cara615

Based on my son's lab work, he is deficient in the antioxidant vitamins (A,C, E) so our physician recommended we supplement with vitamin E. I waited until we got back from our trip to NY before I started this. I got a vitmain E cream since he is already taking NAC, GSE, Probiotic, methyl B complex and cod liver oil already. The poor kid is 5 and all these supps are hard to get into him. Anyway, I rubbed 1ml of the cream on his belly at night and the next day his tics were worse. The physician told me to stop and wait 2 weeks and start again. Has anyone experienced this before? Can vitamin E cause an increase in tics? It seems that everytime I give him something new his tics increase. He is very very senstitive to almost everything it seems. It makes it frustrating when adding in new supps. I am also thinking of changing the anti fungal after we are on the GSE for 5 weeks. I ordered Candida Clear and I hope to be able to kill even more yeast than we already are. How many weeks should we be on the antifungal for? I plan on doing a stool/blood test soon to see if we are actually killing the yeast and what strains are present in his body still. We really have seen improvement in his tics since being on the GSE but since we got back from NY and I gave him that vita min E cream, things have picked up a bit. His diet is consistent and we have been very good about limiting all sugar, gluten and as much corn as we can. He is off milk too but still gets yogurt and cheese. In total we have been treating holistically since the beginning of May so about 3 months now. Do I just need to give it more time and be patient? sorry for all these questions in one post!

Mag supplements made my son's tics worse. We did a very comprehensive blood test and found that he is not deficient in mag. so it makes sense. Instead my son is not methylating or detoxing. He needs methyl B vitamins instead. My son also has candida and we are using an antifunal to treat that. I would not have knwn anything about his situation without those blood tests though.

UPDATE: We were on vacation in NY for 2 weeks and my son's tics were not very noticable. He still had them but at a much lower baseline. The intensity of them was less and the frequency was less. Right before we left to return to Atlanta, his tics increased slightly but then when we got back home they went back down. 2 nights ago I added a vitamin E cream to his supplement regimen (as per my physicians instructions). The vitmain E is suposed to help him with detox. Well, the next day his tics were markedly increased and he had loose stool and a belly ache most of the day. Not sure if the 2 are related but I did not continue with the cream last night. Today his tics are still increased from the lows that we had seen for the past three weeks but still overall MUCH more manageable than they previously were. Most people do not notice his tics at all and I think its because he is 5 and most 5 year olds make noises and movements. lol Anyway we are still on the antifungal (GSE) 4 drops 2x a day and I am thinking of switching to another antifungal such as Candaplex just to see if we can get more of the candida. I read that changing up the antifungal can help kill tough strains of candida especially the onces that mutate and become resistant to the current antifungal. Does this make sense?

We just flew to NY to see family for 2 weeks. I can't believe how great he is doing right now. His tics are still minimal even with all the excitement and stress with travel and new surroundings. I was expecting a huge resurgence and we are still at this "new" very low level. I don't want to over think it, I'm just enjoying it. We are staying true to our diet changes and supps while on vacation. I brought everything I need and we went shopping for all his dietary needs. Hoping for the best.

Ok I really do not know the real cause of my son's TS. Our integrative physician believes that he has yeast overgrowth that has lead to food allergies and inflammation. This coupled with his poor methylation and detoxing ability has lead to neurological damage. So if this is all true, wouldn't eliminating the food allergies and yeast while boosting methylation with methyl B complex vitamins lead to healing? it sounds good to me but these western docs have gotten into my head and have me believing that no matter what I will be kncking on their door asking for meds at some point

So as the week has progressed I have battled through the increased tics and ADHD like behaviors. I increased the GSE to 3 drops in the morning and 3 in the afternoon. On Saturday (usually the weekends are high Ticcing days) my sons tics eased up significantly. He had some head nods midday but almost all vocals were gone and I didn't see any new motors emerge. Sunday was even better. No vocals except for some isolated yelps and no motors at all???? I do not want to get excited by this at all. I'm so nervous. Could it be waning? I thought waning was more gradual instead of such a sharp decline in the tics. I haven't changed anything besides adding one more drop of GSE to the regimen. My son is eating so much better too! He is off most sugar and is trying news foods like salmon and grilled chicken! I'm amazed. So, my question is, are we healing or will his tics come back with a vengeance at some point?

We went to a psych today and he added on another diagnosis - ADHD. Our neuro just gave us OCD and TS. The psych did not observe any OCD today so who knows what reality really is. Personally I don't see OCD or ADHD and either did any of his teachers or speech therapists. I guess maybe its mild right now. Our big concern are the tics obviously and if we can't get them under control soon we may have a problem because his neck jerk can do damage to his spine. We have been on GSE for almost a week now with increased tics all week. Plus that mysterious virus on Monday that went as quickly as it came. Does anyone know if or when I will see some tic improvement on the GSE? Can die off last a couple of weeks? I feel like I'm in a bottomless well and the news just keeps getting worse and worse. And of course I can't help but think of the future. So terrifying and we aren't even in kindergarten yet

My son is back to 100% today. i gave him the GSE this morning (one drop) just to see how he dealt with it. He is tolerating it just fine. So yesterday was most likely a virus or possible die off. Will never know. His tics seem pretty mild today too, When I spoke to the doctor yesterday, she felt that Nystatin is going to have to be a part of our treatment at some point down the road. She feels that killing yeast is incredibly difficult especially in a 5 yar old that is accustomed to eating carbs and sugars. I am doing my best to limit these foods. He is doing OK. my plan is to increase his appetite at meals by not allowing snacking during the day so I can pack in the protein at meals. I will offer healthy snacks like almond butter and raw veggies but I know he will not openly eat them so maybe by meal time he will eat more lean meats instead. i am chugging along.

Doctor thinks it was a virus.

Oh and he is not allergic to grapefruit. We had the allergy testing completed already.

Exp date is 9-14. Waiting to speak with doctor still. My son slept for an hour and woke up ravenous. I gave him some protein and lots of fluids. He came back strong and is feeling well now. Played outside. Maybe it was a virus? Not sure but I will skip today for anymore GSE and try again tomorrow.

Well we are here and I feel horrible for him. I can't give him any supplements or GSE while he is feeling this way

Update. Had to bring him to urgent care because he was vomiting too much. They gave him zofran and now he is home sleeping. The urgent care doctor was skeptical of what I am doing but told me to hold off on the GSE for now. I'm still waiting for our integrative physician to call me back. She is in clinic till 6. I read flu like symptoms are possible and it is our 3rd day of treatment for yeast....

Yes Chemar - We are in close contact with our physician. Today my son says he feels hot and is nauseous. He just threw up. I put peppermint oil on his belly and we will take it easy today. Lots of fluids. He does not have a fever. The funny thing is that he is not ticcing. Usually I thought when a child isn't feeling well they tend to tic more.

here is my concern although it may sound a little crazy, just bear with me. i started the GSE for the yeast and since then, his tics have been increased as well as his stomache aches. So I guess this is die off reaction. From what I 've read, the die off reaction should last a couple of days to a week or so. No one really knows. My concern is that if he is still eating some offending foods, will the yeast keep growing back just as fast as I am killing it, thus putting us in a constant state of die off reaction? because if that is the case, i will have to stop the GSE to get his tics back to a more mild level. We were doing pretty well on the NAC with long periods of time in between tics. i just wish I knew there was a light at the end of this tunnel. I am considering letting him refuse all the clean food I offer him until he gets really hungry. I am sure it will only last a day or 2 but then maybe he will consider eating a carrot or something other than carbs.

We did the ALCAT which is a comprehensive allergy test. He is severly intolerant to corn, moderately intolderant to gluten and mild to dairy. Our integrative physician did not think we needed to remove dairy at this time. Mind you he has no allergic reactions to any of this stuff since he has been eating it his entire life. I guess the only reaction he was having was inflammation (which I can not see).

We are gluten and corn free. Low sugar Nd nothing artificial. It's the best I can do with him. I just want to reduce the yeast with the GSE I give him. Hoping it will reduce the tics. I can not be overly strict like that diet requires. It just won't work for us.

Wow, that diet is not going to work for my 5 year old. I don't want to sound negative but I am so overwhelmed. I don't think this is going to work for us.

He ate eggs and bacon for breakfast with organic OJ and yogurt with probiotics. I will try a turkey burger for lunch but what else to give to him with it? Just water? what do you put on it? i know I sound silly but I am not very great around the kitchen. He has had a pretty good diet as best as i can for the 5 years he has been alive but he did drink a lot of juice which I have stopped as of now.

i think I may have to let him lose some weight then. I just have to take the plunge and not give him any sugars and he will have to go hungry until he eats what I give him?

I am still givin him NAC too. Is that bad for candida?

Here is the issue. There is no way I can give him his probiotic if he doesn't have yogurt. He won't take it in anything else. I think his sensory issues are stopping him from trying new foods. Plus, he craves processed foods like chips and cookies because of the yeast. Do you think I will see even a little progress if I keep giving him the GSE and slowly try to eliminate some of the offending foods? We are gluten/corn free but he does get a little ketchup and a low sugar cookie a couple of times a week. I also allow ice cream once in a while. I feel horrible but he is 5 and this diet is killing him. He is fighting me every single step of the way.

i also find that I NEED to be surrounded by NOTHING but positivity. I am on a facebook group called tic talk with all sorts of folks with TS and they are amazing people but suffer greatly in their lives and TBH reading those posts send me into a tizzy and freak me out with all sorts of negativity. Only some of them are familiar with holistic treatments so most are taking pharmaceuticals to treat their TS+ with little to no improvement. Its heartbreaking and makes me fear for the future. So I have realized that i can not read anything from that group anymore.

oh I forgot to mention, I put oregano oil on his feet (from Young living essential oils) at night and I put coconut oil in his oatmeal this morning. Hoping that adds to the antifungal process.

HUGS to you. How are you doing with the diet? Have you eliminated ALL sugar? We just can't do it. my son is 5 and has texture/taste issues and will starve himself if he does not like what he is eating. We are gluten/corn free but he does get a low sugar cookie every now and then and we are giving him fruit. He still gets carbs in the form of gluten free (rice based). I just upped his GSE to 4 drops a day from 3 drops a day. We are also giving him NAC and epsom bath salts to help with detox as well as probiotics 3x a day, glutamine for the gut and fish oil (he does not react to fish oil). Since he is a slow methylator i give him a methylated B complex every other day too. PRAYING PRAYING PRAYING. i sit oer his bead at night and ask GOD to give this child peace. I know the candida will grow back if we don't completely remove everything that feeds it but i am hoping I can reduce the candida to a point where its not overloading his nervous system with toxins. Do you think it will be possible?