momaine Posted August 21, 2010 Author Report Share Posted August 21, 2010 As far as the 100% and stays that way comment that I made, I'm talking with this particular exacerbation. Not to say it can't come back at some later date and she'll need it again. I can't comment on anything else as I just don't have the knowedge to do so, but I did think I had read on this forum before that when Dr.'s B and K talked that they came to agree on the dose and also on the time frame for future IVIG's which I thought I read was between 8-12 weeks. REally can't comment further as I don't understand it all. Just trying to share what I thought I had learned from him. I was hesitant to do so as I can't back it up or explain it. It seemed to make sense to me though. Link to comment Share on other sites More sharing options...
Betty04 Posted August 21, 2010 Report Share Posted August 21, 2010 Momaine, Would you mind sharing whether your child has immune deficiencies and the dose of the IVIG? Thanks! She failed all 12 tests on the pneumococcal panel. She got 1.5g/kg Really appreciate you sharing Momaine. It helps me in determining what may be beneficial for my ds. Link to comment Share on other sites More sharing options...
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