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My heart breaks to read this but I am also encouraged by a parent that is striving for healing and being that wonderful fighting advocate that these poor kids so very much need. I have two children. Both with difficult stories. Very similar to yours. Firstly, I will say there was no single organic reason for their fall . Everyone is different so for some its treat the lyme of mold and bingo the child heals. My oldest has the marks and we were told too that they were stretch marks . He is tired all the time, easily overwhelmed and tics. Our youngest was home-bound for years. What has worked for us? 1. Clean eating. They both have detox issues so every time we treated for Bartinella/Lyme they would fall apart on even the smallest herb or anti B. UHG So we could not do much. When they were at their worst they were very sensitive to yeast and Molds but as they healed Mold became less an issue. NOW Most foods they eat are organic, lots of veggies and fruits, grass fed beef and chix along with cold water fish 2x a week (good for brain inflammation) We removed Gluten/dairy/soy. The immunologist (conventional from big children's hospital) believes that certain kids suffer from innate immune responses from certain trigger foods and these three she found to cause inflammation effecting brain the most. Huge difference for my youngest especially. He is also supper super thin and she has him on amino acid plant based or bone broth based protein shakes between meals and we use high fat organic coconut milk in can. His mind began to clear in a few months just by cleaning up diet. 2. Having Bowel movements 2x a day helped their poor detox for sure. Increased pure water and actually used fiber powder for a while until they both go now 2x a day. 3. Good counseling because even if its caused by something outside of themselves the chemistry is still off and the OCD and anxieties/depression are there and by learning how to deal with these emotions better help's them navigate thru these horrible waters. As we treated our youngest son for Bart all his emotional issues (agoraphobia, Bi polar, OCD) disappeared. WE used low low low dose SSRI and nutritional lithium as well. WE continue to treat yeast, bart with herbs and cycles of 5 day Tinizidol for gut bacteria. Both are NOW able to handle the treatment bc their bodies are functioning better. Diet was a huge life style change and took me 3 years to finally own it and implement it. Best thing we ever did. Not the cure ALL but huge piece of the puzzle for us. Now not everything that comes our way causes them both to fall apart and start over. They are beginning to strengthen the terrain so that the genetic predispositions don't derail them at every turn. Keep searching, praying and never give up!!!

We got our son tested for bartonella thru Igenex. It came up negative, but our LLMD at the time (a researcher & teaching dr in Missouri) said there are at least a dozen forms of bart so it doesn't mean a whole lot. My daughter also has bart & I realized it when we were doing swim lessons years ago because at the time she was still skinny as a twig & I noticed she had what looked like stretch marks on the backs of her legs. Like your son, my daughter had never been fat - nothing had stretched her skin so stretch marks was very obviously not the answer. Thankfully I had just found this forum & suspected it was a bart rash. That purplish to reddish striated rash is pretty distinctive. I'll post a pic of my son's rash on his leg (he's also never been fat & his skin has never been stretched out by anything), but if you google "bartonella rash" and click on images, you'll see a lot of pictures of them. That actually helped with my family's skepticism - seeing my pix of the bizarre rash proved to them that there really is something out of the ordinary physically going on with my kids & mainstream medicine has no clue how to deal with it. I've looked at Buhner's protocols and felt the same sense of overwhelmed confusion so I'll continue watching this thread, too! Someone pointed me to Dr Zhang's book to learn more about his protocol, but a friend of mine just diagnosed with Lyme was telling me about Dr. Rawl's book "Unlocking Lyme" that she's reading. It all gets so confusing. If only there were pat, straightforward (affordable!) answers available. FWIW, my son says that of all the things we've tried, lomatium (we get it as SEES-plus capsules from Barlow Herbal.com) has done the most to improve his symptoms. Fair warning, though, it can cause a rash initially which does go away after about a week but itches miserably in the meantime (ours was actually like german measles which made me wonder if it releases viruses - including vaccine viruses - sequestered in the body) so if you do decide to try it, be sure to follow their instructions about how to minimize that possible effect. I didn't pay enough attention to that (in fairness, my husband had gone into the hospital for an aneurysm during the time we had started), and because I didn't realize what was going on till it was fully upon us, we had to just ride it out. Which made for a pretty miserable week. Afterward though, my son said he felt like he could think clearly for the first time in years.