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Showing content with the highest reputation on 11/12/2017 in all areas

  1. I would like to suggest that one "treatment option" is to not add too many things or make too many changes at once. These kids can react so individually and differently, and a "throw everything but the kitchen sink" strategy can result in a confounding "who know what is causing what" situation. For example, in some (rare?) cases, vitamin D makes some kids worse. That is even when they might be low on vitamin D in their blood - go figure (and some have went and figured, and have explanations for this kind of paradoxical thing). Somewhat less rare (in my humble opinion) but still rare, are kids that get worse on probiotics. Our son was measurably worse (I keep track of daily soap use as a measure of his OCD) on many different probiotics. Some kids react strongly to some probiotics, some parents mistake that (in my opinion) for herx, and some (such as my son) get mildly worse on probiotics. And of course, many have no problem with probiotics. But if you don't introduce them separately (i.e. have them on it for a week before abx), you won't know what is doing what. You can also try to figure that out by removing things later. There is more than one story of a mom that in desperation (when her child was not improving) took the child off everything - and the kid got better. But again, you won't know what was the culprit unless you remove one at a time, wait and watch, add back in, wait and watch, remove again, wait and watch, remove another, wait and watch, etc. It is a long road, and also a less-travelled path (because we can't be patient enough - we want a quick fix).
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  2. If the antibiotic schedule is a treatment for Lyme Disease, then minocycline or doxycycline are effective at reducing bacteria counts however they also create a significant amount of round-body forms or "persisters". The medical community splits here with the IDSA camp saying these persisters are not a risk, and the ILADS camp saying these persisters are the cause of ongoing disease. You will need to make a decision and choose a side. If you think the persisters are a risk, ask your doctor about using a therapy that incorporates antibiotics known to eliminate round-body forms of borrelia, such as Flagyl. Here are some links that may be helpful: http://columbia-lyme.org/patients/ld_chronic.html https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4373819/
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