LNN

Thanks everyone. At our appt., my daughter's nose was more pale and runny, looking very "allergic" as opposed to infected. It's the height of ragweed season here. I guess allergy shots for the past 14 months are working, since ragweed is one of her highest triggers and she hasn't had any outward symptoms (no itchy eyes etc). So the nose symptoms seem to be part of that. I asked about a xylitol spray and he felt that would be too irritating at this moment. So we'll do some quercetin as needed and just keep an eye out. As an update to our other issues, we'll be testing for KPU, since her brother has it. We'll also be adding NAC to see if it helps with some of her anxiety-driven behaviors and re-starting bactrim, which we stopped in June. We spent a lot of time discussing bio-films and parasites, especially those that hang out in the plaque of CCSVI MS patients. Every time we focus on DD, the conversation comes back to parasites. She's taking mimosa but I see no changes one way or the other. Our LLMD is hesitant to do ART or even trial "let's see what happens" treatments for biofilms or ivermectin for parasites given DDs small size and age. There's a Fry test for the protozoa FL-1953, but it's $500. So it's on the table but first we'll look at KPU and build up her own immune system. Then see what remains. It's frustrating to not have a more definitive path, but I can't argue with the need for caution. I've seen my son get really sick from herxing and he's 3 years older and not petite like she is. We don't need any medical crisis on top of what we've got brewing. She's too little for many of the treatment options anyway. So we wait and see and hope Core will help her the way it's helped my son, if the KPU test comes back positive. Thanks again to everyone who's offered advice and friendship.

We never had any adverse effects from bactrim, but some people have sensitivities to the sulfur in it (or is it sulfa?). Don't know much about it but thought I'd mention it as something to look into. My kids are too young to use a cycline abx as their teeth are still developing. Given your daughter's extreme sensitivity to so many things, it's possible the low dose path that you're on may need to be the norm for her. If her symptoms are manageable, it may be a matter of riding out the storm. I would also make sure she's doing a lot of detox.

I posted last week about needing ideas for DD6 - labs show chronic infection, but abx so far are just keeping things at a low boil. Her physical symptoms are vague, not very lymey. She doesn't even have "true" OCD in that there's lots of intrusive thoughts telling her she's bad at things, has no friends, etc but no compulsions. Just the thoughts. We see the LLMD this afternoon. I'm going to ask to have her tested for pyroluria, since DS9 tested positive. But she's also had a bloody nose a few times this week. No gushers, just blood when she blows her nose. We have a cheap otoscope and when I looked in her nose yesterday, it's very red and raw. Has me wondering about MARCONS. But before I go into the appt, I was hoping for some feedback. For those of you who've gone down this path...how was it diagnosed? Nasal swab? ART? Trial of treatment? Has the BEG spray been effective? Is it expensive? What have you used, what have you experienced? Thanks for any info.

MedWatch logoMedWatch - The FDA Safety Information and Adverse Event Reporting Program Celexa (citalopram hydrobromide): Drug Safety Communication - Abnormal Heart Rhythms Associated With High Doses AUDIENCE: Psychiatry, Cardiology ISSUE: FDA notified healthcare professionals and patients that the antidepressant Celexa (citalopram hydrobromide) should no longer be used at doses greater than 40 mg per day because it can cause abnormal changes in the electrical activity of the heart. Changes in the electrical activity of the heart (prolongation of the QT interval of the electrocardiogram [ECG]) can lead to an abnormal heart rhythm (including Torsade de Pointes), which can be fatal. Patients at particular risk for developing prolongation of the QT interval include those with underlying heart conditions and those who are predisposed to low levels of potassium and magnesium in the blood. Studies did not show a benefit in the treatment of depression at doses higher than 40 mg per day. Previously, the citalopram drug label stated that certain patients may require a dose of 60 mg per day. The citalopram drug label has been revised to include the new drug dosage and usage recommendations, as well as information about the potential for QT interval prolongation and Torsade de Pointes. See the FDA Drug Safety Communication Data Summary for additional information. BACKGROUND: Celexa (citalopram hydrobromide) is in a class of antidepressants called selective serotonin reuptake inhibitors (SSRIs). RECOMMENDATION: Citalopram causes dose-dependent QT interval prolongation. Citalopram should no longer be prescribed at doses greater than 40 mg per day. Citalopram should not be used in patients with congenital long QT syndrome. Patients with congestive heart failure, bradyarrhythmias, or predisposition to hypokalemia or hypomagnesemia because of concomitant illness or drugs, are at higher risk of developing Torsade de Pointes. See the FDA Drug Safety Communication for additional recommendations for healthcare professionals and patients. Healthcare professionals and patients are encouraged to report adverse events or side effects related to the use of these products to the FDA's MedWatch Safety Information and Adverse Event Reporting Program: Complete and submit the report Online: www.fda.gov/MedWatch/report.htm Download form or call 1-800-332-1088 to request a reporting form, then complete and return to the address on the pre-addressed form, or submit by fax to 1-800-FDA-0178 Read the MedWatch safety alert, including a link to the FDA Drug Safety Communication, at: http://www.fda.gov/Safety/MedWatch/SafetyInformation/SafetyAlertsforHumanMedicalProducts/ucm269481.htm

PMd you

We had Pex in 8/09. My son had undiagnosed lyme/bartonella at the time, so the Pex remission didn't last very long. It did however, get rid of serious tics (the other kind). So no regrets but not our long term solution. He has recently been diagnosed with a zinc/B6 deficiency known as pyroluria and is significantly improved since starting supplements for the condition.

Your son will not be "unvaccinated". There are T-Cell antibodies that are in circulation as a result of current or recent infections and there are B-Cells (memory cells) that stay in your body forever, with the recipe to make new T-cell antibodies whenever your body encounters an infection it's had before. So when he had a vaccine for measles, his body learned how to make both B cell and t cell responses to measles. The T-cells eventually went away. The B cells to fight measles are still there. Pex will remove a large percentage of T cells - both auto-antibodies associated with pandas and most other t-cells associated with recent infections. However, your body can quickly make new T cells in response to exposure to new germs. So we were told DS was fine to go out into the world the day we left the hospital. (We did try to keep him home for a week but that was partly to allow the puncture wound to heal). I can't see why you'd need to keep him home for months. I would also hope he'd be on prophylactic abx afterward. Pex would remove auto-antibodies from a past strep infection. But getting strep again would undo the benefits of Pex because new auto-antibodies would be made from the B-cells, which you can't really get rid of without shutting them down in the bone marrow where B cells are made (tho some Drs feel aggressive and frequent HD IVIG may re-train those B-cells. IDK).

Can you share which bands were IND or positive? No, being on abx will not mess up the basic lyme panel. However, as philamom noted, your best bet is to wait awhile. The half-life of IVIG antibodies is roughly 3 weeks. So for every week after that, you'd get a truer picture. However, hearing you on the expense...if certain specific bands are IND on your first test, some docs would not require a second test to make a clinical diagnosis or at least a willingness to try a lyme protocol. I think it's more a matter of whether you need the additional test to reassure yourself or if the current test gives you enough to feel that pursing it is reasonable.

PMd you

We did Pex and had relief for about 6 weeks. Then saw a backslide. Lyme was likely there prior to Pandas. We then went up and down for 10 months and tried IVIG. When that didn't work, we found lyme. The one thing Pex did was get rid of tics, which had been severe. DS went 18 months tic-free after Pex despite ups and downs with other symptoms. The tics returned for about 6 weeks this spring when we tried tindamax and stopped when we stopped the cyst-busting. I don't think you can use a response to Pex to rule lyme in or out. If I could do it all over again, with perfect hindsight, I would have done a slew of blood work prior to either Pex or IVIG. I'd have looked at the HLA DR gene, the inflammation markers for mold, a urine test for pyroluria, blood work for immune complexes C3a, C4a and C3d, CD57, and maybe some others. I don't regret Pex - it was a positive experience and did get rid of tics, which was a huge benefit. But draining 15 vials of blood would have been more helpful than doing the heavy guns without this information. You may still get a picture where Pex makes sense for your son. But had we done the tests early on, it might have saved us significant time and money.

I can certainly understand your anxiety. To have your family held hostage by OCD is a horrible experience. I think the team in Florida will be able to really help you view things in a new light. However, they will also realize that OCD for a Pitands kid is exceptionally hard. There are some on the forum who do regular HD IVIG for their kids who started on the Pandas path and are now on the lyme path. However, in my own experience, when my son was in a bad place, being more aggressive with treatments has always backfired on us. It was more than his body could handle. It's very possible that the decline you're seeing is a herx. But when my son made progress and then backslid, we needed to dig deeper. Now sit down, because this will make your head spin. Because at this point in your journey, you finally got your head around Pandas and then had to make room for lyme and co-infections. Now I'm going to mention other things that you can look at and you'll think to yourself, OMG, these people are nuts. All they do all day is find more stuff to test, worry about, treat...do I really want to go there? But there are two kinds of sick people with lyme. Those who get sick and take meds and then get better and go on their merry way. And then there are those who just stay sick when the same meds maybe work at first and then stop working. The chronically ill. It's gut wrenching when you reach a point in treatment where you realize your child might be in the second group. It's possible HD IVIG would help your son. But before you go down that road, especially if the cost will be out of pocket, you may want to run some lab work to paint a better picture. First, there's a genetic test called HLA DR. 25% of the population have the HLA DR4 gene that makes it very difficult for them to handle lyme. It's because of this group that the lyme vaccine in 2000 failed. Way too many people had an adverse, sometimes crippling, reaction to the vaccine because of their genetic makeup. This isn't "out there" medicine. You can find research on Pubmed and prestigious journals. Other HLA DR gene variants make it hard for people to handle mold toxins. So knowing your son's HLA DR genetic makeup can help determine how aggressive you can be in treatments. The second thing that can keep someone chronically ill is mold. You can find a good introduction here: biotoxin pathway and here http://www.survivingmold.com/diagnosis/the-biotoxin-pathway There are a half dozen families on the forum who have found mold illnesses and when they remediated the mold, their children made significantly more improvements. There are several markers you can measure in blood tests to let you know if mold might be a factor. Another possibility is a condition known as KPU or pyroluria. http://betterhealthguy.com/joomla/images/stories/PDF/kpu_klinghardt_explore_18-6.pdf It's essentially an inefficient use of zinc and B6 with or without the added complication of heavy metals. A few of us are treating for this and seeing good improvements. (this is detected with a urine test) And some are able to just slug through it and eventually see the light of day. It's an incredibly long journey for some and when you add in the pain of living with crippling OCD, it's brutal. There are many different experiences with HD IVIG here. No one can say if it would be helpful for your son. Only you can do a gut check and see if it makes sense as a next step. I only wanted to let you know that there are also other things you can test for beforehand that could guide you before you make the larger decision on IVIG. I'd ask your LLMD about these things and see what sort of feedback you get. Best of luck with your decisions and with your trip to Florida. I hear nothing but good things about the program.

This is a tentative "good news" update, at the risk of regretting this post. But for those contemplating KPU, or struggling with big brain fog, wanted to share some positive news. DS9 tested positive for KPU in July. We started 30 chlorella + Core 3 weeks ago. So we're just entering the time period (3-6 wks) where things could go south. But...for this moment, things are so so good. Last night we had a 2 hr. talk where it was like talking to the sharp kid I lived with 3 years ago. He was so "present" in the moment. Instead of talking across the static, he was clear as a bell, and he grasped very adult concepts. Best of all, he was happy inside. There's a steadiness about him that I can't explain. Like I said, it's way too early to be posting about this. But I've had so much support from my friends here and it would take too many PMs to share with everyone. What's working for us may not work for everyone. It's truly a journey of finding the puzzle pieces that are right for your unique situation. We still undoubtedly have a long journey ahead. There's still some mold investigation to be done, still some probable biofilms to be tackled. But for us, something as basic as minerals and vitamins have proven to be a missing piece. Something we never would've found by staying on the purely allopathic path. So to everyone who's given support over the years, a big thank you!

I stumbled onto this just now. Don't have time to watch until later, but the titles caught my attention. Wanted to post the link so I don't lose it. May 2011 conference "The Challenges of Lyme Disease: Emerging Research and Pediatric Care", May 2, 2010

The conventional wisdom in the general medical community is that it's poorly absorbed orally. But there is a train of thought in the lyme community that liposomal gels allow oral glutathione to be better absorbed, as Michael suggests. Only you can decide if it makes enough of a difference to warrant the cost. Both of my kids have taken Essential Pro liposomal glutathione for about 7 months. Prior to that, my son had taken alpha lipoic acid (ALA) which is a precursor to glutathione and he said he felt the glutathione pill worked better. However, as we've added other supplements and as our financial situation has changed, this is no longer an option. With our LLMDs blessing, we'll now be going back to ALA and alternating between ALA and NAC (N-acetylcesteine). Both are precursors to the body's own glutathione, as is vitamin D. However, ALA is supposedly head and shoulders above the rest in terms of glutathione production. Our LLMD only uses ALA but we will be alternating with NAC because NAC has other brain benefits as well as OCD benefits. So we'll do every other day of each and see how it goes. You can find ALA and NAC from NOW brands on the GNC website for under $20. What I like about NOW is that it follows GMP (Good Manufacturing Practices) for the supplement industry, meaning it follows high standards and actually contains the amounts of stuff the label says it does. Not all well-known companies use GMP. You can find some good background information here: ALA and NAC I have other articles on NAC for OCD if that is also an issue. The other detox supplement that I highly recommend is milk thistle, assuming you don't have a ragweed allergy or aren't taking certain drugs with which milk thistle is contra-indicated. milk thistle. A partial list of things that preclude you from using milk thistle is here contra-indicated On this list, you'll see some anti-depressants, anti-anxiety, anti-tic meds. You'll see valium, which is derived from valerian root, which some on this forum take for anxiety or sleep. So just be aware. But it has made a huge difference for us. Finally, frequent bowel and kidney functions also go a long way in detox, as do binding agents (activated charcoal, bentonite clay, chlorella). You can search older threads (maybe the april-may time frame) for additional discussions.

Out of all the things you mentioned, the bathroom renovation stood out to me the most. Not from the glue, but for mold. If your husband saw any mold while he was working, you may want to investigate/remediate. It can have a big negative impact on health and make existing chronic illnesses much worse. You may want to check out www.survivingmold.com for additional info.

Their US location is in NJ - the fed ex to Norway would be a killer!

If you're already considering an LLMD to pursue the lyme results, you can ask if they test for/treat KPU when you call to ask about an appt. If you would rather test first, I'd approach whoever signed off on your Igenex testing. You can download the order form here: KPU test (form is in the upper right corner) There are specific instructions not on the form if you want to follow Dr K's protocol. If you get this test thru an LLMD, he/she can provide it. If you get a GP to order it, PM me and I'll get you the details. You need to be off of vitamin/mineral supplements for 5-7 days before testing. You can stay on abx, probiotics. If you decide to approach a Pandas doc or GP about this, one approach you can take is to ask for a standard lab for vitamin/mineral profile that includes zinc, copper, magnesium etc (maybe have them also check vitamin D). This "should" be a simple, non-controversial request, saying you just want to rule things out, based on your personal experiences etc. Then sneak in the KPU test and say BTW, just humor me and let me spend my $70 to do this urine test too. When I went to look for other things that had flagella (band 41), I found syphilis and H Pylori. But I believe 39 and 31 are lyme specific. If symptoms are present, then it would seem you have enough suggestive evidence to consider treating. oh - in regards to trying a trial on your own...I don't know that it's irresponsible in the doses you mention, for a certain period of time. My concern would be if you decided to do it longer term, I'd think having lab numbers to guide you would be a good thing. You need to periodically check copper levels when you supplement with zinc, as zinc is a copper agonist. The other concern is that if the issue is KPU and not simply a deficiency (pyroleuria), then the heavy metals become a potential fall-out. If you decide to do a trial without testing for KPU, it would be wise to add chlorella into the daily schedule as a way to soak up toxins. The problem is that for KPU, you need to take 10 chlorella pills with each meal (so 30 pills/day). If you take less chlorella, you actually feel worse (more nausea) than if you take 30. So if you're looking at telling your child he needs to take 30+ pills/day, you reach a point that you probably want to have a lab result to make you feel better about making him do it. (I get to say "because Dr Tom said so" which is better than "because your mother is a paranoid nut job who spens too much time on forums!") FYI - Mercola has the best quality/price ratio I've found so far.

There are several families on the lyme forum who are following a KPU/pyroleuria protocol (including my son). If anyone is interested in details, you can post there. There is a mega-supplement called Core from Biopure that is often used as a way to reduce the number of pills you have to take (sheer quantity of pills can become a big issue in lyme treatments). Here is the primary article on the subject: KPU It is somewhat dated (written before Core was available). So some of the treatment protocol has changed and I would not recommend following this without the guidance of a doctor and without having done the KPU urine test from Vitamin Diagnostics beforehand. Too much of any vitamin or mineral carries risks of toxicity. So it's not something I'd feel comfortable supplementing without lab numbers to guide you. KPU cannot be detected with blood work. It's not a condition of lack of zinc in the blood but rather an inability to efficiently utilize that zinc. There may be adequate blood levels but much of the zinc gets excreted without being used. As far as I can tell, the difference between KPU and pyroleuria is that both are due to the ineffective use of zinc/B6 et al. Pyroleuria is like having a gun shoot blanks at an immune problem. KPU is the same condition except it carries the added burden of heavy metals, where the body has grabbed mercury or other metals in an attempt to make up for the lack of available zinc. So, a gun firing mercury instead of bullets. The danger in treating KPU without medical guidance and a chelating absorber is that when you give the body the good stuff, it will drop the mercury in favor of the zinc but then you have mercury floating around in the body, ready to be re-deposited. So you need to add stuff to soak it up and remove it from the body - clay, chlorella, DMSA, etc. It has, so far, made a significant improvement in my son's situation, but we're only now approaching the 3-6 week mark where things can get hairy with metals issues. Too soon to declare victory. This isn't something I'd try to treat with supplements without guidance. I doubt "main stream" doctors will buy into this. The only research I could find on it was 30 years old and related to schizophrenia. The research was mostly abandoned once it failed to show a direct link. But this was back when ulcers were thought to be caused by stress and when no one was yet connecting infections and mental health. A few doctors have taken it back up and pursued it. But not in double-blind research trials. So it would be a leap for anyone outside the DAN/lyme medical community to go here with you. But...you never know. Zinc is critical to a well functioning immune system. It is a ying/yang element with copper. So mega supplementing with zinc requires periodic checking on copper levels. Nothing I've read indicates it's involved with sleep issues, per se. It is however, essential to the immune system, so I could see where addressing a zinc issue would have a cascading effect on the rest of the body. (Tampicc - FWIW - we've been told to take Core at dinner time, not in the morning. Not sure what other families are doing).

The asthma, the allergies, the immunodeficiency - makes me wonder about mold (aren't you so glad you asked? Yes, another thing to worry about ) Start here: www.moldwarriors.com and http://www.publichealthalert.org/Articles/scottforsgren/biotoxin%20pathway.html There is a genetic test you can do to measure the HLA gene that tells you whether you're more susceptible to mold toxins. It has to be done by Labcorp but is covered by insurance. You can also run C3a and c4a immune complexes - any commercial lab can run them and are covered by insurance. They can be suggestive of lyme and/or mold. General consensus is that if there's mold, it makes it very hard to recover from other illnesses. The mold needs to be addressed first. Read your other post on Pandas - you have a lot going on. If it were me, I would delay any decision on lyme or IVIG until you look at the mold. It could be a factor for your DD as well. If your doctor is willing and blood draws don't require heroic acts of courage and physical restraint, maybe run the above labs to see if it's worth pursuing. In the meantime, practice ERP with DS. My whole family sounds crazy to outsiders when we talk about worry fairies and breathing in the "yellow" (feel good) thoughts. But hey, I'm out to get thru the day, not impress people with my normalness. Dipping a toe into lymeland was quite scary for me. I mean no disrespect to any of my forum mates here. I say this somewhat tongue in cheek - but integrative medicine (in which I am huge believer) can take you to some very strange googling places. But what I've found is that minerals, vitamin imbalances, mold, metals, and bacterias all play a role in mental health. So take it one step at a time. But also consider "common threads". Mold would be something all your kids would be exposed to. So would other environmental issues. It's worth considering and is something that needs to be addressed before the other stuff or you don't see much progress. If the mold thing doesn't resonate, the other thing to ask is whether zith alone is the appropriate treatment for myco p. I'm not that familiar with it, but it may be a water pistol on the fire. Not sure.

I'm so sorry you're in this place. You do have several variables right now, so it may take a few more weeks to see what's what. Try to remember how much you've accomplished - you're getting abx in her - that's HUGE! The other supplements are a big step forward too, way bigger than just baby steps. You should be proud! No magic bullet comes to mind. You could ask Dr M to sign a medical form allowing your DD to take motrin during the school day to keep it from wearing off, reducing the roller coaster effects. Or see if you can get a liquid version of aleve, which lasts longer. I would encourage you to still do ERP every day, even if there are days she seems too unable to fight it. Reinforcing the concepts and skills helps, even when they don't produce immediate results. It's a mindset and the more you do it, the more it becomes natural. Maybe a skype check in with the wise people in Florida. Try to keep track of patterns. If you can journal, or give each day a numeric score, something to see whether things are getting better or worse. I used to email my BFF every day and save my sent messages. Then before a doctor's appt, I'd review them and it would be like reading a journal, and remind me of things I'd forgotten. I got friendship therapy and was able to keep a journal in the same step. Keeping you in my thoughts.

I think LLMD believes there's an infection he's just not sure what. No, we haven't done cyst busting. He doesn't seem convinced there's lyme and I don't believe bart requires cyst busting. Not sure. She doesn't have any symptoms of c-diff or giardia and we did a comprehensive stool analysis that came up all normal. Metals remains on the table. So does Bartonella. So does biofilms in my mind. DH and I discussed taking her off zith to see what happened, but then this week has been mid-month and she's spiking, so not the time to mess with anything. Her appt is next Thurs, so maybe I'll get brave and drop the zith this Sun. to see what happens. If she does decline, at least I can get perverse enjoyment from letting him see her at her worst, instead of sitting in his office describing a lunatic while my quiet, charming daughter sits next to me. Trouble is, her behaviors are internalized. She'll clam up, try to crawl back into the womb, act very shy. He won't see the she-devil wrath she can unload in private. You all know what I'm talking about, but I'm not sure he does. Thanks for the input. Any other ideas before next Thur always welcome!

We only tested for bartonella with Specialty Labs. Didn't do the Igenex panel. But DS was on 2 abx at the time. I would call Igenex and ask. There's an ideal world and then there's raging kid reality. If Igenex says ok to be on abx, then I'd do an experiment. Add supplements back in after urine tests and see what happens for a few days. Then add abx back. See which makes a bigger difference. One thing that worked for DS's rages was I would visualize the Tasmanian Devil (from Bugs Bunny) inside of him. When it came to a rage, I would remind myself DS was "possessed" and adjust my expectations accordingly. Obviously, safety of little sister first, then your safety and S's safety, then safety of belongings. Immeasurable patience. A punching bag or pillow to pummel. Then after the storm, a conversation about coping tools. CBT, ownership of emotions, etc. You know all this, I'm sure. But give me a shout if you need to vent.

We have an LLMD appt next week and I want to get my head around what else we need to look at for my DD6 and in what likely order. Note - this is kid #2 - not the kid I usually post about. We have high CamK, high anti-neuronals, high C3a, wicked high C3d complexes, episodic, monthly OCD and anxiety spikes. GI issues and poor diet. Endoscope and poop test negative for H Pylori, neg for celiacs. Some lyme bands but does not clinically scream lyme. We have negative strep titers, no physical evidence of strep, her OCD/anxiety had an immediate improvement when we started zith but no additional impact from bactrim. (She is allergic to amox family). She was treated with a bartonella protocol for 5 months with no change. I can try to advocate for a different abx combo. But with gut issues, I hesitate. I kick around cefdinir, but it would have to be liquid due to her weight and DS, who is also on it, sucks up $200 a month for his script. Another $200 would really hurt. She is very taste sensitive. Herbal tinctures would be out of the question. We have explored mold but at this point it doesn't look like that is it. She has taken mimosa for parasites for 1 month with no change up or down. So, what to look at next. I feel like the OCD madness is simmering. The zith and CBT keeps it mostly from boiling over but "it" is not gone. For 5 days a month, she becomes noticeably impaired from it. What makes the most logical sense in terms of next steps? Metals? KPU? Cyst-busting? Bio-film in the gut? If you chelate metals, does that also help with biofilms by robbing them of mortar? Is it possible there's lyme, held at bay either by her immune system and/or zith but then when bugs emerge from a biofilm to replicate, it's more than she can handle? She also spikes when she has a loose tooth. The added bacterial load seems to push it over the edge. I know I will bring all of this up at our appt. In fact, this post was as much to help me sort my thoughts as anything. But is there anything I'm missing? Anything that stands out, especially to anyone who's familiar with ASD theories/treatments?

Here's the link for helpful threads: http://www.latitudes.org/forums/index.php?showtopic=10804 where you'll find some links to articles interpreting the bands and interpreting clinical symptoms in kids. Not sure what sort of doctor interpreted your results - you will have to read the links, put it in context of your situation, and decide next steps. Bands 31 and 39 are significant, but only you can decide how significant. As I recall, this is not your sickest child. So I realize you may only have a limited amount of energy and financial resources. If your doctor is willing to treat the myco p. for a reasonable period (whatever that is) you may see improvement regardless of what label you put on it. I suppose it may depend on what course of treatment your son follows. If this were my son and I felt "something" were at play and other things had been ruled out, I would consider there results worth exploring. But again, it would depend on many things that you don't mention, such as how your son reacted to myco treatment, clinical symptoms, other things you've tried, etc. The lab results alone aren't enough to go on. JMO

I see no harm in suggesting someone see a doctor, especially if that person has come to a forum, has asked for ideas and is presumably old enough to vett information through their own research and with the follow up input of trained medical professionals. This guidance would extend to the risks and benefits of abx as well as other supplements and therapies (which are not risk free either). I would think that for "the ones that lyme treatment wouldn't be right", those people would find a better use for their time than participating on this or any other lyme forum.