sherrysunshine

Hi Zoe, I'm so sorry to learn of your little one's suffering but I think you are on the right track with the naturopath and natural remedies. My daughter, who just turned 18, has had bouts of twitching, mainly her eyes, since she was around 7 years old and she has never been on anything other than natural remedies. I also consulted a naturopath and she has taken up to 400 mg of magnesium per day. He did a "spectrocell" test, which showed her various deficiencies, and he prescribed mainly mag. zinc and B vitamins, which helped her tremendously. Thankfully, she did not suffer the mouth ulcers but I would think that zinc would be beneficial for that. My daughter had been doing really well, with little or no symptoms, and she has not even been taking vitamins because having been forced to take them when she was younger she absolutely hates them now, however, having recently experienced some stressful situations the excessive blinking/twitching and slight eye rolling movements have begun happening again. She has also not been sleeping well and has been somewhat depressed but today I was able to get her to take 250mg of mag. which has a calming effect and which I hope will show good results at this stage. I pray that she will continue to take it. I hope that this info will help but let me know if I can assist you further. Blessings, Sherry

Welcome on board Peggy. You are in the right place and will find answers and many friends here. Definately the Environmental Doctor is the way to go. My daughter has had a transient tic disorder, off an on, and we have had great results with such a doctor who is also a DO. She takes supplements and we have definately seen the positive results. She is on magnesium, taurine, zinc and B vitamins and thank God she is doing quite well now. I know how upsetting it is to watch your child struggle but there is hope. It is not easy and you will feel overwhelmed with all the information but after a short time you will be able to sift through it all and find the answers you need. If I can be of any help to you please feel free to contact me. All the best to you and your child. Sherry

Hi Michele, Our kids have special needs and it can be a scary place to be. However, being scared can be a good thing in that you will be more prune to ask questions, research etc to be convinced that the treatment being suggested is the right one for your child. Basically, I think if we find ourselves feeling uncomfortable or with more questions than answers then is the time to put up the stop sign. To answer your question about the DO, the simple answer is that a DO is an Ostopathic Doctor. If you visit the following website you can learn more: http://www.osteopathic.org/index.cfm?PageID=ost_omed but the following is a quote from the site for ease of reference: " .... You are more than just the sum of your body parts. That’s why doctors of osteopathic medicine (D.O.s) practice a “whole person” approach to health care. Instead of just treating specific symptoms, osteopathic physicians concentrate on treating you as a whole. Osteopathic physicians understand how all the body’s systems are interconnected and how each one affects the others. They focus special attention on the musculoskeletal system, which reflects and influences the condition of all other body systems. This system of bones and muscles makes up about twothirds of the body’s mass, and a routine part of the examination D.O.s give patients is a careful evaluation of these important structures. D.O.s know that the body’s structure plays a critical role in its ability to function. They can use their eyes and hands to identify structural problems and to support the body’s natural tendency toward health and self-healing. Osteopathic physicians also use their ears to listen to you and your health concerns. D.O.s help patients develop attitudes and lifestyles that don’t just fight illness but also help prevent it. Millions of Americans prefer this concerned and compassionate care and have made D.O.s their physicians for life. Hope that helps to give a better understanding of what DO's are all about. No, nystatin was not prescribed for my daughter and is usually used to treat yeast type infections. We did have amino acids and vitamins compounded specific to her needs, based on the results of the spectracell test and her symptoms. We also did allergy testing and administered a short series of allergy shots, also based on the results of those tests. Did the DAN identify a problem with metals in your son's system? I'm not very familiar with chelation therapy and no my daughter hasn't had it. If I can be of any other assistance feel free to post! Sherry

Hi Michelle, Yes we did all of the supplementation and it worked, but I know it can all be overwhelming. However, most supplements come in capsules and many are obtainable in power form so you can try combining in juice etc, which makes it much easier. It is what I did when my daughter was much younger so you may want to speak with your doctor about that approach. Our doctor did the spectracell test - http://www.spectracell.com/ - and was able to determine her exact deficiencies and guaged supplementation accordingly. She will be tested again soon but we have to travel to her DO and so in the meantime she is taking Super Vit. B by Allergy Research Group, Zinc Plus by Klaire Labs, P5P Plus Pyridexal 5 Phosphate (vit B 6) with magnesium also by Klaire Labs. Next week we will add taurine and a good multi vit/mineral and see how it goes. Our DO also suggested Borage oil caps instead of fish oil as his experience is that kids tend to be less sensitive to it. I haven't seen Borage mentioned on here and wonder if anyone has had experience with it? Sherry

I think Sunflower has hit on something here. My daughter, now 14, has been experiencing a neck tic (nodding motion) since August as well, having been given her MMR booster in July. It went away for a few weeks in September after putting her on magnesium and Vit B supps but returned again in Oct. I truly believe that many of our children are much too sensitive for vaccinations and hence the symptoms they experience afterwards. It is very upsetting to me that we are legally forced to give vaccines. However, I agree with Sunflower that you should find a good DAN doctor who I am sure will be able to help. If it is any consolation, my daughter started having excessive eye blinking around the age of 6/7 and after much prayers and research I found a wonderful doctor (DO)who tested and treated her for allergies and vit/mineral deficiencies at age 11. After a short while the symptoms went away and she had been fine since, until the MMR booster vaccination this summer. We are now consulting with her doctor and I will share results on this forum. In the meantime, I am so grateful to have the support of this wonderful community of caring individuals with the common goal of "our children's wellness". God bless Sherry

Hi, This is such good news Pesosmom. I am very happy to read of your good results and pray that your child will have complete healing. Your post has also been very encouraging for me as since mid August my 14 year old daughter started the same head nodding like she is saying yes and also does it side to side. Someone else described it well, "... head nodding as in saying yes and trying to crack her neck at the same time". It is very odd and it just started out of the blue with my daughter. However, in mid July she had to have her booster shots for school, as well as a mengitis vaccine, and I am now wondering if those caused this to happen. You will see from my previous posts that my daughter suffered from excessive eye blinking some years ago but, thankfully, that just about disappeared! In the past I have noticed her flexing her stomach muscles as well but didnt' realise it could also be a tic! I read on here that others have seen the same thing happen. This new head nodding etc is such a worry. In late August/early September I put her back on some of the supplements that helped for her eye blinking - Super Vitamin B Complex by Allergy Research Group, Klaire Labs P-5-P Plus (Pyridoxal 5 phosphate with magnesium) and Klaire Labs Zinc Plus (all natural vits. with no added dyes or preservatives) - and these helped initially, along with massage sessions, and the nodding subsided. However, over the last two weeks it is back again and I am not sure what else to do. She was on mid-term break and was watching TV excessively and I believe it contributed to this happening again. She had two massages this week and I have been making sure she takes her supplements (she will sometime not take them and pretend that she has because she hates it!). Yesterday her head movements were pretty bad and I am worried sick. I know it is all stressful for her too. She is a sweet and quiet girl (tends to hold things to herself) and I worry about her personal stress levels and the emotional effect it is having on her. The magnesium in her tablets is only 100 mg and at this age she probably needs more, so I think it is time to consult the doctor again and I will ask about adding taurine. In the meantime, any advice anyone can offer me will be welcome! Thank you all for sharing and for being there. Sherry

Hi Cheri Just a quick question regarding your use of vitamins, minerals, etc as per your earlier post: "We have seen my son's tourette and OCD go from very severe to mild over the 3+ years that we have been using supplements(vitamins,minerals,amino acids,herbs) and other alternative therapy." I was wondering how you were able to determine the right dosage for your son? Was this on the advice of his doctor? If so, did you do specific tests to determine what supps were needed? My daughter is 11 1/2 and she is now taking GNC's Animal Parade Supplements. I've read, however, of the benefits of the B vitamins and magnesium for tics but I'm unsure of how safe it is to give her more than is in the supplement she is currently taking. Thanks! Sherry

Hi all Re your query Guest_efgh when, when my daughter was having the blinking twitch her mouth twitched slightly to one side as well. The doctor explained to me that because the various muscles of the face are all interconnected, one will pull on the other. (Pretty logical I think). Regards Sherryl

Welcome back Claire. I wish both you and efgh success in your investigations of Body Talk. My daughter continues to do well and I'm praying for permanent relief. I'll keep you posted on our progress. I thought I should mention that there is an interesting article in the June '04 issue of "let's live" (health and preventative medicine mag) titled "get rid of allergies without a prescription." Interesting read. Sherry

Hello Gina and all, Re Allergy treatments, may I refer you to my post of today's date under the "A prayer that has helped me" thread. I posted there regarding the remarkable help my daughter my daughter has been receiving for her allergies. Perhaps it will help you. Regards, Sherry

Hi again! Well praises everyone! I'm very happy to report great progress in my daughter's healing re the facial tic she had been experiencing. Thank you for the many prayers and please keep them going up. efgh I took my daughter to a qualified Medical Doctor (GP) who has also been trained as an Acupuncturist and is a BodyTalk practitioner (information on Body Talk can be found here: http://www.bodytalksystem.com/index.cfm). The doctor was able to detect from examination of my child's eyes that there were clear signs of an allergic reaction including "allergy shine" (dark circle under the lower eyelid) and a kind of sandpapery look inside the lower lid. The Doctor used Body Talk to detect what she could be sensitive to and an allergy to corn and pollen from a certain tree was detected. As a result Opticrom Allergy Eye Drops were prescribed to be used 3 times per day. We are also eliminating corn and corn products from her diet for approx one week and thereafter the offending veg will be re-introduced into her diet. By the end of that time she should be desensitised and able to eat the offending food without reaction. Thus far, by the second day in fact, there was a marked improvement and I continue to see progress being made. To answer your other query efgh the main tic was around her eyes with some movement at the corners of her mouth. The twitching has greatly subsided and I only saw a few minor twitches today. As I said, we are extremely grateful. Go is good. Without question I would strongly encourage everyone to look closer at BodyTalk. I know most definately that it works, not only with my experience this time but, in fact, approx 2 years ago my daughter had a strong allergic reaction to something and broke out in hives which would not go away. After all sorts of unsuccessful treatments and prescriptions, in desperation I called a BodyTalk practitioner and within 2 days the allergy disappeared and has never returned. Please note that BodyTalk is non invasive and neither is it an allergy test as such. Many people have been desensitized through BodyTalk and are now able to eat the foods which would previously cause them harm. The following quote from the website menitoned above gives a good explanation: "BodyTalk is an astonishingly simple and effective form of therapy that allows the body's energy systems to be re-synchronized so that they can operate as nature intended. Each system, cell and atom is in constant communication with each other at all times. Through exposure to the stresses of day-to-day life, these lines of communication become compromised, which then leads to a decline in physical, emotional and/or mental health. Reconnecting these lines of communication then enables the body's mechanisms to function at optimal levels, thus preventing disease and rapidly accelerating the healing process. BodyTalk can be used as a stand-alone system to treat many health problems, or seamlessly integrated into any health care system to increase its effectiveness and promote faster healing. BodyTalk's major assets are its simplicity, safety, and the speed of its results. It is non-invasive, objective in application, and works effectively on humans and animals alike. Even if a BodyTalk technique is performed incorrectly, it simply means that there will be no result or change. It will not make things worse. It follows, therefore, that anyone who receives BodyTalk has nothing to lose and everything to gain as far as their health is concerned." Here also is a testimonial from an individual who benefited from BodyTalk: " I had a neurological disorder called blepherospasm for over 5 years which is now gone after seeing a practitioner several times. There are thousands of people who suffer from this disorder who I think could be helped too. There is no known cure and the only way to live a semi-normal life is to get Botox injections every 6-8 weeks. This is painful, possible harmful, costly and never really made the symptoms go away." Hope all of this is helpful! God bless you all, Sherry

Hello all, I'd like to encourage anyone who is open minded enough (and I get the impression most people on here are!) to seriously look at "Body Talk". While this is not a medical test you will receive indications of sensitivities. Just be sure to find a well experienced practitioner. The one I took my daughter to is a qualified medical doctor who is also trained in acupuncture and and Body Talk Systems. I know definately that for allergy treatment Body Talk works. Just thought I would pass that along. God bless, Sherry

Hi again! Thank you Cheri! I am so very grateful for this ever supportive community here. Please keep the prayers going up as today I can see a marked improvement in my daughter's symptoms.Thank God! The blinking etc is no where near as bad as it was yesterday. The doctor said it would take about three days and today is only the second one. This is another example of how God answers our prayers! Thanks again. God bless, Sherry

Thanks Chemar! The doctor visit went really welly. It turns out that my daughter has a sensitivity to corn and the blooms of a stree whcih are currently blooming. The doc thinks that the severe blinking she has been having is to do with allergies amd she is now on eye drops. The doc pointed out as well the evidence of allergies : allergy shine. So hopefully she is corect and this will completely healed and over it rapidly. Thanks again for all the support! Sherry

Hi Karen, I found an interesting website recently, www.drrapp.com. I don' t think Dr Rapp is in DC but might be able to offer beneficial advice re what you are seeking as her interest is in environmental concerns. Good luck! Sherry