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lurker

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  1. Shannon, I have a 5-year old with minor tics too (since the end of September). I looked briefly at the link, and I believe they are different forms. The Kid's Calm is mag citrate and the Bluebonnet is mag citrate and mag aspartate. You mentioned that you are currently undergoing testing; I am too (organic acid and IgG). I would not make any major changes if you are waiting for results, as allergies might apply and render your new product useless. As far as the dosages you described, they sound like they are in keeping with what I have seen others doing around here. Tam
  2. Kallik, Bonnie's contain Grape seed extract, not Grapefruit seed extract. I don't really know much about either, but regarding salacylates, I am pretty sure that salacylates occur near the outer surface of fruits and vegetables. They are mostly concentrated in skins and leaves and stems. This is nature's way of protecting them. I would assume, and I am only assuming, that the seed, being the innermost part of the plant, would not be loaded with salacylate. As long as it isn't known to cause harm, I wouldn't worry about "been proven." Remember, sugar has not "been proven" to mak
  3. bcase, Do you know which lab the pedi used? By the way, congratulations on finding a pediatrician who listens.
  4. Bcase, Maybe you can have her T and D antibodies titered. If her levels are high enough you may be able to bypass the booster. I know a lot of boosters are given just to catch the minority of children who are not immune enough yet. I can't, however, imagine you can get your insurance to cover it though.
  5. Kallik, I think frequent urination is symptomatic of a lot of anxiety/stress disorders. Its even common for people without a disorder to feel the urgency of that "nervous pee" before going on stage or into an interview or taking a test. When I brought my first baby home from the hospital, my cat walked into the room, sniffed the air, and then peed for three straight hours. (I have pictures of the cat's bladder too.) Could he have been under any pressure or experiencing any stress after the tea? Had he been stressed out that day? Could it be a tic? As far as testing, I'd sti
  6. Wyattsmom, I've been there. I understand the fear, and the second guessing you talk about was a huge issue for me. I'm an over thinker too. When my son was diagnosed with a tic disorder, I began to attribute everything he did to that disorder. When we were in a parking lot, he stopped, bent down and touched the ground with one finger; then he did it again. I saw a tic. It turned out to be a four-year old boy who was trying to squish an ant. He didn't get the job done the first time. Fortunately, he showed it to me before I passed out! Here are some things that helped me. They m
  7. bcase, My son reacted within two days of his DTaP vaccine. This vaccine did NOT contain Thimersol. Personally I am more concerned with the adjuvant. An adjuvant is a component in a vaccine whose purpose is to create an exaggerated immune response.
  8. Kallik, I am eagerly awaiting results of my son's organic acid test. It is a urine test that is analyzed for about 65 things -- some nutritional and antioxident deficiencies, some neurotransmitter activity, some amino acid abnormalities, etc. Both CANDIDA and CLOSTRIDIA metabolites are included. I think it was about $200 and not covered by insurance. The lab will send the kit directly to you so you can get your sample at home. My five year old really enjoyed this test -- too much. tami
  9. Chemar, This is how I learned about "mommy stress": I was crying to my Aunt on the phone about my scrupulous food diary where I recorded his diet, his stress levels, and his tics, and how I could not after months find a single correlation. She suggested that I chart HIS tics and MY stress. I am ashamed to admit a slight pattern emerged. Today was his first completely tic-free day since the DTaP in late September, and now I have an appointment to traumatize him tomorrow. I'm not sure I'm strong enough. I am having horrible flashbacks to when he hid under the examining table in the
  10. Caryn, Thanks. I will use distraction and bribery. I am doing the Great Plains IgG. I think it was around $220. I paid the Doctor for it weeks ago. Thanks for the advice about removed items not showing up on the test. I called the lab and discussed it. Apparently the antibodies circulate for quite a bit longer than they have been removed from his diet. At this point things may be only slightly less reactive, all the more reason to do it now. I may have actually downplayed the part about being scared to feed him. Its bad. And one thing I have realized since this began is that "
  11. I just found Xylichew. It was $2.15 retail at my local healthfood store. Their website, Tundra Trading, claims the xylitol is 100% birch derived. So corn is not an issue. My little guy had not had gum in so long he was smiling so much he couldn't chew for a full minute.
  12. Caryn, I have been putting off IGg testing for weeks now because my little guy was steadily improving, then he had an exacerbation with a cold; so I didn't do it then. I think I'm making excuses because the blood draw for the strep titers was so stressful for him, I'm afraid another blood draw will set him back. He's doing so well now. On the other hand feeding him is such a challenge -- my naturopath already took him off wheat and dairy. I added corn and nightshades, which makes it an anti-inflammatory diet. By the way, I feel like we've been eating at Caryn's house for the last m
  13. wbird, You're right -- there is a huge gulf, and its a personal decision. For me, this is home. My son had a huge tic explosion within days of the DTaP. It triggered his disorder. I would at the very least wait until your boy is more stable before even considering this vaccine. He may have something in his system that it can aggravate. I am by no means the first person to report this phenomenon. I believe this vaccine is contraindicated in individuals who have previously reacted to vaccine or who have neurological disorders. Since your doctor suspects your son may have undete
  14. wbird, It is possible that your general practitioner has referred you to a pediatric psychiatrist because of some of the developmental issues you say your son experienced earlier (speech delay, social issues, adherance to routine, quirkiness). These are things that they see regularly. I don't think you will get any help for the tics there, though. And sadly, I think Faith is right about the neurologist too. I would suggest that you instead bypass the chain of referrals and see a specialist called a DAN Doctor. This kind of specialist can address all of the issues simultaneously,
  15. Jasminky, Regarding the finger picking, it COULD be a tic. Its also a common, legitimate habit that some of my adult friends indulge in. I think only time will tell. If it is a tic, I think you will see more and more of it, and it will appear a little less purposeful than a more typical skin picking, nail biting type of habit. I know how scary this is. In the early stages of my son's tic disorder, I hovered and spied constantly. If he did something once, I could imagine him doing it all day long for weeks or months. Needless to say, there were a lot of false alarms. Since most
  16. My understanding is that a beneficial yeast, for example Saccromyces B, is not harmful to the host; whereas an unhealthy yeast, like Candida, produces toxic metabolites that can wreak havok. I believe that when there is a large colony of beneficial yeast or a constant incoming supply, it competes for space and crowds out the other. If there is a serious Candida problem, I don't think that a beneficial yeast alone will control it. I think it is more of a maintenance and prophylactic strategy.
  17. Just wanted to add my $.02. If you have a reasonable suspiscion that strep was involved, I, too, wouldn't rule out PANDAS simply because a relative ticced. Personally I don't think they will ever find "THE ticcing gene." In some families it may be a mutated gene that is ineffective for dopamine uptake; in others it might be a structural difference in the ganglia; in others it might be an impaired ability to detox or a weak blood/brain barrier, or immune overreactivity, etc. I think Dr. Murphy's assistant has a point, Bmom. Even if your husband and son inherited an errant gene, i
  18. Kelly, I just went through this. I was in constant inner turmoil about finding a specialist. (They all seem to be on the wrong coast.) Then it dawned on me, the best doctor to see for tests is the one who will sign the slip. This will most likely not be your pediatrician, but rather a DAN doctor, Naturopath, or Environmental doctor. I, like you, already knew what tests I wanted. I also looked at the lab's websites for tests/costs/coverages. It took months to find the last piece of the puzzle, but ironically it was this simple: I googled "naturopath Los Angeles," and there he was a
  19. Bcase, I am not usually comfortable advising on matters like this, but since you asked . . . be strong. Somebody famous once said, "Vaccines are a lot easier to avoid than strep." Wait. Maybe I made that up. Tami
  20. If you have the orange-flavored Coromega packets like the ones wasting my cupboard space because I won't give them to my kid, it has sodium benzoate (I honestly have no clue about it, but sounds a little scary) and Vanillin, which I am fairly certain is a byproduct of the paper milling industry that is a very inexpensive vanilla substitute. I would give fish oil another try in a pure form. Tami
  21. Faith, He is in fact five (He may even share a birthday with "Tigger"). As far as knowing to request a culture and titer for strep at the rapid onset of a tic disorder, I learned that here! My pediatrician had heard of PANDAS, but never suggested the testing; it was done on my demand. (Testing was negative for strep.) I have been doing a variety of things for the last four to five months, and he is doing better. The throat clearing is gone. It was the most persistant single tic he's had. It lasted for three months. As it was winding down, it only surfaced at bedtime and during me
  22. Hi, Kim My pediatrician said the vaccine is completely unrelated. I believe it caused/aggravated/exacerbated the situation. Even in the face of credible evidence, I think the most they will concede is "predisposed genetic vulnerability." That's just a survival-of-the-fittest concept. Imagine if they used that defense for Chernobyl or Love Canal in explaining why some children got cancer and others did not. As far as firing the pediatrician, it had less to do with the "start drinking" comment, and more to do with the fact that I saw people here who found professionals in other fi
  23. I have been lurking here for some time now and thought I should introduce myself. It's actually quite awkward because I am a total stranger to you, yet for the past four months, I've gotten to know you and your children; we've laughed and cried together; and you have helped and guided me through the hardest time of my life. Thank you. I'll try to keep this breif. My son (4yrs at the time) received a DTaP vaccine on a Monday in late September. By Wedensday, he was "twitchy." By Friday, he was sniffing his fingers and clearing his throat . . . a lot! I took him back the following Wede
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