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crazy

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Everything posted by crazy

  1. Yesterday was a pretty good day for having mild tic. Today doesn't look so promising. I notice he now grabs his chin to try to stop the tic. His neck makes an awful cracking sound when he tics. He said it feels much better after the tic. I may need to look into a chiropractor.
  2. What kind of doctor is giving the blood test to your on?
  3. Who do I see if it may be PANDAS? We see his pediatrician on Tuesday. Do they run a blood test?
  4. Thank you Chemar, I try my best to give my children a good life. I get upset when they are "suffering". I appreciate support from others, it's hard to talk to my own friends because they really don't understand. I think I will reduce screen time, not take it away. Have you ever heard of the impact ipod apps have on kids with tics? Also what is a good amount of magnesium to give to a 73 lbs. 10 year old? I started with 80 mg. of natural calm and that gives him a loose stool.
  5. My son woke up in tears because he can't use his ipod for games. He said he feels punished, I feel horrible. I feel his neck tic is so bad because he is always hunched over some game/computer. It started as a sore neck needing to use a heating pad to a tic. I am just trying to help him, I was thinking if he relaxes his neck he won't tic as much. I'm thinking I need to just really limit his time. I made an appointment with his pediatrician for next Tuesday. She also practices homeopathy. My other son saw only mild improvement using it. A friend of mine has a child with TS, and he uses homeopathy from same doctor with great success. My oldest son said to me today that he doesn't want to be known as the tic family. My stomach hurts and I just want to cry. That doesn't make me very productive at work. I would love any words of encouragement. I feel so alone, my husband is not very supportive. He loves the kids dearly but tries to avoid all the negative stuff.
  6. I have not been active on this forum since about 2010. My 13year old has had tics since he was 7. We did end up using topamax with great success. He also takes magnesium, p-5-p, multi vit, and sometimes l-carnitine. He usually has 2 flare ups a year. It's happening right now. My 10 year old has started with tics. He is doing a head jerk/shake thing and also a jaw thrust. At first I thought he was showing signs of allergies because he said his tongue would burn and itch. I don't know how to deal with this. I sometimes feel it is my fault because I must have passed on this gene (I have never had tics). I feel guilt! My son wants to go to the doctor to fix his new allergy (that what he calls it). I'm tired of people staring or asking questions. ,My kids are wonderful and deserve a life that is kind to them. My older son began with tics for the first time during the spring also. The first thing I'm going to do is take him to an environmental allergist. I've begun magnesium. As of today, no more video games and computers because it seems to agitate his neck. He is taking a magnesium bath right now. I'm sorry this is so long and I need to vent. I have read on several occasions that tics lesson beginning around 13. Does anyone have any input or advice? I could use some good news.
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