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Santi

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  1. The generic version of this is called Cefixime which is not sold in the US. I believe I may have found the cheapest at quality prescription drugs in Canada. Andrea
  2. My son is 9 and 71 lbs. He takes 450mg 1X/day and tolerates well. Andrea
  3. I am trying to find the cheapest place to by Suprax. In the US the cost is between $500-$600. I found it for $192.00 at Quality Prescription Drugs in Canada. Anyone know of another place I can try? Andrea
  4. My son has lyme and he was on prednisone for 1 week for his asthma. Much of his symptoms returned and they were HORRIBLE!!!! I called his LLMD and they informed me that steriods is NOT recommended if you have Lyme unless its absolutely necessary. Once he was off the steriod, he immediately improved. Andrea
  5. I am surprised he does not see children. Much of his research is done on neuropsychiatric disorders associated with Lyme and you see this is many children. Andrea
  6. My son has been on this for about 3-4 months. It is used to help calm him down. Apparently, it can take up to 6 months for its effects to begin to work. Just recently we have been noticing a change in him. He is much less hyper, but seems a little tired, sluggish which we've NEVER experienced with him before. He actually started to play chess (can sit for 30 mins) something we've NEVER seen with him!! Andrea
  7. That's what happened to us. My son was on Rifampin and Azith but I can't say all symptoms disappeared but the worst of it did (rages and anxiety). Since he became extremely hyper we had to change abx and symptoms started to return. Then he was put back on Rifampin and Biaxin and ALinia and we are going on our 5th week and just beginning to improve once again. We are starting to see a very different child. I pray that it keeps going. Andrea
  8. Hi Lily, I am so sorry to hear how tough its been. We are in the same boat. I also noticed problems around the age of 2 and by 3 I was visiting a psychiatrist. He is 9 years old. How old is your daughter? My son has been on treatment for about 5 months and we are still trying to stabalize him on the right abx. For him, what seems to work best is the Rifampin. His LLMD seems to think that the Bartonella is his biggest problem and the Lyme is only secondary. When we took him off of the Rifampin his symptoms began to resurface. Now that he has been back on it for about a month, we are seeing improvements again. I am sure your doctor will find something new if its not working. Where do you live? Andrea
  9. How old was your child when you first new something was wrong? Have you noticed that treatment is working? Andrea
  10. My son has Lyme and Bartonella and a huge portfolio of psychiatric problems (which may all be due to lyme??). We have gone down the PANDAS route and its unlikely he has it. Andrea
  11. My 7 year old son has significant OCD. We have yet to figure out if its truly OCD or tics. He is constantly repeating what others say, and do, its extremely difficult to have a conversation with him (since he's always repeating), and he does the same things over again (i.e. certain movements, gestures, etc.) His writing was beautiful and now he has a need to place hooks at the end of letters, and its become messy. I can tell he needs to retrace the letters which takes up a lot of extra time. He's starting facial grimaces and neck jerks. Of course, stress aggravates everything. He's been seen by a neurologist and she couldn't tell yet if it was OCD or tics. He does take his baths but I notice that he "holds it in" especially at school. The "not going to the bathroom" thing you mentioned may be in fact OCD, not that she is forgetting to go. Watching your child have OCD is really tough. Andrea
  12. Hi Santi

    I hope this is you, I was referred to you by another mom here on forum i have a son who has tics and I am figting with Kaiser her in bay area to help us cover hte cost to see the Harris in redwood city I was told that you had to go through this and was wondering if you would be willing to share some notes with me.

    Thanks

    Sylvia

  13. Hi Lyme Mom, My son is also 9. He has a huge portfolio of problems but I would rate rage/anger/irritablity the worst. He has a diagnosis of Lyme/Bart and borderline Babesia. His Lyme doctor believes that the rage is mostly from the bartonella. If your child has lyme, I would definetely check for the co-infections. Bart is notorious for rage as I'm learning. My son was taking Rifampin and Azith but we've since switched. I must say that it has worked very well on the rage/anxiety/anger piece. We are truly thrilled about this. I can actually touch him now and he doesn't tear our house apart. Good luck with this! Andrea
  14. We are now replacing Rifampin and Azith with Biaxin and Alinia. Has anyone had experience with these? Andrea
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