justinekno Posted July 3, 2010 Report Posted July 3, 2010 My son's main symptom is a tic. This tic seems to be more prevalent when he first wakes up. It has definitely improved somewhat with antibiotic use but the morning is still the peak time for the tic. Does anyone see any similiar patterns?
MomWithOCDSon Posted July 3, 2010 Report Posted July 3, 2010 Sort of like young "normal" kids, we seem to hit a wall somewhere around dinner time. He's tired? He's dealt with various triggers and stresses all day, so he's just topped out? Whatever it is, around 5 to 6 p.m. can be the "witching hour" around here. Then, once he gets through it and has some dinner and jumps in the shower, it all calms back down.
Suzan Posted July 3, 2010 Report Posted July 3, 2010 My son's main symptom is a tic. This tic seems to be more prevalent when he first wakes up. It has definitely improved somewhat with antibiotic use but the morning is still the peak time for the tic. Does anyone see any similiar patterns? My dd8 functions very well during the day but in the mornings and at night is when she falls apart and I see an increase in symptoms. The night is worse than the morning but both can be bad. Some days more than others depending on how she's doing. When she's really sick it's all day but generally not.
Lynn777 Posted July 3, 2010 Report Posted July 3, 2010 We also hit the wall at dinner time until bath time...
justinekno Posted July 3, 2010 Author Report Posted July 3, 2010 I'm trying to understand this and perhaps someone has some explanation that I can't figure out. Why would symptoms vary throughout the day, and occur more during a certain part of the day? If the blood brain barrier is breached, shouldn't the symptoms be consistent throughout the day? My son's main symptom is a tic. This tic seems to be more prevalent when he first wakes up. It has definitely improved somewhat with antibiotic use but the morning is still the peak time for the tic. Does anyone see any similiar patterns?
tpotter Posted July 3, 2010 Report Posted July 3, 2010 My son's problems have typically been worse in the a.m. or p.m. This helped the psychiatrist determine (prior to dx of PANDAS) that it probably was not bipolar (he gets mood changes), because it was time sensitive.
Megs_Mom Posted July 3, 2010 Report Posted July 3, 2010 I'm trying to understand this and perhaps someone has some explanation that I can't figure out. Why would symptoms vary throughout the day, and occur more during a certain part of the day? If the blood brain barrier is breached, shouldn't the symptoms be consistent throughout the day? My son's main symptom is a tic. This tic seems to be more prevalent when he first wakes up. It has definitely improved somewhat with antibiotic use but the morning is still the peak time for the tic. Does anyone see any similiar patterns? During an exacerbation, our symptoms (not tics) were greatly influenced by the following factors: tiredness, food especially protein, needing use the bathroom, and exposure to stressful situations or triggers. We charted it for a long time. We had morning & evening issues - we tried using food - a combination of protein and carb. Peanut butter and cracker were very effective, as was Kashi Crunch cereal. In the worst of times, I would be awake before her, and when she opened her eyes, I handed her a very small portion of food (literally a bite or two, nothing overwhelming like a plate of food). I also went to about 15 mini meals a day to keep her even. I am not kidding. This did really help - it did not cure the issue, but did level things out a lot. We did testing for blood sugar, etc, but nothing ever came up. It seemed to be something that did not show up on tests, but you cannot convince me that there was a chemical issue going on at some level. I was fanatic about bedtime too, as if she lost an hour or two of sleep, the next day was *^&*. Now, she can stay up without any real issue, although I am still too nervous to let much slip here even in the summertime.
peglem Posted July 3, 2010 Report Posted July 3, 2010 I'm trying to understand this and perhaps someone has some explanation that I can't figure out. Why would symptoms vary throughout the day, and occur more during a certain part of the day? If the blood brain barrier is breached, shouldn't the symptoms be consistent throughout the day? My son's main symptom is a tic. This tic seems to be more prevalent when he first wakes up. It has definitely improved somewhat with antibiotic use but the morning is still the peak time for the tic. Does anyone see any similiar patterns? During an exacerbation, our symptoms (not tics) were greatly influenced by the following factors: tiredness, food especially protein, needing use the bathroom, and exposure to stressful situations or triggers. We charted it for a long time. We had morning & evening issues - we tried using food - a combination of protein and carb. Peanut butter and cracker were very effective, as was Kashi Crunch cereal. In the worst of times, I would be awake before her, and when she opened her eyes, I handed her a very small portion of food (literally a bite or two, nothing overwhelming like a plate of food). I also went to about 15 mini meals a day to keep her even. I am not kidding. This did really help - it did not cure the issue, but did level things out a lot. We did testing for blood sugar, etc, but nothing ever came up. It seemed to be something that did not show up on tests, but you cannot convince me that there was a chemical issue going on at some level. I was fanatic about bedtime too, as if she lost an hour or two of sleep, the next day was *^&*. Now, she can stay up without any real issue, although I am still too nervous to let much slip here even in the summertime. Meg's mom- we have the same thing here w/ food. It's a problem w/ school (though, those teachers who listen to me get good results). I find if I feed her every 1/2 hour to 45mins, she does much, much better throughout the day. She never eats meals. Also, I find the triggers you listed are exactly the same for us here.
norcalmom Posted July 4, 2010 Report Posted July 4, 2010 Yes - I've noticed the same thing when pandas is flaring. Like he has to do a bunch of tics when he wakes, and then he is OK. (At least our version of OK!).
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