LexMom

My DS never had any abnormal tests results aside from low IGg levels. CBC, EEG, MRI, Cat scan, even strep titers. His titers weren't even high when he had strep. I always thought it was unusual. Then my daughter started getting sick and the doctor checked her for h. pylori and she was positive. Our whole family was treated and we have seen significant improvement in our DS. He had very high anxiety. I'm wondering if we were fighting the wrong infection. Anyway, my point is that I think it doesn't hurt to check for bacterial infections of the stomach. They can affect your immunity. Probably the reason I also had low IGg.

My son and daughter's only symptom for strep was frequent urination. I few times, I took them to the doc thinking they had UTIs, but they had strep.

Does she have any stomach issues? My son has seen remarkable improvement after being treated for h. pylori. My daughter was diagnosed with it so our ped treated my son, too. Stomach issues can mess with your immune system and mental function. I'm now wondering if this was not his problem all the time.

My son never had elevated titers, even during a bout of strep. Does she have stomach problems? We have seen remarkable improvement after our son was treated for h.pylori.

I felt there was no hope for my son until my daughter was diagnosed with h. pylori. They treated our whole family since it is contagious and now my DS has been doing fantastic. Now I'm wondering if this was his problem all along.

The gastro insisted Florastor is one of the only backed by studies showing its effectiveness.

Here we are...months later...and we get a diagnosis of h. Pylori. :-/

We saw a lot of improvement with tonsillectomy, but have never really had a tic-free period.

I rethought this. I don't believe Florastor contains strep because the doc told us it is a yeast, not a bacteria.

We use Florastor. I'm not sure if it contains strep, but the GI doctor told us it is one of the only probiotics that has documented studies behind it.

Unfortunately, by the time we get to the doctor, he is not bleeding anymore. It's very unusual. It seems to only happen once, then go away for months. It is clearly blood, though. I need to keep a urine cup at home for when it happens. He is having back pain where his kidneys are and an explosion of tics. I am ready to give up. All his tests always come back normal. Even his strep titers are always normal.

Thanks. I followed up with the doctor. She ordered a couple of urine tests. His urine usually come backs normal. I suggested maybe he has some kind of vasculitis since he has other inflammatory problems. She ordered some tests.

Has anyone else's child ever had blood in their urine? My DS just had his 3rd incidence. Usually he flushes before I can see it, but this time he saved it. It's pretty red. He is having back pain. They thought he might have kidney stones, but a followup with a urologist and nephrologist were both fine. Sonogram of kidneys were fine. I'm puzzled.

My DS had an eye tic when he was having a bout of blepharitis. Has he seen an opthamologist?

My son's onset was so abrupt, even he acknowledged it was not normal. Of course, he was older. It took a lot of doctors before we found a doctor who treated it as PANDAS and, even still, they treat it as PANDAS but will not name it as such.