melanie

500 mg depakote. Dr j wants him off the depakote she says it's a problem for immune system.

I cut the rose in 1/2. .25 at night I can't get rid of his anxiety. The 1 st week was horrible. Since I cutit he's been ok. Just want to help him. Not a fan of the anti psyche meds. Has bad experience with risperadol and abilify years ago. Ughh .

HUH?? Nancy what is that about...What !!!This is dannys Dr please inbox me

Trying a low dose of seroquel but Dan uses Nac. Is there a problem with that. Not happy so far with the medication and I'm not sure if the nac is reacting with the seroquel.

Dr najjar is dannys dr. If anyone needs a referral in box me. He is unbelievable. Love him!!!

I agree. Dannys ASD is definitely caused by illness.

My son does medium dose 1g per kilo every 21 days for 3 years. Been a long road but he's much better. He was always sick as a small child. He's 18 and still gets some ilness even with ivig.

Has anyone tried this for OCD? Good. Or bad. Is it along the same line as nac?

Shouldn't ave any strep. He's on minocycline 100 mg daily. Acne much better but I do notice flares and behavioral changes. What does the zinc do?

I have noticed some of dans behaviors increase with his acne.I know its elevated hormones .He has very hairy legs not chest or back but legs!! Is there something I can try to help this.Years ago we used spiraloate? Cant get the dr to do this any ideas??

Dan has been doing unbelievable until this week. Not sure if it's the NAC no longer working. Does that occur? He also did 2 feedback sessions. I'm wondering if that's possibly it. Ughh WHY!

Dr najar doesn't do dannys ivig. He did the PEX. Dr J does the ivig. Did steroids with dr T 3 years ago.

I feel like this will never end!! He is doing great but Im never satisfied.One day great one day eeh ,I cant talk to him if hes thinking about something.He gets real annoyed.I concider those days flares?? Some days I can just scream .Hes watching all the old programs he used to watch when he was younger.Power rangers etc..So not 18yr old shows.its like hes going backwards .Do you see a difference with the 200 mg? I think when he gets that annoyed ticcy behavior Ill try low dose steroids like 10 mg for 2 days?? Also he continues with the accupunture Does Allie? Starting biofeedback again wednesday

We use minocycline 100 mg 1x day. I think we should use more. I will if someone else does. Also if you are having. Flare. Meaning behaviors. Do you use steroids. .

I would try it again. We are doing very well on it. I want to increase but I'm afraid I give it 2x daily. Keep me posted. I'm curious.

Can't open it ughhh

It's not that one but wow that wasvgreat too. Thanks.

Thanks I know I read this. I'm sticking with it right now. He seems very happy. I'll take it . Have him on 2250

Danny did PEX last november. 5 in 6 days. Insurance covered. Did it at nyu. Helped. I would definitely do it again if necessary.

Hi peg. We just completed guardianship and his special needs trusts. What a drain on us. I filed for ssd and who knows. Nj is slow. I know how you feel. I really do. Get through 1 thing at a time If you need any advice on the trusts or the guardianship info pm me I'll try and help. I had someone help me and it made me feel better.

Nancy. I read the study. It said it was cancelled. I remember reading one a year or so ago. Thought there were results?

It doesn't say the dosage for OCD. Ughhh. He's up to 1500 mg. Let you know. Thanks OCD mom. Knew I could count on you

Hi. My son has been having ivig every 21 days for 3 years. We have been very blessed. No side effects. The 1st was in a hospital and the dr used benadryl and pred. We had advil available in case No problems. Good luck!

Dans 150 lbs. Ours is 750 mg. So I've been giving him 1 at night for 3 days. Should I increase to 1 am 1 pm. He is taking depakote. ( I know) too and minocycline