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kengela

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Everything posted by kengela

  1. hi im pretty new to all this myself my 5 yr old daughter was dx past fall but she had subtle symptoms since before she was 2, like the sock thing your son has but on her 5th birthday she started to have facial and vocal tics,she would say please or other words she snorted for a couple days she had motor tics but they werent as noticable untail you realized these things were tics tshe wiped her fingers down the front of her shirt,now she pulls down on her shirt, i think so many comlex tics go unnoticed because they can seem so purposeful .i felt pretty guilty when i thought back to all the times that i had told her to" stop that " about wiping her fingers on her shirt but back then i only really noticed it when she was eating and i thought she was just using her shirt as a napkih. like your son she hadnt really had any of the more common symptoms but just last week she began a headjerk and blinking she is on a gluten and dairy free diet im starting at least magneisium this week Im hoping it will help the head tic ima also trying to keep her diet free of artificial anything
  2. thanks for your reply i do feel she has ts and has shown symptoms since before age 2 i also think it all began with her 8mo immunizations. She also has sensory issueas,ocd tendencies or maybe compulsive would be a better description,extremely hyper during waxing, also fears at night of having nightmares and im hoping that her"imaginations of scary things" arent hullucinations-she also says she hears things,just anytime not at bedtime or during the night. at the begining of her major symptoms she seemed to be having some problem with her memory-like words to songs and nursrey ryhmes has anyone else experienced this? im interested in possible subtypes iv been seeing it mentioned here and there just thinking it may offer help in the future maybe certain subtypes (ts from different causes?) respond to certain therapies
  3. we are new to all of this,including using the computer for me we live in mid michigan and i think our choice of doctors is going to be limited anyone know of one with an interest in ts (possibly a dan doctor) i have a 5 yr old daughter diagnosed this past fall her main obstacle seems to be her adhd symptoms although her motor tics have drastically increased latley and im worried the head shake and eye bliking are going to be a prob at school. im going in later to observe her later her teacher says she hasnt noticed the new tics i cant beleive she can supress them to the point of unnoticable to someone even slightly watching for them. I dont want to medicate her and am hoping to find an open-minded doctor to help id like her tested for deficiancies,toxins,etc. She is currently gfcf i started it at the onset of all of this last summer and saw huge improvement, even as she began school. but now im wondering if all was just a natural waning period-seems it would be odd timing to wane so much at a high stress period, but then again her symptoms from the start have been very atypical hope to hear from someone in the state on a new doc soon, the ones we have seen so far have been closed-minded and not very familiar with ts
  4. my 5 year old daughter did a nose / eyebrow touching thing before she was 2 it didnt last very long
  5. HI My son started various similar things at around 3. Acting like his shirt was bothering him, etc. Later things became more like "classic" tics (eye blinking/head jerking/etc). He is now 7. This past Sept he had a very bad month. The freat news is that he turned out to have sensitivities so a few things such as orange, red grapse, flaxseed oil, and more (11 items some foods some chemicals). Once we got him off the flaxseed oil suppkement I started him on in August, and all the other things, his life has changed. He is almost tic free and very serene, not at times agitated like he was before. I definitely recommend getting him tested mabe in a couple of years 9it involves drawing blood). Good luck!
  6. my ts daughter has 4 with odor and touch being most prevalent
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