBQ sauce is one of my son's favorites. I have been buying from Trader Joe's lately -- hoping that one is better. I know, you really have to look at EVERYTHING! Took me forever to find a bread without it! I used to think diet didn't matter so much because we ate healthy, but I have really had to get a lil crazy with the diet since we were coming off abx I wanted to really balance her gut (she's been on abx for 2 yrs!) I think it is really helping, we are almost completely off and she is doing so good. I still let her be a kid but I prepare all of h
  19. another interesting tidbit: High Fructose Corn Syrup High fructose corn syrup (HFCS) is a common additive used to enhance the shelf life of foods. Numerous processed foods such as jelly, bread, barbecue sauce and flavored milk are made with HFCS. A January 2009 article in "Environmental Health" investigated whether mercury ended up in the final product, as the manufacturing process of HFCS includes mercury cell chlor-alkali products. Varying levels of mercury were detected in nine of 20 samples of HFCS. The accumulative effect of mercury ingestion due to the large amounts of products w
  20. So I truly feel vaccines are a major factor in what happened to my dd (now healing VERY well). My dd also had some extensive dental work with 2-3 silver caps placed prior to her downward spiral. She also had asthma which calcium and magnesium deficiency has been found with (and which mercury toxicity interferes with....) I have also noticed that epsom baths have been a GOD SEND in her recovery and coming off of abx, which are also considered a mild chelating agent. She also responds well to augmentin, in which the sulfa component may help with mercury detox..... so I got to wondering why we sa
  21. My dd is now 10 and doing GREAT!! completely off of zith, and down to only 500mg augmentin/day which we will be working on nixing very soon. Its been a long road....but I still like to research to try to figure out what actually went wrong. I feel very strongly that vaccines were a MAJOR contributor. I found this article very interesting and comprehensive so I just want to share. http://gordonresearch.com/articles_autism/multiple_causes_of_autism_spectrum_disorders.pdf
  22. I am the website administrator for VaxTruth.org and I always check the links to our website to track them. No one used the information that you posted earlier, the information the author used is as she asserted, a contact from a parent through our contact info on our website or personally through facebook. I only noticed your post because of the high link rate from the page and decided to check out the source. I noticed your concerns and echoed them to the author. I am writing to inform you of a retraction that was made on this subject, you can find the link from the author here. At Va
  23. ok Kim, sorry, just caught it..... all children under 24 mos... I need to slowwwwwww down:)
  24. Kim, This is specifically what I was replying to: Pneumococcal conjugate vaccine is recommended for all children less than 24 months old and for children between 24 and 59 months old who are at high risk of disease. Persons who are 2 years and older and at high risk for disease (e.g., sickle cell disease, HIV infection, or other conditions that weaken the immune system) should also receive PPSV23. (sorry, not so good at the highlighting on this forum :/) I read this to say the PCV should be given to children under 2 at high risk, if they are older than 2 (and also at high risk),
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