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Posted

Hi There KeepOnTrying...

I just spoke to the dr. today. He said I could add charcoal tablets in case it is a die-off. He wants me to stick it out with the Zith. I'm going to try to keep going with it. We are also doing some immunological tests in that mean time that he is ordering today (igg sub-classes, flow cytometry, t-cell studies, etc.). He mentioned that adding too much stuff at once will create too much die-off and aggrevate symptoms. I am doing probitics. He also told me that Zithromax is the best if you want to avoid yeast issues.

 

Hope this helps,

Holly

Posted

Hi There KeepOnTrying...

I just spoke to the dr. today. He said I could add charcoal tablets in case it is a die-off. He wants me to stick it out with the Zith. I'm going to try to keep going with it. We are also doing some immunological tests in that mean time that he is ordering today (igg sub-classes, flow cytometry, t-cell studies, etc.). He mentioned that adding too much stuff at once will create too much die-off and aggrevate symptoms. I am doing probitics. He also told me that Zithromax is the best if you want to avoid yeast issues.

 

Hope this helps,

Holly

I am in the process of finding out what tests I should do. I have been giving charcoal tabs but not sure it is helping. I give one a day - what were you told to do? I wonder why zithromax is best if trying to avoid yeast? I thought all abx caused probs. I will keep her on probiotics to be safe. I guess it is possible that the probiotics could be causing die off which would then confuse the situation. Does your child experience tics? As I said, my dd has tics and I worry because those seem to be hard to go. I am going to give it maybe another week. I really need to see something if I am going to continue. Do you have a pandas diagnosis? We do not which is why I am scared about this treatment. Good luck with the tests.

Posted

Yes, we had a PANDAS diagnosis by an immunologist. We also had elevated antibodies and CamKinaseII. My daughter has some tics, but her main problems are OCD and rages/tantrums right now. Today was better than yesterday, so I am hopeful. He said to give 2 charcoal tablets twice daily 2.5 hours after a meal. All of this sure is puzzling and keeps me on my knees. Let's keep hope alive!

 

God bless,

Holly

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