melanie

I want to add the NAC back into dans life. Does anyone remember the dosage recommended for OCD from the nimh?

Hi peg. I found this site. http://whitenoisemp3s.com/free-white-noise. Check it out

Ok about a week ago I was watching MSNBC(sorry )on the bottom of the screen ticker tape said something about a possible cure for tourette syndrome I have ggogled it and cant find any info...Im not crazy I did see this any one have info Melanie

Dc mom thats great..Also I have noticed Dan tends to react to something strongly for a while and then moves on to something else as his new trigger

Hi peg. Try white noise. Background noise.

Any one that knows danny knows this has been my question .I have seen drs begging for this answer and no one ever knows the answer .I have made an appointment to see an audiologist that specializes in this.We will see where this takes me.And how much this will cost to treat .Ill keep you posted as always melanie

We had PEX covered I think it was pandas dx. Not sure. We also get ivig every 21 days covered but under low igg dx specific immune deficiency dx. I have njbcbs direct access.

I lost 2 posts Any way going to the neurologist tomorrow Im going to request the test to detirmine wether or not danny has this Which specific test will detirmine this as a fact! DONE with speculations DONE!!

Does any one use this for mycroplasm or PANDAS?

How much. I'm going to add it back for Danny 155 lbs. And he will be 18 monday

http://www.medscape.com/viewarticle/760714

I think it was a few days before. He does them every 21 days. The PEX was November. His thyroid was high too.

Got some new blood work. His IGA is low. Emaied MD waiting for answer. Vitamin D very low too. Hummm

We have bcbs too. Have been getting ivs for 2 1/2 years under immune defiency fx

Hi. Where did they put the port. My son is 17. We had PEX in nov. 5 days. How many days did u have.?

Hi. Where did they put the port. My son is 17. We had PEX in nov. 5 days. How many days did u have.?

Dan has been spending alot of time in his own head talking to himself when hes watching TV especially American Idol. Its like hes watching it but watching soething else in his head .So annoying to me (I know) .Anyone have any cure (lol) suggestions? Thanks Melanie

My friend calls itncellation. She uses seeds and gold balls

spoke to my friend she know nothing about it.Send me the article ill forward it to her

Hi Danny gets .60 grams IVIG every 21 days as a matter of fact we have an infussion tonight .He weighs about 145 skinny guy) Hes been getting them for over 2 years .He definitly starts acting a little more off right before the next infussion.His immunologist would bumkp it to every 2 weeks if i would allow it.I never did high dose always have done the same .60 grams.His Neuro and Immuno say the same thing,same dosage.He did have 5 plasma exchanges in Nov and were probably going to do it again in the summer.

My good friend is an accupuncturist(sp) Ill call her in a few and get back to you

Ok dr j has upped his doxy to 100 mg bid. So let's see how things go.

Ok dr j has upped his doxy to 100 mg bid. So let's see how things go.

well that is amazing.He did try minocycline several times and it was a nightmare horrible behaviors.I was scared to try the doxy but im very happy right now and so is danny.Dan does have aspergers so Im seeing alot more socialization and by the way so does his teachers.Appropriate on topic .Im sure its a combo of all but hummmmmm