Back from Dr B

[melanie]

Well it looks like were going to do the 1.5 g with Dr B.They have to work out the insurance stuff and I think he wants me to wait untill his clinic is up and running.Hes putting in a Infusion center in the Darian office.

Aside from the traffic all was good.A little crowdwd in the office too.

 

I dont know what to say to Dr J about this I dont want her to dump me because I want to do the higher dosage.

 

Melanie

[Fixit]

Well it looks like were going to do the 1.5 g with Dr B.They have to work out the insurance stuff and I think he wants me to wait untill his clinic is up and running.Hes putting in a Infusion center in the Darian office.

Aside from the traffic all was good.A little crowdwd in the office too.

 

I dont know what to say to Dr J about this I dont want her to dump me because I want to do the higher dosage.

 

Melanie

 

i am glad for you....

are you comfortable with the higher dose..not that you shouldn't be....?

if she is a good doc..like the people i am currently seeing and going to see....i believe they almost encourage another opinion..and you may want to go back and forth between them......

there are not enough docs with experience dealing in pan/pits and should welcome other thoughts...and that you are only trying to do the best thing for your child....

it's not a popularity contest...and you can respect more than one doctor

[kimballot]

I am glad it went well. I hope you are comfortable with the decision. Please keep us posted on how it goes.

[Suzan]

Congrats! I hope your doc will understand. You have to give this a try. I hope it does the trick.

 

Susan

[melanie]

I kindof feel like Im cheating ...I am not doing anything untill Dr B gets the insurance stuff goes through.It shouldnt be bad Hes had 8 infusions. The 1 problem I forsee is the Out of State issues Im in NJ and that means the infussions are going to be in cConn.

 

Melanie

[peglem]

She already knows that you have not been entirely comfortable with the lower dose, so hopefully she'll be curious to see if the higher dose is more beneficial for your son.

[melanie]

But how do I tell her?Were scheduled for another infusion next friday.Dr B said I could do it and have the higher dose in Aug.

 

Melanie

[peglem]

But how do I tell her?Were scheduled for another infusion next friday.Dr B said I could do it and have the higher dose in Aug.

 

Melanie

I don't know what your relationship w/ her is like but how about something like this?

 

" I consulted with Dr. B last week and he is willing to try the higher dose of IVIG for Danny. I'm gonna try that for his August infusion. I feel like I owe it to my son to give the higher dose a try and see if it makes a difference."

[melanie]

Can you call her..Please that was perfect.LOLGet some sleep tonight

why every 4 weeks??

Melanie

[peglem]

Can you call her..Please that was perfect.LOLGet some sleep tonight

why every 4 weeks??

Melanie

Did I say every 4 weeks?

Edited July 9, 2010 by peglem

[melanie]

Yes

 

The immunologist has decided to continue every 4 weeks at this dose (1.5g/kg), they are going to place a port under her skin, so we won't have to do the stick every time, and we're going to try to do the whole dose in one infusion (one day/month instead of 2).

 

 

See

 

Melanie

[peglem]

Yes

 

The immunologist has decided to continue every 4 weeks at this dose (1.5g/kg), they are going to place a port under her skin, so we won't have to do the stick every time, and we're going to try to do the whole dose in one infusion (one day/month instead of 2).

 

 

See

 

Melanie

Okay, that was on the other thread, and I remembered it from there, but then reviewed this one and got all confused and edited my response...

[melanie]

ok , now I can sleep

 

Melanie

[melanie]

Dr B patients where did you do the infusion?

[jayjay]

Dr B patients where did you do the infusion?

It is done in one of the exam rooms. Louise is the nurse that does it. She is the best!