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MamaOnAMission

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Everything posted by MamaOnAMission

  1. Yes. That's it. Could this be why I feel like I always have the flu?
  2. It says this on my latest blood work. Perhaps this has something to do with my child being so sick. IGM IMPLIES CURRENT OR RECENT IGG B19V INFECTION-FETUS MAY BE AT RISK. ANY ONE MAKE ANY SENSE OF THIS?
  3. She's at 5mg. I see it helping OCD just a little bit. She is still up to at least 3am every nite. Did u c sleep eventually get better? What mg. did u work up to???
  4. Are there any hospitals that are well educated in TB illnesses? ...and has anyone ever gone for help at a hospital?
  5. So bactrim and minocycline are not addressing my child's Lyme, it's only dealing with her battonella? I'm surprised since I'm going to top LLMD and was not it told this.
  6. We have tried soooo many things. What has worked for severe OCD at night and severe insomnia?
  7. Just melatonin gets your child to sleep? How much do you give?
  8. Severe OCD keeps her awake every night till 3am. We have tried...Depakote, lamictal, celexa, luvox, prozac, lyrica, seroquel, gabapentin, magnesium and trileptal to try to get her to sleep. Also melatonin and probably others I am forgetting. Nothing worked thus far. Any suggestion?
  9. magnesium worked first two nights and now ocd is back and she is up till 3am every night. i can't seem to get her brain to turn off and go to sleep. will talk to psychiatrist again.
  10. Anyone try magnesium for sleep and can it be given with lamictal or Prozac?
  11. Boylowa, are all those supplements to help with sleep?
  12. How much can you give 13 y.o.?
  13. Thanks for the reply's. I will research further. She has NEVER slept, from day one of her life....before abx. or any other medications. I will check with Dr. J. too see if he has any comments.
  14. Thanks for the reply's. I will research further. She has NEVER slept, from day one of her life....before abx. or any other medications. I will check with Dr. J. too see if he has any comments.
  15. Thanks for the reply's. I will research further. She has NEVER slept, from day one of her life....before abx. or any other medications. I will check with Dr. J. too see if he has any comments.
  16. OK, I JUST HAVE TO SAY, THAT FOR 12 YEARS...MY CHILD NEVER SLEPT. NEVER GOT TIRED. RAN OUT OF THE HOUSE THROUGH THE NIGHT. WEIRD PSYCHOTIC, RACING BRAIN. SEVERE OCD. Doctors tried all kinds of medications to stop OCD. Trileptal, gabapentin, depakote, celexa, luvox, melatonin, prozac. And NOTHING worked. It all made her more hyper. Well,....I tried magnesium yesterday. Gave teeny bits through out day and she got tired and slept!!!!! Who knows if it will last, but this has NEVER happened. What is this all about??? Even lyrica, and clonodine would not work. Why on earth is magnesium working?????? Could she have a serious magnesium deficiency??? Hope it lasts.
  17. I go to doctor. i have an appointment with LLMD. Is there anyway to get the Igenix test done prior to visit so that I have the results the day of my doctors visit? Thanks
  18. I am talking severe OCD and agitation. Can't get near her and forget a bath! She's too wild and won't go near water. We tried Celexa, Luvox, as far as SSRi's go and had bad experience. She is on low dose of Prozac and its the first time she is not getting violent with a medication. I am wondering if its the first time that we have the antibiotics on board for the bartonella/lyme. We are working our way up on this stuff. BTW... What is "NAC" ?
  19. Tried so many drugs. Nothing helps only makes worse. I am with top specialists and so far nobody can figure it out. IVIG Next step.
  20. she is on bactrim and mino. for about 4 months. still can't control horrible ocd or get her to sleep. Doctor J. is doing some more blood work but is talking about IVIG now. Please pray for my baby girl. she is suffering soooo much. please tell me what has helped severe ocd for your child. i don't care if its psych. drug antibiotic or voodoo. she needs relief!!!!!!!!!!
  21. is this genetic testing that your doing?
  22. I am so glad your seeing improvement with your little girl. Means there is hope for us too!!!
  23. My child has battonells and Lyme. I. Keep seeing 3 parts to this disease.... Severer confusion, psych. Symptoms and OCD. Its hard to get all 3 calmed down. Anyone se see this?
  24. If the Dessert is "too much at times" can you do lower dose?
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