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evol

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  1. Hello. Just wanted to share my story. I am 42 and have moderate Tourette’s. Tic disorders run all throughout my family, I believe on both sides but much more prominate on my moms side. It was mild from 7-14 and then it really amped up from there. It went from about a 2/3 to a 6/7. I did have a lot of strep and ear infections leading up to the increase. I never got diagnosed. My parents “threatened” to take me to the dr but never did. I definitely didn’t receive the support I should’ve but, then again, I didn’t want to face it. just learned how to cope and manage. I do wish I would’ve been given the tools to at least be able to talk about it. I was always hiding It. The few times someone would ask, I would quickly change the subject. I was never bullied (to my face) and had friends and boyfriends but it has affected my confidence for sure. It’s still just as active now as it was 20 years ago but the worse years were high school and college, most likely due to the stress and trying to sit in class and not tic all day. I have 3 kids who have all expressed symptoms. The genetic factor is strong. My oldest daughter had a couple mild tics that started at 4. When she was 10 she had a nose crunch that was getting worse and I noticed she was drinking a lot of milk at that time. We eliminated milk and it disappeared almost immediately. She has virtually no tics at 16. My 12 yo son started an eye roll tic at 10 and is transient. It was there for a year or so, on and off but now I only see it when he is stressed. My 11 yo daughter would qualify for a Tourette’s diagnosis as of the last few months. She’s had several different motor and vocal tics since 7 (usually just one at a time) that have increased and are changing frequently. They still pretty mild overall but are increasing each month. She also has always had anxiety. We have not been to a dr yet but we tell her if she feels bothered enough by them to let us know and we can go. We’ve tried magnesium and fish oil and other various supplements....can’t really say if I think they’ve helped or not. I do notice an increase when she is eating junky food. I will say, I sometimes feel like I’m living my life waiting for the other shoe to drop. I never quite let my guard down even after dealing with it for so long. I try to remind myself “be grateful for what it is, and what it is not”. It’s not a fun disorder by any means but there is no way to predict the future so all we can do is take it one day at a time. I completely understand the panic and worry. If I could take on all of my children’s symptoms I would. The best thing you can do is love unconditionally, support and encourage, and try to keep your head up.
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