Jump to content
ACN Latitudes Forums


  • Content Count

  • Joined

  • Last visited

Everything posted by madhu

  1. Hi, Thank you to all of you who have responded. Sorry I did not see the posts till today as I was so busy these 2 weeks. Only today I am sitting in front of the computer. This was a difficult 2 weeks for me ....my son was bitten both by bed bugs and Ticks in one day that we were in DC. The welts he got from the bed bugs have started to go away. The bite marks from the 2 ticks are looking like 2 red dots but not expanding. I am watching them. My son is on Doxycycline 100 mg 2x day and I'll be starting flagyl tomorrow. My DAN doctor didnot know about tindamax, so he ordered flagyl. I've sent th
  2. Hi, We went to the North east area from Dallas to find a good LLMD and stayed in Washington DC for the last day ( 25th) in an apartment my husband stays( he works there and travels). On 27th,he saw a lot of bugs in the apartment and asked the apartment to eradicate them. They just told him it was bed bugs. On 27th here in dallas my son complained that he a lot of bite marks on his body and they look like they are bed bugs bites . I'm very scared here ....I have already opened the suitcases and left it opened for the last 2 days. Yesterday I cleaned all the clothes and dusted the suitcases out
  3. Hi, My friend's daughter got it about 7-8 months ago. They tried anti viral medicine which did not help, then they tried wheatgrass spray which helped a little but new ones would crop. It was all over her body.she went to India last month, someone advised her to apply neem leaf paste along with mustard oil. She did that for a week and all of them disappeared. She is fine now with nothing to tell that she had moluscum at all. She will be back in 2 days and I am waiting to see her. Will let you know in a few more days all the details. She also mentione that it has to be fresh neem leaves made t
  4. Hi Stephanie, I went cold turkey with diet when I read on latitudes forum about diet when my son started with TICS both vocal and complex motor tics. Then I started back things one at a time and found that milk caused him vocals. Wheat, from reading a lot about it , I dont think I will add it back at all. We found him to be allergic by both muscle testing and peptide test from great plains. We eat rice, lentils, vegs, fruits and organic chicken and sometimes in season wild caugh salmon. Thats all. I cook all the dishes at home. I think a claritin helps because....when kids have all
  5. Hi Fixit, The things that have helped us in our 6 year journey...They have not cured him but helped him to a point where he can function DIET : Big Help 1] Remove dairy and wheat: Removing dairy eliminated the vocals. Tried this many times in 6 years. 2] Removed all processed foods outside (not just HFC, colors, preservatives and additives) SUPPLEMENTS: these are the supplements I use during exaberations along with regular supplements everyday. 1]Magnesium calms him. You could do epsom salt baths everyday in the evenings. 2]Clariton helps with spring allergies and this helps
  6. Hi, It is the basic pael .. IgG , IgM and IFA. And it cost $260. You could also do just IgM and IgG for $200. From IGENEX. Madhu
  7. Hi, I got the Igenex results today. Those of you who have done this testing please help me to intepret the results. Should I do continue with testing for the coinfection panel? IFA 1:80 positive IgM igenex negative CDC negative 31 band INDeterminate 34 band INDeterminate 39 band INDeterminate 41 band ++ IgG Igenex negative CDC negative 23-25 INDETERMINATE 31 INDETERMINATE 39 INDETERMINATE 41 +++ 66 + Since so many bands were indeterninate ( weakly positive) and 41 being positive ...I was thinking should it not be positiv
  8. So is Dr T recommending treatment for Myco even though the IgM values are normal? Madhu.
  9. Hi, We just got the results for my son for Myco. P IgG is high 501 Ref ( 0 - 99) IgM is low < 770 Ref ( 0 - 769) Does this mean we still have to treat Myco. P or that it was a past infection. How did everyone dealing with Myco.P get the results? Did you also have high IgM values to treat it? Thanks, Madhu.
  10. Are you giving anti yeast medicine or florastor ( sacharomycis bouraldi?) which is a good yeast which keeps the bad yeast in check. I am doing zithro with diflucan and probiotics. Madhu.
  11. Hi, Can anyone recommend a good zinc supplement that does not cause nausea. I used kirkmans zinc but my kids always complain after taking that or sometimes throw up. Thanks, Madhu.
  12. Hi, Both my kids have PANDAS. My older son ( 10 yrs) got glasses with astigmatism and myopia which is increasing rapidly every 5-6 months. We dont have glasses in both mine and my husbands family. I believe it is because of the PANDAS .... My younger son ( 5yrs) started having PANDAS from last may. His symptoms were.. 1] joint pains 2] TICS 3] frequent urination 4] blurry eyes ( big issue even now) The blurry eyes ....he says that it happens for 20-30 seconds and cannot move during that time and it looks like an old fashion movie ( his words) It goes away if he blinks and it keeps
  13. Hi, Has anyone used LDN for PANDAS and did it help. It is supposed to modulate the immune system if used for a year. I am thinking of starting it after I tried FLAGYL next. Please tell your experiences with it. Thanks, Madhu.
  14. Hi, We are considering IVIG locally through our DAN doctor. Those of you who have done IVIG , can you please post the codes used by Dr K or other doctors. and if insurance covered it. Our doctor wants us to get preapproval and also the codes. Maybe if everyone who have gone through IVIG process can do a poll where they list the codes and if insurance covered it , we can see if there is a correlation. Thanks, Madhu.
  15. Hi, Last week I started giving probiotics for my kids and I noticed an increase in TICS immediately in my younger son. There was no strep strain in the probiotics. BACKGROUND of my younger son: Started with TICS last may 3 weeks after a strep infection which was treated with amoxicillin. I did you probiotics then too. After that we used zithromax and diflucan for 3 months along with T&A. (His Tonsil tissue had strep pneumoniae and staph aureus)This eliminated the tics completely. We thought the ABX CURED him because we started this soon. This lasted only 2 months. He got Pneumonia
  16. Thanks Chemar. My younger son is clearly a PANDAS kid because the symptoms started 3 weeks after a strep throat last year. I was very hesitant with IVIG and steroids too and waited this long. Thanks, madhu.
  17. Hi, Could someone let me know what steroid and dosage does Dr K give to all his patients. I have an appointment this afternoon with son's DAN doc and would like to get a prescription to try. He just started having sudden increase in tics for the last 2 days. Thanks, Madhu.
  18. Hi Dr T, My son also has a lot of bowel issues which started right after he started having TICS at age 4. Prior to it he had 4 courses of antibiotics. He is now 10 and still has severe bowel issues and underweight for his age. We are working with our 3rd GI who has promised to look at all the angles why he has so many bowel movements a day instead of saying he has IBS. He also gave FLAGYL to try for 14 days. I'll let you know how that goes. My younger son also started having TICs last year 3 weeks after a strep infection and this led me to PANDAS research....but I've always doubted if it
  19. Hi , How is everyone testing for LYME....are you doing provacation as is suggested in all the LYME forums. Thanks, Madhu.
  20. Thank you all for your replies. I am hoping it will help my son's gut issues. Please let me know if any other therapy helped your kids gut issues. DCMOM: My sons gut issues also started after he started TICCING at 4 yeats of age. It first started slowly as stomach pain, diarrhia now and then, slowly it developed now as frequent bowel movements every day. He goes the bathroon as soon as he eats. the stools are also not formed. The doctors dismissed these isuues as IBS. But I want to rule out IBD hence I am seeing a new gastro who is willing to rule that out or find what is going on. By t
  21. Hi, Does anyone have gut issues resolved with IVIG? We are considering IVIG for our kids this summer( hoping insuranse will cover) and would like to know if it will help my older kid's gut issues. Right now the gastro is testing him to see for IBD. I have not done the ABX for him only because of his gut. Thanks, Madhu.
  22. Hi, Since there is a lot of posts about LYME recently, I want to test my kids for LYME< BARTONELLA and MYCO. Could someone who has done them tell me whats tests to do and which labs do them? For mycoplasma..what is the test everyone is talking about and can that be done at regular lab like quest or labcorp. I have an appointment coming up with my DAN doctor and would like to take as much information as possible to discuss. thanks, madhu.
  23. Hi, I dont post here much but this site has helped me for the past 5 years in helping my kids. I have done supplements, chelation, diet and just now starting abx for PANDAS and just found out he has viruses. He has a very very high load of LEAD in his body. Now I am doubting they have lyme too. Will be testing soon for this. But I cant seem to understand why our kids are getting these pathogens loaded in theier bodies in the first place. Is it heavy metals that cause these pathogens to add up OR the pathogens cause heavy metal issues in their bodies. Has anyone dealt with both these is
  • Create New...