Famous people with PANDAS? WDYT?

[thereishope]

I don't have direct "ins" but I am usually "creative" in my way of contacting/finding people and tried each one multiple ways. To be honest, even if they did get my message and it sparked curiosity, I would have been floored to get an actual response. As everyone knows, celebrities are private and I think if they at all saw themselves in the description of the disorder, they would rather research in private than learn about it in the spotlight. Who knows, maybe there's some on here. That's the nice thing about online screen names as oppose to real names.

 

If anyone else wants to try to contact celebrities, please do!

 

 

No response at all from the celebs? Did you have an direct "in's"?

Edited September 7, 2010 by Vickie

[cobbiemommy]

This is a little off the subject, but it does relate to a celebrity. Remember when Tom Cruise told Matt Lauer how psychiatry was a pseudscience and that people that had psychiatric issues needed vitamins and other therapies? At the time, I thought what a loon-he's the crazy one. Now, I am a true believer in antibiotics for psychiatric issues, vitamins, healing the gut to heal the body, etc. Please don't PM me to blast me about Scientology or views about psychiatry. I am a devout Christian and believe that Psychiatry and Neurolgy have their place and wish that they practiced as one unit.

[Lori Ann]

I knew crotch grabbing was a tic! My son did it all the time until we upped his lamictal! My dad has Parkinson's and his sister had MS. My PANDAS son has eczema which is also assumed to be autoimmune. I do believe there is a BIG connection between Parkinson's and PANDAS.

[PANDASmcnuggetsw/fry/coke]

Martin Luther (as in the Protestant Reformation) was thought to possibly have the scrupolsity form of OCD.

Also, Leonardo Da Vinci, one of the greatest minds ever, left many writings. One of which was a journal with the same sentance writtten over and over. It sadly went something like this:

 

 

Tell me if anything I did was worth doing.

Tell me if anyhting I did was worth doing.

 

Amazing, given all of his contributions to art and science.

[tpotter]

[ I do believe there is a BIG connection between Parkinson's and PANDAS.

 

 

Yes, I also believe there is a big connection. My son is SO much like my father (first with Asperger's and then with PANDAS.) I've told my Dad this, even before he was diagnosed with Parkinson's. After he was diagnosed, I asked him to give blood for the Cunningham test (it's not standardized for adults, but I felt it would be good for her to have access to it, because the behaviors are so much the same, and my Dad did have sudden onset...albeit when he was 20...I suspect he had it earlier, and his sister died of probably RF. He couldn't give the blood in the end, because he has some other problems, that his doctor doesn't want him to lose any extra blood, but he certainly had depression and terrible OCD over the years. Now, he has Parkinson's. Could it be his age, or could it be untreated PANDAS? Who knows. But, I do believe it is related.

[matis_mom]

I was checking the link about celebrities, look at this!

 

 

Jessica Alba - (born April 28, 1981) is an American actress whose TV and film credits include Dark Angel, Honey, Sin City, Fantastic Four, Into the Blue, Idle Hands and 2007's Good Luck Chuck. Alba's early life was marked by a multitude of physical maladies; she suffered collapsed lungs twice, had pneumonia 4-5 times a year, a ruptured appendix, and a cyst on her tonsils. She has also acknowledged suffering from obsessive-compulsive disorder during childhood. Her health improved, however, when her family moved to California.

 

I guess she had both strep and mycoplasma? Can you imagine how different her life might have been if they had treated her properly?

[thereishope]

That exerpt about Alba is interesting!

 

I once wondered about John Travolta's son. First he had Kawasaki's, then autism.