Please share your experience with coming of prednisone

[Phasmid]

I am very scared. My son just finished the 30 taper of pred. He was going so great. My husband took him 8 hours away to a family gathering. I warned him that this possibly could happen. He called last night asking what was wrong with our son. I want to cry right now.

 

He is there with other kids his age, but can't get along with any of them. He finds nothing that they do fun. He is miserable and making his dad miserable. He's demanding to go shoppiing for stuff he doesn't need (especially where he is) and throwing fits when something doesn't work out.

 

I am so sad...

 

Dr. said he needs more pred but what is the point?

[momaine]

I am very scared. My son just finished the 30 taper of pred. He was going so great. My husband took him 8 hours away to a family gathering. I warned him that this possibly could happen. He called last night asking what was wrong with our son. I want to cry right now.

 

He is there with other kids his age, but can't get along with any of them. He finds nothing that they do fun. He is miserable and making his dad miserable. He's demanding to go shoppiing for stuff he doesn't need (especially where he is) and throwing fits when something doesn't work out.

 

I am so sad...

 

Dr. said he needs more pred but what is the point?

When my dd did prednisone tapers, when the prednisone stopped, the behaviors slowly crept back in. Sorry he is struggling. What are the doctor's plans after another taper? Does he have a long term plan? I begged for more prednisone while waiting for ivig because it really gave my dd back her life, for the most part.

Angela