Amazing progress and testing update
Posted 30 March 2012 - 05:04 PM
We saw our wellness doc today. dd9 got the results of her organic acid test and she had similar results as several years ago which was disheartening. But maybe now that the lyme is more under control, we can treat some of these other issues. Doc gave us CoQ10, riboflavin, magnesium, glutathione, P5P B6 and also Niacin, and stuff to support the neurotransmitters. That's all in addition to the other stuff she's already on.
Results: Low B6, High Yeast, high hippuric acid, high succinic acid, high citric acid, low HVA, low VMA, low 5-htp
Me - diagnosed with hashimoto thyroiditis in 1996, lyme and parsonage turner syndrome in 2010, mthfr mutation in 2013
dd10 and dd11 - diagnosed with sensory processing disorder in 2006, gluten intolerance in 2007, pandas in 2008, lyme in 2010, mthfr mutation in 2013
Posted 30 March 2012 - 05:22 PM
I'm glad you and your girls were able to enjoy a wonderful day together.
A little soreness tomorrow will only add to the details of your story of your great time together!
you know...battle wounds.
Posted 31 March 2012 - 12:54 AM
Posted 31 March 2012 - 03:21 AM
Posted 31 March 2012 - 05:42 AM
In case I've never told you, I am a bit in awe of you- Going through Lyme treatment yourself, working full time, while supporting two girls going through Lyme treatment.
You are a strong lady, much respect, please keep posting your journey, helps the folks like me.
I am collecting for my dd's OAT this very weekend- I need to see what is going on in her gut- suspect we might have some issues that we will need to correct to try and get back in balance.
Yahoo for the happy memories! I am going to try and create a few too this upcoming Spring break week- taking the kids on a 2 day trip to San Francisco (we can drive there) and then my dd is turning 7 and will be having her first 'real' birthday party with school friends.
Things I have always been afraid to do in the past, with the unpredictable nature and feeling too stressed to try- we have never even really taken a vacation all together.
But I am learning myself as I slowly heal to learn to try and have some fun, and make some happy memories if we can.
Edited by S & S, 31 March 2012 - 05:47 AM.
started biomedical treatments w/DAN! and GF/CF at age 4
Cam K 175, 2 HD IVIG's, 2 LLMD's- had improved, but still challenging in areas at times.
Mom-tested positive Igenex PCR Lyme, and positive Bartonella, 2011.
After long tx break for dd9, where we backslid, in Spring '14 decided to resume tx for Lyme and co-infections,
with LLMD, and finally saw a PANDAS specialist (amazing experience and person)
and as a result, have a wonderful new baseline! (everything crossed!)
Posted 31 March 2012 - 06:10 AM
Posted 31 March 2012 - 11:46 AM
Sounds like you found a few more things to work on, health-wise. My ds just got a yeast infection again and his dr. said it was from excess die-off. So, being treated with Sporanox for 6-12 weeks. Keep healing and posting! Best wishes.
Edited by JuliaFaith, 31 March 2012 - 11:47 AM.
Ds16: 5/10-PANS; 10/10 -lyme; Babesia [parasite]; Mico. & chlamydia pneu.; mold; T&A done; GcMAF done 12/13; 1st Strep Pos. 2/14.
Current treatment- Maintenance: Vit. D; Detox [Chia seeds]; probiotic; Kidney detox drink-electrolytes/'M' Water/Galactose PANS Support: (Myco Potent Immune Complex; Biocidin (anti-bacterial); Kidney tincture.
Prescriptions/Treatments: thyroid; Desmopressin [Urinary tract support]; neurofeedback (weekly) Psychologist (bi-weekly); hydroxyzine (antihistamine-sleep during flair); Exercise (finally!)<p>
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