ivig question

[footballguy]

Hey was wondering if diagnosed already with pandas or atleast fit all the criteria and all the tests say it is where can I get a ivig done? I was supposed to talk to dr. k but he is a little exspensive and was wondering is there anyone who can just do an ivig?

[sptcmom]

How about the doc who diagnosed your child with Pandas? An immunologist , hematologist and neurologist can do IVIG in children as far as I know. There are also infusion centers, local hosp ER, local VNA etc who can do IVIG but you obviously need a doctor's prescription, advice etc. IVIG is serious intervention as I'm sure you've read up on so having a good doc on your side is imp.

Without naming names, a lot of healthcare professionals are poised at the right place at the right time and do consider that to be an enormous financial opportunity and the financial drain is happening to all of us Pandas parents, what can tell ya.......One doc has even started ignoring phonecalls from "old" patients and picks up only if its a new number which means a new, larger financial opportunity (.Gone are the days where scientists used to invent cures for the sake of science and benefit of humanity. All Pandas treatments come at a VERY large premium unfortunately. No one charges at cost like a true researcher should if your insurance doesn't cover.

[norcalmom]

I would suggest trying to get your insurance provider to provide you with infusion centers that are considered in network. There is list on this board of doctors- I think pinned at top - of pandas doctors by state. See which are in your network.

 

It all comes down to what insurance you have. I hope you have some. We do, but so far nothing has been covered! And next time, will definatley search out a way to do it in network, and try to get coverage.

 

Also, I think that Corum ivig centers are nationwide and the most affordable. So, might google them, some others ont he board have used them.